Health-Related Quality-of-Life Assessment in Dermatologic Practice: Relevance and Application

Cranenburgh, O.D. van; Prinsen, Cecilia A.C.; Sprangers, Mirjam A. G.; Spuls, Phyllis I.; Korte, J. de

doi:10.1016/j.det.2011.11.004

Cited by 22 publications

(40 citation statements)

References 40 publications

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“…Such measurements provide quantifiable data regarding disease impact apart from objective clinical measures. PROs can highlight the most bothersome aspects of onychomycosis for patients and identify targets for intervention [7], thus allowing for the customization of care around patients' goals, treatment optimization, and monitoring of disease activity during therapy [8]. PROs are increasingly becoming an outcome parameter in clinical studies as well as in health-care management and reimbursement [8].…”

Section: Introductionmentioning

confidence: 99%

“…PROs can highlight the most bothersome aspects of onychomycosis for patients and identify targets for intervention [7], thus allowing for the customization of care around patients' goals, treatment optimization, and monitoring of disease activity during therapy [8]. PROs are increasingly becoming an outcome parameter in clinical studies as well as in health-care management and reimbursement [8]. General health questionnaires have limited utility as they are unable to reliably identify problems experienced by dermatologic patients [9].…”

Section: Introductionmentioning

confidence: 99%

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Patient-Reported Outcomes in Onychomycosis: A Review of Psychometrically Evaluated Instruments in Assessing Treatment Effectiveness

Wang

Wiznia

Rieder

2017

Skin Appendage Disord

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Purpose: Onychomycosis is the most common nail disorder and causes morbidity and impaired quality of life (QOL). Patient-reported outcomes (PRO) are patients' assessment of their health status or treatment response. PROs help assess what is most bothersome to patients to identify targets for intervention. We sought to review the PRO instruments currently used to assess QOL and treatment response in onychomycosis patients. Procedures: A systematic review was performed by searching PubMed, Embase, CINAHL, and PsycINFO databases through December 31, 2016, to identify all English language literature on onychomycosis, PRO, and QOL. Results: Currently, 5 validated PRO instruments exist specifically for onychomycosis. Oral therapies were most extensively studied using PRO instruments. QOL data generally correlated with clinical change, although patients sometimes reported improvement without any clinically significant nail clearance. The only psychometrically validated PRO instrument used to evaluate treatment response is the OnyCOE-t™. Conclusions: Clinicians may underestimate the impact of onychomycosis on patients. With recent initiatives from health-care management organizations to improve patient experience and the recent approval of expensive and nonsuperior topical antifungal medications, PROs will be increasingly important in onychomycosis to assess patient priorities and optimize treatment. Future research should evaluate these instruments in special populations and fingernail disease.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Patient-Reported Outcomes in Onychomycosis: A Review of Psychometrically Evaluated Instruments in Assessing Treatment Effectiveness

Wang

Wiznia

Rieder

2017

Skin Appendage Disord

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“…Salek et al 9 suggested that improving QoL is becoming an explicit goal of healthcare in dermatology consultations. Van Cranenburgh et al 7 identified why HRQoL assessment is relevant for dermatologic practice and which patients would benefit most from routine HRQoL assessment. Aawar et al 10 suggested that using a patient s QoL information can lead to optimized treatment decision-making, and be used to prioritize problems, facilitate communication, screen for potential risks, identify preferences and monitor response to treatment.…”

Section: Discussionmentioning

confidence: 99%

“…Description of the 20 items suggested by the 13 participants Appendix 1 Quotes from participants illustrating each concept Table 1. The 20 descriptors, given in five categories, of the 108 items mentioned by the 13 participants (median number of items mentioned per participant = 8, range [4][5][6][7][8][9][10][11][12][13][14][15].…”

Section: Discussionmentioning

confidence: 99%

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Why quality of life measurement is important in dermatology clinical practice

Finlay

Salek

Abeni

et al. 2016

Acad Dermatol Venereol

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The aim of this study was to describe the many ways in which quality of life (QoL) measurement may potentially be advantageous in routine clinical dermatology practice. Thirteen members of the EADV Task Force on Quality of Life, eight dermatologists, three health psychologists, one epidemiologist and one pharmacoepidemiologist, independently listed all of the ways they thought this may be advantageous. 108 different way of using QoL information in clinical practice were suggested (median per participant=8, range=4-15), and were classified into 20 descriptive groups. These were sorted into five categories: Inform clinical decisions, Clinician-patient communication, Awareness of skin disease burden, Informing the consultation and Clinical service administration. The wide range of potential benefits identified may encourage clinicians to use these measures but also highlights many areas requiring evidence to establish the true value of routine use of QoL measures.

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