Health-related quality of life in haematopoietic stem cell transplant survivors: a qualitative study on the role of psychosocial variables and response shifts

Beeken, Rebecca J; Eiser, Christine; Dalley, Christopher

doi:10.1007/s11136-010-9737-y

Cited by 35 publications

(21 citation statements)

References 34 publications

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“…The SCT survivors reported gratifying outcomes such as changed perspectives and positive self‐perception, which are expressions previously reported after childhood cancer . Optimism, changing expectations, goal setting, and social support are some of the psychological and social antecedents and mechanisms that may be helpful to the adjustment to changing health and learning to live with current difficulties posttransplant . In our study, we found that the SCT survivors live rather ordinary lives as measured by socio‐demographic factors despite the intense treatment they have been through.…”

Section: Discussionsupporting

confidence: 69%

Self‐reported quality of life in long‐term survivors of childhood lymphoblastic malignancy treated with hematopoietic stem cell transplantation versus conventional therapy

Sundberg

Wettergren

Frisk

et al. 2013

Pediatric Blood & Cancer

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Section: Discussionsupporting

confidence: 69%

Self‐reported quality of life in long‐term survivors of childhood lymphoblastic malignancy treated with hematopoietic stem cell transplantation versus conventional therapy

Sundberg

Wettergren

Frisk

et al. 2013

Pediatric Blood & Cancer

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“…However, the effects of personality characteristics on response shift in HRQOL have not been fully investigated. One study found that cancer patients with pessimistic traits may report less improvement in HRQOL than patients with optimistic traits over time despite similar change in underlying health status [124]. Another study using advanced psychometric methods found that cancer patients were susceptible to response shift in general health assessment related to optimism [125].…”

Section: Discussionmentioning

confidence: 99%

Does personality affect health-related quality of life? A systematic review

et al. 2017

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BackgroundHealth-related quality of life (HRQOL) is increasingly measured as an outcome for clinical and health services research. However, relatively little is known about how non-health factors affect HRQOL. Personality is a potentially important factor, yet evidence regarding the effects of personality on HRQOL measures is unclear.MethodsThis systematic review examined the relationships among aspects of personality and HRQOL. Eligible studies were identified from Medline and PsycINFO. The review included 76 English-language studies with HRQOL as a primary outcome and that assessed personality from the psychological perspective. Individuals with various health states, including ill (e.g., cancer, cardiovascular disorders), aging, and healthy, were included in this review study.ResultsSome personality characteristics were consistently related to psychosocial aspects more often than physical aspects of HRQOL. Personality characteristics, especially neuroticism, mastery, optimism, and sense of coherence were most likely to be associated with psychosocial HRQOL. Personality explained varying proportions of variance in different domains of HRQOL. The range of variance explained in psychosocial HRQOL was 0 to 45% and the range of explained variance in physical HRQOL was 0 to 39%.ConclusionsPersonality characteristics are related to HRQOL. Systematic collection and analysis of personality data alongside HRQOL measures may be helpful in medical research, clinical practice, and health policy evaluation.

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“…Satisfaction with social support is a wellestablished protective factor and has been linked to lower levels of distress. 28,29 Thus it is important for the staff to educate patient's loved ones and caregivers about this aspect of recovery and to help them maintain levels of adequate support throughout the SCT treatment and recovery process.…”

Section: Discussionmentioning

confidence: 99%

Comparison of early quality of life outcomes in autologous and allogeneic transplant patients

García

Mumby

Thilges

et al. 2012

Bone Marrow Transplant

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The Functional Assessment of Cancer Therapy-Bone Marrow Transplant measures quality of life (QOL) in SCT patients. Prior reports found mixed results regarding QOL differences among autologous and allogeneic SCT patients. In addition, there is a paucity of literature examining differences in QOL patterns over time between autologous and allogeneic patients. The present study examines differences in QOL between patients free of clinical depression undergoing autologous (n ¼ 41) and allogeneic (n ¼ 64) SCT during early stages of treatment. Despite clinical differences, autologous and allogeneic patients demonstrated similar changes in QOL. The exception was the Functional subscale which indicated worse QOL for allogeneic patients at discharge (F test ¼ 4.61, df ¼ 1, Po0.05); allogeneic patients (Mean ¼ 13.06, s.d. ¼ 5.36) indicated they were less able to function at work and were less accepting of their illness than autologous patients (Mean ¼ 16.02, s.d. ¼ 6.73). There was a significant main effect for time on nearly all QOL subscales (Po0.05) demonstrating decline during treatment and return to baseline by discharge; only the Social Well-Being scale did not significantly change over time. These results help to understand patients' response to SCT in the earliest stages and ultimately help identify patients at risk who could benefit from therapeutic interventions.

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Health-related quality of life in haematopoietic stem cell transplant survivors: a qualitative study on the role of psychosocial variables and response shifts

Cited by 35 publications

References 34 publications

Self‐reported quality of life in long‐term survivors of childhood lymphoblastic malignancy treated with hematopoietic stem cell transplantation versus conventional therapy

Self‐reported quality of life in long‐term survivors of childhood lymphoblastic malignancy treated with hematopoietic stem cell transplantation versus conventional therapy

Does personality affect health-related quality of life? A systematic review

Comparison of early quality of life outcomes in autologous and allogeneic transplant patients

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