Health-related quality of life of children with epilepsy in Hong Kong: How does it compare with that of youth with epilepsy in Canada?

Yam, Winnie K.L.; Ronen, Gabriel M.; Cherk, Sharon W.W.; Rosenbaum, Peter; Chan, Kathy; Streiner, David L.; Cheng, Sally W.W.; Fung, Cheuk Wing; Ho, Jackson C.; Kwong, Karen L.; C.K., Louis; K.H., David; Tsui, Kwing Wan; Wong, Virginia; Wong, Theresa Y.L.

doi:10.1016/j.yebeh.2007.11.007

Cited by 17 publications

(15 citation statements)

References 40 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A possible explanation is that cultural and socioeconomical discrepancies plus cross-cultural differences in HRQOL may include inequalities in healthcare systems, attitudes about treatment (such as hospitalization rates, utilization of emergency care, presence at specialist and private clinics, qualification with antiepileptic medication, use of alternative therapies), and socioeconomical variables (Yam et al, 2008).…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Health-Related Quality of Life and Related Factors in Children and Adolescents With Epilepsy in Iran

Momeni

Khanghah

Bidabadi

et al. 2015

Journal of Neuroscience Nursing

View full text Add to dashboard Cite

The effects of epilepsy may disturb the ability of the child and family to function and has detrimental effects on health-related quality of life (HRQOL). We determined HRQOL and related factors in children and adolescents with epilepsy in Iran. This cross-sectional study was performed in a private neurology pediatric clinic in Guilan Province (North of Iran). We evaluated 108 children and adolescents with epilepsy. Data were collected by interview with parents and review of medical records. Generic and specific HRQOL was evaluated by Child Health Questionnaire and QOL in Childhood Epilepsy Questionnaire, respectively. The mean of overall generic HRQOL score was 71.05 ± 11.31. The lowest score was related to parental impact: emotional (52.59 ± 15.49). The average total specific HRQOL score was 71.95 ± 11.16. The lowest score dedicated to general health (51.21 ± 18.25). In multivariate regression analysis, duration of epilepsy (p < .016) was independently associated with generic HRQOL scores. Variables were independently associated with specific HRQOL scores including gender (p < .003), duration of epilepsy (p < .011), and family history of epilepsy (p < .005). We found that epilepsy duration was the strongest predictor of both generic and specific HRQOL in children and adolescents with epilepsy. This will be useful for clinicians in epilepsy management, which will enhance HRQOL.

show abstract

Section: Discussionmentioning

confidence: 99%

“…There is also much attention in comparing HRQOL between individuals with the same medical condition in diverse countries/cultures (Yam et al, 2008). On the other hand, epilepsy can be both a medical diagnosis and a social stigma, particularly in developing countries (Ronen et al, 2010;Wu, Ding, Wang, & Hong, 2010).…”

mentioning

confidence: 99%

Health-Related Quality of Life and Related Factors in Children and Adolescents With Epilepsy in Iran

Momeni

Khanghah

Bidabadi

et al. 2015

Journal of Neuroscience Nursing

View full text Add to dashboard Cite

show abstract

“…A previous local study found that children in Hong Kong reported lower QoL under the same physical conditions (Yam et al, 2008). Societal and cultural attitudes play an important role in determining QoL.…”

Section: Introductionmentioning

confidence: 97%

Psychometric Properties of the Chinese Version of the Kid-KINDL^R Questionnaire for Measuring the Health-related Quality of Life of School-aged Children

Chan

2014

Hong Kong Journal of Occupational Therapy

View full text Add to dashboard Cite

KEYWORDS Child HealthQuestionnaire; Chinese Version of the Kid-KINDL R questionnaire; psychometric characteristics; quality of life Summary Objective/Background: The reliability and validity of the Chinese version of the Kid-KINDL R questionnaire were examined with school-aged children in Hong Kong. Methods: A total of 112 healthy children were selected by convenience sampling from two primary schools and 30 children with global developmental delay were selected from an outpatient occupational therapy department of a convalescent hospital. The Kid-KINDL R questionnaire was translated using independent forward and backward translation. The content validity of the translated instrument was evaluated by four experts. Internal consistency, factor analysis, and construct validity were examined in the healthy children group, whereas known-group comparison was performed in the group with global developmental delay. Results: The significance value of the ShapiroeWilk test was greater than 0.05, indicating that the sample displayed a normal distribution. The total score had good internal consistency (Cronbach's alpha Z .77); however, the consistency of the subscales varied (Cronbach's alpha ranged from .47 to .70). The children and parent questionnaires did not load onto the six factors originally hypothesized. Instead, seven factors were generated. Evidence supporting the questionnaire's validity included a lack of age and sex bias and positive known-group differentiation (Wilks' lambda Z 0.906, p Z .035). Conclusion: The Chinese version of the Kid-KINDL R questionnaire exhibited good psychometric properties, but the internal consistency of the translated instrument needs further improvement. It is recommended that practitioners focus on the Kid-KINDL R total score

show abstract

“…Finally, two studies analyzed HRQOL in epilepsy in cerebral palsy and reported decreased levels of functioning and wellbeing in different domains (Wake et al, 2003;Wanigasinghe et al 2010). Finally, four studies reported that there was acceptable agreement between children/adolescents and parents, but parents tended to underestimate the HRQOL of their children (Miller et al, 2003;Van Empelen et al 2005;Yam et al, 2008;Verhey et al, 2009). The level of agreement between child self-report's and parent proxy was lower on the more abstract domains of HRQOL (feeling, secrecy, concerns, etc.)…”

Section: Health-related Quality Of Life In Children and Adolescents Wmentioning

confidence: 99%

“…The level of agreement between child self-report's and parent proxy was lower on the more abstract domains of HRQOL (feeling, secrecy, concerns, etc.) (Van Empelen et al 2005;Yam et al, 2008).…”

Section: Health-related Quality Of Life In Children and Adolescents Wmentioning

confidence: 99%

Health-Related Quality of Life in Children and Adolescents with Epilepsy: A Systematic Review

Stevanović¹,

Tadić²,

Novakovic³

2011

Epilepsy in Children - Clinical and Social Aspects

View full text Add to dashboard Cite

Health-related quality of life of children with epilepsy in Hong Kong: How does it compare with that of youth with epilepsy in Canada?

Cited by 17 publications

References 40 publications

Health-Related Quality of Life and Related Factors in Children and Adolescents With Epilepsy in Iran

Health-Related Quality of Life and Related Factors in Children and Adolescents With Epilepsy in Iran

Psychometric Properties of the Chinese Version of the Kid-KINDL^R Questionnaire for Measuring the Health-related Quality of Life of School-aged Children

Health-Related Quality of Life in Children and Adolescents with Epilepsy: A Systematic Review

Contact Info

Product

Resources

About

Health-related quality of life of children with epilepsy in Hong Kong: How does it compare with that of youth with epilepsy in Canada?

Cited by 17 publications

References 40 publications

Health-Related Quality of Life and Related Factors in Children and Adolescents With Epilepsy in Iran

Health-Related Quality of Life and Related Factors in Children and Adolescents With Epilepsy in Iran

Psychometric Properties of the Chinese Version of the Kid-KINDLR Questionnaire for Measuring the Health-related Quality of Life of School-aged Children

Health-Related Quality of Life in Children and Adolescents with Epilepsy: A Systematic Review

Contact Info

Product

Resources

About

Psychometric Properties of the Chinese Version of the Kid-KINDL^R Questionnaire for Measuring the Health-related Quality of Life of School-aged Children