Health Status, Utilization Patterns, and Outcomes of Persons With Intellectual Disabilities: Review of the Literature

Hayden, Mary F.; Kim, Shannon H.; DePaepe, Paris

doi:10.1352/0047-6765(2005)43[175:hsupao]2.0.co;2

Cited by 38 publications

(37 citation statements)

References 4 publications

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“…The existing research suggests that, with few exceptions, the prevalences of chronic health conditions (including cardiovascular disease, cancer, lung conditions, and diabetes) in individuals with mental retardation are similar to those in the general population. 3,[7][8][9] Understanding the risk factors for secondary conditions and strategies for their prevention is important to people with disabilities, rehabilitation service providers, and public health agencies. A study of secondary conditions among adults with developmental disabilities in Montana reported limitations due to communication problems, poor physical fitness, low frustration tolerance, and weight problems.…”

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confidence: 99%

“…[10][11][12][13] Research has also demonstrated that many primary care providers are unprepared or otherwise reluctant to provide routine or emergency medical and dental care to people with developmental disabilities. 8,12,14 Many providers refuse to serve people with Medicaid or limit the number of people served under the Medicaid program, a source of coverage for many people with developmental disabilities. Research has shown that individuals with mental retardation have four to six times the preventable mortality of individuals in the general population, 15,16 suggesting that appropriate medical care may alter the health trajectories of individuals with mental retardation.…”

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Health Disparities among Adults with Developmental Disabilities, Adults with other Disabilities, and Adults Not Reporting Disability in North Carolina

2004

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Objectives. The purposes of this study were ( 1) to identify disparities between adults with developmental disabilities and non-disabled adults in health and medical care, and ( 2) to compare this pattern of disparities to the pattern of disparities between adults with other disabilities and adults without disabilities. Methods. The authors compared data on health status, health risk behaviors, chronic health conditions, and utilization of medical care across three groups of adults: No Disability, Disability, and Developmental Disability. Data sources were the 2001 North Carolina Behavioral Risk Factor Surveillance System and the North Carolina National Core Indicators survey. Results. Adults with developmental disabilities were more likely to lead sedentary lifestyles and seven times as likely to report inadequate emotional support, compared with adults without disabilities. Adults with disabilities and developmental disabilities were significantly more likely to report being in fair or poor health than adults without disabilities. Similar rates of tobacco use and overweight/obesity were reported. Adults with developmental disabilities had a similar or greater risk of having four of five chronic health conditions compared with non-disabled adults. Significant medical care utilization disparities were found for breast and cervical cancer screening as well as for oral health care. Adults with developmental disabilities presented a unique risk for inadequate emotional support and low utilization of breast and cervical cancer screenings. Conclusions. Significant disparities in health and medical care utilization were found for adults with developmental disabilities relative to non-disabled adults. The National Core Indicators protocol offers a sound methodology to gather much-needed surveillance information on the health status, health risk behaviors, and medical care utilization of adults with developmental disabilities. Health promotion efforts must be specifically designed for this population.

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Health Disparities among Adults with Developmental Disabilities, Adults with other Disabilities, and Adults Not Reporting Disability in North Carolina

2004

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“…As a group, adults with an intellectual disability experience substantially poorer health outcomes than adults without an intellectual disability (Anderson et al, 2013;Krahn & Fox, 2014;Krahn et al, 2010). Compared with peers of a similar age, they are more likely to live with complex health conditions (Krahn, Hammond, & Turner, 2006), have poorly managed chronic conditions such as epilepsy, hypertension, and obesity (e.g., Balogh, Brownell, Ouellette-Kuntz, & Colantonio, 2010;Bowley & Kerr, 2000;Janicki et al, 2002;McDermott et al, 2005), have limited access to appropriate health-care and health promotion programs (Hayden, Kim, & DePaepe, 2005), receive breast cancer and other health screenings at lower rates than those among the general population (Parish & Saville, 2006), have undetected vision and hearing loss (Woodhouse, Adler, & Duignan, 2004), and have mental health problems and potential overuse of psychotropic medications (Bartlo & Klein, 2011;Emerson, 2011;Holden & Gitlesen, 2004;Lewis, Lewis, Leake, King, & Lindemann, 2002).…”

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confidence: 99%

Health Surveillance and People with Intellectual Disabilities

Fox

Bonardi

Krahn

2015

Health Disparities and Intellectual Disabilities

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“…28 In addition, given the greater frequency of health needs in this vulnerable population, good accessibility to primary health care and to complementary secondary and tertiary medical attention is needed. [29][30][31][32] In Mexico, for example, access to medical insurance (private or social security health care) is not available for people with intellectual disability.…”

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confidence: 99%

A best practice in education and support services for independent living of intellectually disabled youth and adults in Mexico

Katz¹,

Rangel-Eudave²,

Allen‐Leigh³

et al. 2008

Salud pública Méx

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This article describes a best practice in the field of intellectual disability, a program for independent living offered by the Center for Integral Training and Development (CADI per its abbreviation in Spanish) for people with intellectual disability in Mexico. A detailed description of an effective program that fosters autonomy, social inclusion and high quality of life in people with intellectual disability is presented. The program encompasses four areas: a) a therapeutic academic area that teaches applied living skills; b) development of social skills; c) development of vocational skills, and d) skills for independent living. The program is divided into three levels: a) initiation to independent living, where clients develop basic abilities for autonomy, b) community integration and social independence, which provides clients with the skills necessary for social inclusion and economic independence, and c) practical and psychological support, which offers counseling for resolving psychological issues and enables subjects to maintain their autonomy.Key words: intellectual disability; independent living; best practice; Mexico Katz G, Rangel-Eudave G, Allen-Leigh B, Lazcano-Ponce E. La mejor práctica en servicios educativos y de apoyo para la vida independiente para jóvenes y adultos con discapacidad intelectual en México. Salud Publica Mex 2008;50 supl 2:S194-S204. ResumenEste artículo describe una "mejor práctica" en la capacitación para el logro de vida independiente, inclusión social y alta calidad de vida en personas con discapacidad intelectual. Se describe en detalle del programa ofrecido por el Centro de Capacitación y Desarrollo Integral (CADI), en México. Dicho programa tiene cuatro áreas: 1) área académico-terapéutica para el desarrollo de destrezas prácticas para la vida independiente; 2) área para el desarrollo personal y de habilidades sociales; 3) área para el desarrollo de habilidades laborales; y 4) área para el desarrollo de habilidades aplicadas a la vida independiente. El programa se divide en tres niveles: a) iniciación a la vida independiente, donde se desarrollan las habilidades básicas necesarias para el logro de su autonomía; b) integración comunitaria e independencia social que provee a los clientes las destrezas necesarias para su inclusión social e independencia económica; c) apoyo práctico y psicológico que ofrece asesoría para resolver problemas psicológicos y el logro de su autonomía.Palabras clave: discapacidad intelectual; vida independiente; mejor práctica; México T his article provides a description of a best practice in the field of intellectual disability. This best practice consists of an education and support program oriented towards facilitating independent living by adolescents and adults with mild to moderate intellectual disability in a middle-income country, where services and public policy related to this issue are sorely lacking. The text examines the specific methods through which optimal outcomes (high quality services for people with intellectual disabili...

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Health Status, Utilization Patterns, and Outcomes of Persons With Intellectual Disabilities: Review of the Literature

Cited by 38 publications

References 4 publications

Health Disparities among Adults with Developmental Disabilities, Adults with other Disabilities, and Adults Not Reporting Disability in North Carolina

Health Disparities among Adults with Developmental Disabilities, Adults with other Disabilities, and Adults Not Reporting Disability in North Carolina

Health Surveillance and People with Intellectual Disabilities

A best practice in education and support services for independent living of intellectually disabled youth and adults in Mexico

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