Hearing-related quality of life, developmental outcomes and performance in children and young adults with unilateral conductive hearing loss due to aural atresia

Smit, A.L.; Burgers, Y.R.W.; Veye, Henriëtte F. N. Swanenburg de; Stegeman, Inge; Breugem, Corstiaan C.

doi:10.1016/j.ijporl.2020.110590

Cited by 14 publications

(21 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…It also found that HRQOL was more limited in children with bilateral hearing loss than those with unilateral hearing loss. It has been stressed in other studies that children having cochlear implants were found to have similar HRQOL to healthy children [51][52][53][54][55]. Changes in hearing threshold and tinnitus severity after stapes surgery have also been found to be important to quality of life in adult patients [56].…”

Section: Discussionmentioning

confidence: 96%

“…then the local symptoms reported include: changes in breathing pattern to mouth breathing (adenoid faces/long face syndrome), malocclusion, altered voice timbre, night snoring, and night apnea. Furthermore, an enlarged adenoid may impair the patency of the Eustachian tube which, inter alia, can lead to exudative otitis media, that may lead to hearing loss [49][50][51][52][53][54][55]. Symptoms of tonsil hypertrophy are snoring, obstructive sleep apnea syndrome, speech disorders such as slurred speech, and dysphagia (especially with solid foods) [19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35]51,55].…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Health-Related Quality of Life in Children Hospitalised Due to Four Ent Illnesses: A Selective Review

2022

View full text Add to dashboard Cite

Introduction:The concept of health-related quality of life (HRQOL) is nowadays increasingly and more broadly used for evaluating the effectiveness of medical treatment, superseding the earlier 'quality of life' . The reason is that subjective parameters have now been addedsuch as health, freedom, and happiness -to previous objective parameters such as social development and material wellbeing. The HRQOL concept applies equally well to otolaryngology and this selective review of the literature focuses on HRQOL outcomes in four childhood ENT diseases. Study aim is to retrospectively evaluate the literature on HRQOL in children hospitalised for chronic sinusitis, nasal septum deviation, adenoid hypertrophy, or hearing disease. Material and methods:Published studies and case reports were searched in Medline/PubMed, Web of Science, Scopus, and ORCID on quality of life based on paediatric patient questionnaires, whether completed by the subjects themselves or their parents. As well as confining results to the four selected illnesses, the following key words were used: health quality of life, otolaryngology/ENT, pediatrics/paediatrics. The review is selective, not comprehensive, with total results limited to 25 studies. Studies before 1999 were omitted because before then 'quality of life' was imprecisely defined.Results: HRQOL scores and well-being were found to significantly deteriorate in pediatric patients suffering from chronic sinusitis, nasal septum deviation, adenoid hypertrophy, or hearing disease. The main problems found were infection, inflammation, disruption to family life and child-parent interaction, fitness-related issues, reduced ENT patencies, and apnea.Conclusions: HRQOL significantly deteriorates in children suffering from the defined ENT diseases. Further studies are needed to cover all ENT diseases.

show abstract

Section: Discussionmentioning

confidence: 96%

Section: Discussionmentioning

confidence: 99%

Health-Related Quality of Life in Children Hospitalised Due to Four Ent Illnesses: A Selective Review

2022

View full text Add to dashboard Cite

show abstract

“…One study showed a small deterioration in the education and social functioning aspects of HRQoL for those children suffering from a one-sided (unilateral) hearing loss/deafness ( 50 ). It also found that HRQoL was more limited in children with bilateral hearing loss than those with unilateral hearing loss.…”

Section: Discussionmentioning

confidence: 99%

A review of health—related quality of life issues in children suffering from certain key otolaryngological illnesses

et al. 2023

View full text Add to dashboard Cite

BackgroundThe health—related quality of life (HRQoL) concept is nowadays increasingly and more broadly used for helping evaluate the effectiveness of medical treatment, superseding the earlier “quality of life” approach. The HRQoL concept likewise applies to otolaryngology and this narrative review study is focused on HRQoL outcomes in four key childhood otolaryngological diseases as reported in the literature.Study aimTo retrospectively evaluate the literature on measuring HRQoL in children suffering from selected otolaryngological illnesses, during treatment.Materials and MethodsPublished studies/case reports were searched for in Medline, PubMed, Web of Science, Scopus and ORCID on the quality of life based on paediatric patient questionnaires, whether completed by subjects themselves or by their parents (by proxy). The following key words were used: health quality of life, otolaryngology/ENT, pediatrics/paediatrics. Studies before 1999 were omitted because hitherto, the “quality of life” had been imprecisely defined thus rendering any subsequent comparisions problematic.ResultsHRQoL scores and well-being were found to significantly deteriorate in child patients suffering from four important otolaryngological disorders: chronic sinusitis, nasal septum deviation, adenoid hypertrophy and hearing disease. The main problems found were infection, inflammation, disruption to family life and child-parental interaction, fitness-related issues, reduced ENT patencies and apnea.ConclusionsThe HRQoL appears to significantly deteriorate in children suffering from otolaryngological diseases. Further such studies are needed for other ENT diseases.

show abstract

“…Among the questionnaires that offer both a child and a parent version, the KIDSCREEN is the most widely used in the literature due to its good psychometric properties and its multilingualism, and it has been tested on 22 827 children with a response rate of 69% [ 17 ]. It is used in many different contexts such as child cancer survivors [ 18 ], children with chronic illnesses [ 19 ], children with hearing loss [ 20 ], but also in the general population [ 21 , 22 ].…”

Section: Introductionmentioning

confidence: 99%

Factors Associated with Discrepancy of Child-Adolescent/Parent Reported Quality of Life in the Era of COVID-19

Jeanbert

Baumann

Todorović

et al. 2022

IJERPH

View full text Add to dashboard Cite

Billions of children/adolescents experienced unprecedented changes in their daily lives that impacted their health-related quality of life (HRQoL) during the first wave of the coronavirus disease 2019. The purpose of this study was to describe child-parent discrepancies in reporting on HRQoL and explore factors associated with such discrepancies at the end of the first lockdown in France. A cross-sectional study was conducted among French school-aged children from 8 to 18 years and their parents living in the Grand Est region in France during the first wave of the epidemic. The impact of individual, self-reported health status and environmental data on discrepant parent–child reports of HRQoL was assessed by multinomial multivariable logistic regression models. A total of 471 parent–child pairs were included. Among 50% of the discordant pairs, parents underestimated HRQoL more frequently than they overestimated it. Home location, social support score, children’s education level, parents’ education level, tensions and conflicts with neighbors reported by children, whether they had access to a garden, and parents’ professional activity were significantly associated with parental overestimation (adjustedOR from 2.08 to 11.61; p < 0.05). Factors associated with parental underestimation were children’s education level, SF12 score, home location, the child’s gender, parent’s level of education, the presence of noise in the residence reported by children, whether a household member was infected with COVID-19, whether they had access to a garden, and family structure (adjustedOR from 1.60 to 4.0; p < 0.05). This study revealed differences between child-reported and parent-reported HRQoL. The COVID-19 pandemic accentuated the discrepancies in observable dimensions and attenuated them in unobservable dimensions of HRQoL but did not impact the directional discrepancy; parents underestimated their child’s HRQoL more. These discrepancies appear to be explained by parent and child sociodemographic factors.

show abstract

Hearing-related quality of life, developmental outcomes and performance in children and young adults with unilateral conductive hearing loss due to aural atresia

Cited by 14 publications

References 17 publications

Health-Related Quality of Life in Children Hospitalised Due to Four Ent Illnesses: A Selective Review

Health-Related Quality of Life in Children Hospitalised Due to Four Ent Illnesses: A Selective Review

A review of health—related quality of life issues in children suffering from certain key otolaryngological illnesses

Factors Associated with Discrepancy of Child-Adolescent/Parent Reported Quality of Life in the Era of COVID-19

Contact Info

Product

Resources

About