Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version

Limperg, Perrine F.; Haverman, Lotte; Oers, Hedy A. van; Rossum, Marion A J van; Maurice‐Stam, Heleen; Grootenhuis, Martha A.

doi:10.1186/1477-7525-12-9

Cited by 57 publications

(57 citation statements)

References 44 publications

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“…PedsQL scale scores range 0-100 with higher scores indicating better HRQoL. a Weighted norm data; country-specific norm data, adjusted for sex and age at evaluation [25][26][27]. b Results according to analysis of variance treatment group, attained age and gender.…”

Section: Discussionmentioning

confidence: 99%

“…In this study the total scale score (0-100) and psychosocial scale score (0-100) were used; higher scores expressing better self-reported HRQoL. We used country-specific weighted norm values, adjusted for sex and attained age [25][26][27], except for the subgroup of P18 year olds from London. Since norm values of <18 year olds from the Netherlands and United Kingdom were comparable, we decided to use the Dutch P18 years norm values for the P18 years London subgroup, adjusted for sex and age distribution in the P18 years London subgroup.…”

Section: Hrqolmentioning

confidence: 99%

“…One-sample t-tests were used to test whether HRQoL of survivors differed from the weighted norm [25][26][27]. Analysis of variance by group, age and sex were performed to test differences between treatment groups.…”

Section: Hrqolmentioning

confidence: 99%

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Section: Discussionmentioning

confidence: 99%

Section: Hrqolmentioning

confidence: 99%

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“…The quality of life related to health has also been gaining increasing attention in the pediatric population. The significance of these aspects has led to the development of instruments for assessing a child's quality of life (Limperg, et al, 2014). Some authors state that parents' reports on the quality of their children's lives may differ from the children's perception (Nair, et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Assessment of the quality of life in children and adolescents with asthma

2018

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Introduction: Asthma is a global health problem that negatively affects various aspects of the quality of a person's life. The aim of the study was to examine the quality of life in children and adolescents with asthma and the correlation between the degree of asthma control and the quality of life. Methods: The cross-sectional study included 100 children and adolescents with asthma over a six-month period in 2015. The study used: Standardized Pediatric Asthma Quality of Life Questionnaire (PAQLQ(S)) for the assessment quality of life and the questionnaires for the assessment of asthma control for two age groups: Asthma Control Test (ACT) for adolescents and Childhood Asthma Control Test (C-ACT). Results: 62 boys and 38 girls aged 7−17, whose average age was 11.2 (s = 2.7) years were included in the study. The overall PAQLQ(S) score ranged between 3.30 and 7.00 with an average mean value of 5.95. The findings have showed that most children with asthma estimated their overall PAQLQ(S) on the positive end of the scale. The children reported more impairment in the domain of 'Emotion' ( = 5.84) than in 'Activities' and 'Symptoms'. The percentage of adolescents in the category of poor control (12.5 %) was significantly lower than in the group of children (25.0 %). In both groups of children, the sub-scale 'Symptoms' was in highest correlation with the degree of asthma control (r = 0.915, p < 0.01). Discussion and conclusion: In this study the children and adolescents with asthma showed an overall good quality of life. Control of asthma symptoms in children and adolescents positively influenced their quality of life. IZVLEČEKUvod: Astma je globalni zdravstveni problem, ki negativno vpliva na različne vidike kakovosti življenja. Cilj raziskave je bil preučiti kakovost življenja pri otrocih in mladostnikih z astmo ter povezavo med stopnjo nadzora astme in kakovostjo življenja. Metode: Presečna študija je vključevala 100 otrok in mladostnikov z astmo v šestmesečnem obdobju leta 2015. V raziskavi so bili uporabljeni: standardiziran vprašalnik o kakovosti življenja otrok z astmo (PAQLQ(S)) za oceno kakovosti življenja in vprašalnika za oceno krmiljenja astme za dve starostni skupini: test za kontrolo astme za mladostnike (ACT) in test za kontrolo astme pri otrocih (C-ACT). Rezultati: Vključenih je bilo 62 fantov in 38 deklic, starih od 7 do 17 let, katerih povprečna starost je bila 11,2 (s = 2,7) leta. Skupni rezultati v oceni PAQLQ(S) so se gibali med 3,30 in 7,00 s povprečno vrednostjo 5,95. Ugotovitve kažejo, da je večina otrok z astmo umestila svojo splošno PAQLQ(S) proti pozitivnemu koncu lestvice. Otroci so poročali o večji oslabelosti na področju »Čustva« ( = 5,84) kot na področjih »Dejavnosti« in »Simptomi«. Odstotek mladostnikov, ki spadajo v kategorijo slabega nadzora (12,5 %), je bil znatno nižji kot v skupini otrok (25,0 %). V obeh skupinah otrok je bila lestvica »Simptomi« v največji povezavi s stopnjo nadzora astme (r = 0,915, p < 0,01). Diskusija in zaključek: V raziskavi so otroci in mladostniki z a...

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“…Each answer is reversed scored and rescaled to a 0‐100 scale so that higher scores indicate better reported physical functioning. The validity and reliability of the PedsQL_YA scales are good . Cronbach's alpha of the physical health scale in our sample was 0.86.…”

Section: Methodsmentioning

confidence: 59%

Professional functioning of young adults with congenital coagulation disorders in the Netherlands

et al. 2019

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Introduction and AimSuboptimal health‐related quality of life and lowered employment rates found in a previous study in young adults (YA) with congenital coagulation disorders (CCD) in the Netherlands underline the need for more insight into professional functioning of YA with CCD and into determinants of professional functioning.MethodsYoung adults (18‐30 years) with CCD participated in a cross‐sectional study. Professional functioning was assessed with the Work Productivity and Activity Impairment questionnaire (WPAI). Potential determinants were assessed with the Course of Life Questionnaire (CoLQ), Pediatric Quality of Life Inventory Young Adult version (PedsQL_YA), Illness Cognition Questionnaire (ICQ) and Haemophilia Activities List (HAL). Logistic regression analyses were performed in the complete sample of YA with CCD, and in YA men with haemophilia separately, to examine determinants of WPAI outcomes.ResultsNinety‐four YA (77 men; mean age 24.1 years, SD 3.5 and 17 women; mean age 24.5 years, SD 3.8) with CCD (74% haemophilia A/B) participated. 74.5% of YA were paid employed for on average 30 hours per week. Of these, more than a quarter reported work impairment. Older age and a non‐severe type of haemophilia (in the sample of YA men with haemophilia) were associated with successful (paid) employment. No variables were associated with professional functioning (expressed as Presenteeism and Overall work impairment) in patients with CCD or haemophilia.ConclusionThree‐quarters of YA with CCD were successful in finding paid employment. Though absenteeism was low, YA with paid employment needs attention as a considerable part experienced work impairment.

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Health related quality of life in Dutch young adults: psychometric properties of the PedsQL generic core scales young adult version

Cited by 57 publications

References 44 publications

Adverse events of local treatment in long-term head and neck rhabdomyosarcoma survivors after external beam radiotherapy or AMORE treatment

Adverse events of local treatment in long-term head and neck rhabdomyosarcoma survivors after external beam radiotherapy or AMORE treatment

Assessment of the quality of life in children and adolescents with asthma

Professional functioning of young adults with congenital coagulation disorders in the Netherlands

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