Hip health at skeletal maturity: a population‐based study of young adults with cerebral palsy

Wawrzuta, Joanna; Willoughby, Kate; Molesworth, Charlotte; Ang, Soon; Shore, Benjamin J.; Thomason, Pam; Graham, H. Kerr

doi:10.1111/dmcn.13171

Cited by 53 publications

(54 citation statements)

References 27 publications

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“…Studies evaluating the immediate and long term benefits, non-benefits or harms of using standardized assessments with children and families are sparse [8,21 66,67]. Routine surveillance programmes (incorporating standardised assessments) for children with cerebral palsy have demonstrated improved bio-mechanical and pain outcomes [49,68]. Individualized client-centred tools such as DISABKIDS Chronic Generic Measure and Canadian Occupational Performance Measure have been associated with increased motivation with activity-focused interventions and improved therapy practice [63,61].…”

Section: Discussionmentioning

confidence: 99%

Understanding allied health practitioners’ use of evidence-based assessments for children with cerebral palsy: a mixed methods study

O’Connor

Kerr

Shields

et al. 2017

Disability and Rehabilitation

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Section: Discussionmentioning

confidence: 99%

Understanding allied health practitioners’ use of evidence-based assessments for children with cerebral palsy: a mixed methods study

O’Connor

Kerr

Shields

et al. 2017

Disability and Rehabilitation

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“…Very long‐term multicentre studies are underway, confirming the safety and durability of this approach. However, these results are only obtained in centres where children have access to three‐dimensional gait analysis, an appropriate preparation during the non‐operative phase of treatment by specialists in paediatric rehabilitation and when the surgical team has both experience and an appropriate surgical volume of at least 5 and preferably >10 children per annum …”

Section: Brain Lesions Spinal Lesions Musculoskeletal Deformities Amentioning

confidence: 99%

Screening and referral for children with physical disabilities

Georgiadis

Thomason

Willoughby

et al. 2017

J Paediatrics Child Health

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The clinical care of children with physical disabilities is a major priority for paediatricians and paediatric orthopaedic surgeons. Cerebral palsy (CP) is the prototypical condition and remains the most common cause of physical disability in developed countries. The incidence is approximately 2 per 1000 live births, translating to between 600 and 700 new children per annum in Australia, with approximately 34 000 children and adults currently living with CP. This figure is predicted to rise inexorably over the next 20 years. The care of children with physical disabilities, including those with CP, is usually coordinated by paediatricians, general practitioners and allied health teams including physiotherapists, with input from paediatric orthopaedic surgeons when appropriate. The emphasis in care for children with CP has moved from 'reactive' to 'proactive'. In the past, children are often referred when symptomatic, for example when a hip dislocation had occurred and became painful. The emphasis now is on coordinated, multidisciplinary care in which musculoskeletal manifestations of disability are identified by screening programmes. Systematic screening, especially when population-based and linked to a register, avoids children getting 'lost in the system'. Early and more effective interventions may be offered for the prevention of contractures, dislocation of the hip and spinal deformities. In this review, we will focus on the assessment of gait in children with physical disabilities, and monitoring for hip and spine deformity.

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“…Detection of hip displacement through routine ‘hip surveillance’ is effective when it leads to earlier orthopaedic referral and earlier intervention . When surgical intervention is offered at the right time, invasive salvage procedures for hip dislocation can be avoided …”

mentioning

confidence: 99%

More than an X‐ray: Experiences and perspectives of parents of children with cerebral palsy when engaging in hip surveillance

Toovey

Willoughby

Hodgson

et al. 2019

J Paediatrics Child Health

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Aim:We explored the experiences of parents of children with cerebral palsy (CP) when engaging in hip surveillance for their child and aimed to identify the barriers and facilitators they encounter. Methods: We conducted a pragmatic qualitative study through five focus groups conducted with 23 parents and primary care givers of young people with cerebral palsy. A semi-structured topic guide was used to facilitate discussion. Recordings were transcribed verbatim and transcripts analysed using content analysis. Results: Six major categories emerged: (i) hip surveillance is a shared responsibility; (ii) knowledge is empowering; (iii) hip surveillance should be proactive rather than reactive; (iv) consistency and support from health professionals is valuable; (v) good communication is crucial; and (vi) challenges associated with having an X-ray may not be appreciated. Participants made recommendations related to: service model enhancements, information provision and improving both communication and the experience of having an X-ray. Conclusion: Despite having a good understanding of the need and importance of hip surveillance for their child, several barriers to parent engagement exist. Findings will inform the implementation of a family-centred model for hip surveillance and may be relevant to those undertaking or planning the implementation of hip surveillance in other areas.

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Hip health at skeletal maturity: a population‐based study of young adults with cerebral palsy

Cited by 53 publications

References 27 publications

Understanding allied health practitioners’ use of evidence-based assessments for children with cerebral palsy: a mixed methods study

Understanding allied health practitioners’ use of evidence-based assessments for children with cerebral palsy: a mixed methods study

Screening and referral for children with physical disabilities

More than an X‐ray: Experiences and perspectives of parents of children with cerebral palsy when engaging in hip surveillance

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