Health‐related quality of life in people with severe aphasia

Abstract

This is the unspecified version of the paper.This version of the publication may differ from the final published version. Keywords: health-related quality of life; aphasia; proxy ratings; stroke outcome. Permanent 2 AbstractBackground: Health-related quality of life (HRQL) measures are increasingly used to help us understand

Choral singing therapy following stroke or Parkinson’s disease: an exploration of participants’ experiences

“…As people with stroke and PD experiencing communication difficulties and mood problems tend to have reduced QOL [91], it is perhaps surprising that CST participants have higher self-rated QOL than a large international sample of other people with disabilities. This is consistent with large-scale studies involving healthy adult members of international choirs, who also reported higher scores on the WHOQOL-BREF than the norm [43].…”

Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting

“…For example, aphasia severely affects people's social and emotional well-being (Hilari and Byng, 2009). The focus group of PWA suggested meeting informally as a solution to social isolation.…”

Quality of life in aphasia: differences between fluent and non-fluent aphasic Augmentative and Alternative Communication users

“…In this study, aphasia is the focus, with a view to contribute to expand the knowledge in this area, due to the scarcity of studies, mainly in the literature about Speech-Language Pathology, and also due to its importance in several aspects in the life of individuals, for example, the dependence on a caretaker for daily activities, the disruption of social relations, language impairment, psycho-affective changes, such as depression, isolation, among others (1)(2)(3)(4) .…”

“…This condition can result in a negative impact on the person's life, since, besides affecting language, it may interfere in the related processes as practical life, social, affective, interactive, and interpretative relations (1,3,4) . Thus, it is of the almost importance to investigate the aspects of aphasics QOL.…”

“…In the literature, however, not many studies about aphasics QOL can be found, mainly due to difficulties on the part of the interviewers in dealing with linguistic-cognitive impairments, and also difficulties on the part of the patients in understanding and expressing themselves in a satisfactory way to convey their actual QOL (3,4,14,15) . For this reason, some authors (3,14) point out the need to adapt the QOL questionnaires to favor the participation of the aphasics, by, for example, simplifying the questions and using pictures.…”