Health-related quality of life of mothers of children with leukemia in Japan

Yamazaki, Shin; Sokejima, Shigeru; Mizoue, Tetsuya; Eboshida, Akira; Fukuhara, Shunichi

doi:10.1007/s11136-004-3288-z

Cited by 77 publications

(83 citation statements)

References 17 publications

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“…The control group showed higher scores than the present in all domains. The findings were also similar to a study involving mothers to children with leukemia and a control group in Japan, which appointed lower scores on all SF-36 domains than in the control group, with statistically significant results in 5 out of 8 domains: physical role functioning, general perceived health, vitality, emotional role functioning and mental health (20) .…”

Section: Discussionsupporting

confidence: 86%

Taking care of children with cancer: evaluation of the caregivers' burden and quality of life

Santo

Gaíva

Espinosa

et al. 2011

Rev. Latino-Am. Enfermagem

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Introduction: Cancer is a disease of high incidence among children and the patients need a caregiver during the treatment. Aim: to evaluate: the burden of care and quality of life (QOL) of caregivers of children/adolescents with cancer during chemotherapy treatment and relate them to each other and to the socio-demographic data and the presence and degree of signs of depression, Method: It is a cross-sectional study, with 32 caregivers. Socio-demographic, care burden (Caregiver Burden Scale) and QOL data (SF-36) were collected. Results: 87.5% of the caregivers were mothers, total score of burden 1.92±0.09 and most compromised score of the SF-36: emotional aspects (59.3), vitality (60.0), pain (60.9). There was a significant correlation between burden and mental health and vitality. Conclusion: Caregivers presented care burden and compromised aspects of QOL and possibly need interventions that will promote social and emotional wellbeing to reduce the burden, improve the quality of life QOL and consequently deliver better care. Cuidando del niño con cáncer: evaluación de la sobrecarga y calidad de vida de los cuidadoresEl cáncer es una enfermedad de alta incidencia entre niños, los que necesitan de un cuidador durante el tratamiento. Se tuvo por objetivo evaluar la sobrecarga de cuidado y la calidad de vida (CV) de los cuidadores de niños/adolescentes portadores de cáncer durante el tratamiento quimioterápico, y relacionarlas entre sí y a los datos sociodemográficos, y a la presencia y grado de señales de depresión. Se trata de un estudio transversal, con 32 cuidadores. Fueron recolectados datos sociodemográficos, sobrecarga de cuidado (Caregiver Burden Scale) y de CV a través del SF-36. El 87,5% de los cuidadores eran madres, la edad promedio fue 35 años, el puntaje general de sobrecarga fue 1,92±0,09 y los puntajes del SF-36 más comprometidos fueron: aspectos emocionales (59,3), vitalidad (60,0) y dolor (60,9). Se encontró correlación significativa entre sobrecarga, salud mental y vitalidad. Concluimos que los cuidadores presentaron sobrecarga de cuidado y aspectos de CV comprometidos y posiblemente necesitan de intervenciones que promuevan el bienestar físico, el social y el emocional, para disminuir la sobrecarga y mejorar la CV, y así consecuentemente mejorar la asistencia.

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Section: Discussionsupporting

confidence: 86%

Taking care of children with cancer: evaluation of the caregivers' burden and quality of life

Santo

Gaíva

Espinosa

et al. 2011

Rev. Latino-Am. Enfermagem

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“…Sin embargo, en este estudio no resultaron significativas las correlaciones del tiempo de cuidado con estas variables; esto en coincidencia con Rubira et al (24,50) . Las discrepancias posiblemente se deban a que en cuidadores de niños con cáncer se ha observado esta relación con la calidad de vida y no con trastornos emocionales específicos como los que se evaluaron en el presente estudio (15,25,(57)(58)(59)(60)(61)(62) . Las áreas que más se han afectado en la vida de los cuidadores de la muestra evaluada coinciden con el hecho de que la enfermedad del paciente impacta en la vida familiar, principalmente al aumentar las demandas del cuidador se alteran sus tareas domésticas y la relación que tiene con los otros hijos y con la pareja, lo cual ocasiona redistribución de roles, dificultades en la comunicación, alteraciones en las relaciones sexuales, distanciamientos e incluso infidelidades.…”

Section: Discussionunclassified

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Pardo¹,

Cárdenas²,

Venegas³

2015

Psicooncología

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ResumenEl propósito del estudio fue identificar las variables psicológicas y las características del cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de niños con cáncer, en un hospital de la ciudad de México. La muestra no probabilística constó de 100 participantes, quienes contestaron una batería integrada por la encuesta de salud para el CPI, la escala de carga del cuidador de Zarit, los inventarios de ansiedad y depresión de Beck, la escala de apoyo familiar para CPI y la escala de modos de afrontamiento al estrés de Lazarus y Folkman. Los resultados confirmaron que las mujeres (en la mayoría de los casos la madre del paciente) actúan como CPI de niños con cáncer. Las variables predictoras de la carga en el modelo de regresión múltiple por pasos fueron la depresión (R 2 =0,228), el número de áreas afectadas en la vida del cuidador (R 2 =0,319) y la ansiedad (R 2 =0,348). En total las tres variables explicaron el 34% de la varianza. Mientras que el estilo de afrontamiento, el apoyo familiar, el tiempo de cuidado del paciente, las horas diarias de cuidado de éste y el número de actividades que realiza no resultaron variables relevantes en la predicción de la carga. Los hallazgos podrían ser útiles para diseñar intervenciones que promuevan el bienestar físico, social y emocional de esta población, previniendo que los cuidadores se conviertan en pacientes.Palabras clave: Niños con cáncer, cuidadores, carga, ansiedad y depresión. AbstractThe purpose of the study was to identify the psychological characteristics and care variables that predict the onset of primary informal caregivers burden (CPI) of children with cancer, in a hospital in Mexico City. The nonrandom sample consisted of 100 participants, who answered an integrated battery conformed by a health interview for the CPI, the load scale for the Zarit caregiver, the anxiety and depression of Beck inventory, the family support for the CPI scale and the scale modes of coping with stress by Lazarus and Folkman. The results confirmed that women react as CPI to children with cancer, and in most cases the patient's mother. The variables of burden model stepwise multiple regressions were depression (R 2 =0.228), the number of affected areas in the caregiver's life (R 2 =0.319) and anxiety (R 2 =0.348). In all the three variables explained 34% of variance. While coping style, family support, time to patient care, daily care hours and the number of activities carried out were not significant variables in predicting overload. The findings of this study could be useful for designing interventions that promote physical, social and emotional wellbeing of this population, preventing the patient from becoming caregivers.

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“…leukemia and cerebral palsy. 21,29 Limitations in daily activities (e.g. working or studying) could be caused by frequent hospital visits, acute painful crises and all other tasks associated with the responsibility of caring for a chronically ill child.…”

Section: Discussionmentioning

confidence: 99%

“…Studies in caregivers of children with various chronic illnesses have shown that such caregivers report an impaired QoL compared to that of caregivers of healthy children. [18][19][20][21][22] We hypothesized that caregivers of children with SCD have a lower QoL compared to that of the healthy Dutch female population and caregivers of healthy children with the same SES.…”

Section: Introductionmentioning

confidence: 99%

Quality of life of female caregivers of children with sickle cell disease: a survey

Tweel¹,

Hatzmann²,

Ensink³

et al. 2008

Haematologica

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Caring for a child with sickle cell disease poses extra demands on parents, both practically and psychologically, which may influence their quality of life. Since families of children with sickle cell disease in the Netherlands usually belong to immigrant communities with a low socio-economic status, there may be an additional strain on caregivers. The aim of the present study was to evaluate the quality of life of caregivers of children with sickle cell disease. The quality of life of female caregivers of sickle cell disease patients, measured with the TNO-AZL Adult Quality of Life questionnaire, was compared to the norm data of healthy Dutch females (n=700) and female caregivers of healthy children with the same socio-economic status and ethnic background (socio-economic status control group). Groups were compared by the Mann-Whitney U test. Point estimates and 95% confidence intervals of the median difference are presented. The results of questionnaires of 54 caregivers of children with sickle cell disease and 28 caregivers of a control group of the same socio-economic status were analyzed. Caregivers of patients with sickle cell disease had a significantly lower quality of life on all subscales compared to the Dutch norm population. Compared to the control group of the same socio-economic status, the quality of life of caregivers of patients with sickle cell disease was significantly lower on the subscales depressive moods, daily activities and vitality. In this first study reporting on the quality of life of caregivers of children with sickle cell disease, we demonstrate a reduced quality of life in these caregivers compared to the healthy Dutch female population and caregivers of healthy children with the same socio-economic status.Key words: sickle cell disease, quality of life, caregivers. Citation

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Health-related quality of life of mothers of children with leukemia in Japan

Cited by 77 publications

References 17 publications

Taking care of children with cancer: evaluation of the caregivers' burden and quality of life

Taking care of children with cancer: evaluation of the caregivers' burden and quality of life

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Quality of life of female caregivers of children with sickle cell disease: a survey

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