HIV/AIDS treatment and health related quality of life: Importance of knowing patients’ perspective

Ahmed, Syed Imran; Sulaiman, Syed Azhar Syed; Lee, Christopher K.C.

doi:10.1016/j.hivar.2013.02.003

Cited by 8 publications

(6 citation statements)

References 2 publications

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“…The adaptability of our process is a strength that allows the intervention to be tailored to local context and learner needs. Syed, Sulaiman, Hassali, and Lee (2013) further noted that interventions that assess patients' understanding and expectations should be a critical part of HIV management.…”

Section: Discussionmentioning

confidence: 99%

A Mixed-Methods Outcome Evaluation of a Mentorship Intervention for Canadian Nurses in HIV Care

Worthington

O’Brien

Mill

et al. 2016

Journal of the Association of Nurses in AIDS Care

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We assessed the impact of an HIV care mentorship intervention on knowledge, attitudes, and practices with nurses and people living with HIV (PLWH) in Canada. We implemented the intervention in two urban and two rural sites with 16 mentors (eight experienced HIV nurses and eight PLWH) and 40 mentees (nurses with limited HIV experience). The 6-to 12-month intervention included face-to-face workshops and monthly meetings. Using a mixed-methods approach, participants completed pre-and postintervention questionnaires and engaged in semistructured interviews at intervention initiation, mid-point, and completion. Data from 28 mentees (70%) and 14 mentors (87%) were included in the quantitative analysis. We analyzed questionnaire data using McNemar test, and interview data using content analysis. Results indicated positive changes in knowledge, attitudes, and practices among nurse mentees, with qualitative interviews highlighting mechanisms by which change occurred. Mentorship interventions have the potential to engage and educate nurses in HIV treatment and care. *Correspondence to: vera.caine@ualberta.ca. DisclosuresThe authors report no real or perceived vested interests that relate to this article that could be construed as a conflict of interest. PLWH;Mill, Edwards, Jackson, MacLean, & Chaw-Kant, 2010;Mill et al., 2013). Stigma may result in people at risk for HIV delaying testing (Pottie et al., 2014) and lead to HCP providing differential care to PLWH (Mill et al., 2013). Stigma perpetuated by nurses may be related to a lack of knowledge and educational preparation about HIV clinical management and counseling, religious background, or workplace culture (Waluyo, Culbert, Levy, & Norr, 2015).HIV education for HCP is important to promote best practices. Education increases knowledge and promotes positive changes in attitudes, making it key to addressing HIV stigma in health care settings (Aggleton, Yankah, & Crewe, 2011). Despite the benefits, limited evidence exists to evaluate the impact of different approaches to HIV education for HCP (Aggleton et al., 2011). The Canadian Association of Nurses in AIDS Care (CANAC, 2013) recently highlighted deficits in education for nurses in HIV care. CANAC argued that nurses were graduating with insufficient theoretical and clinical experience in HIV care and with "… limited understanding of the broader social, cultural, and historical contexts with which HIV/AIDS is located" (CANAC, 2013, p. 2). WHO (2013) suggested that nurses were in key positions to provide HIV care, treatment, and prevention, and thus it was essential to prepare nurses at the undergraduate and graduate levels, as well as those in practice, to successfully engage in these roles. However, the impact of HIV education programming for nurses to advance knowledge, and practice and address stigma was unclear. Mentorship is one strategy to increase knowledge and skills in HCP. In order to advance education programming for nurses, we implemented and evaluated a mentorship intervention in HIV care for nu...

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Section: Discussionmentioning

confidence: 99%

A Mixed-Methods Outcome Evaluation of a Mentorship Intervention for Canadian Nurses in HIV Care

Worthington

O’Brien

Mill

et al. 2016

Journal of the Association of Nurses in AIDS Care

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“…Communitybased research emphasizes engagement of community partners in all aspects of the research process from inception and design to dissemination of findings Israel, Eng, Schulz, & Parker, 2013). The inclusion of PLWH as researchers and advisors and as participants and guest speakers ensured that the research was guided by the principles of Greater Involvement of People living with HIV/AIDS (GIPA; Nyblade, Stangl, Weiss, & Ashburn, 2009;Syed, Sulaiman, Hassali, & Lee, 2013). GIPA principles have been widely recognized as good practice in programming and policy that involves and acknowledges the rights of those affected by HIV to have opportunities to contribute in the decision-making that affects their lives.…”

Section: Methods Principles For Community Engagementmentioning

confidence: 99%

Implementation Process of a Canadian Community-based Nurse Mentorship Intervention in HIV Care

Caine

Mill

O’Brien

et al. 2016

Journal of the Association of Nurses in AIDS Care

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“…Therefore, until the day HIV/AIDS cure will be possible, delay in HIV/AIDS‐related mortality and related complications with improve quality of life (QoL) will remain as main outcomes of the treatment and to achieve this, equal and active participation of patient in the whole process of treatment is imperative. This accentuates on assessment of patients' perspective and understanding towards disease and its management . Patients with chronic diseases might be expected to encounter increasingly complex barriers given the need for long‐term care and treatment, and it is clear that these barriers can have very serious consequences in terms of delayed treatment, inappropriate healthcare‐seeking behaviours, poor adherence to treatment regimens or even a decision to forego treatment …”

Section: Introductionmentioning

confidence: 99%

A qualitative insight of HIV/AIDS patients' perspective on disease and disclosure

Ahmed

Sulaiman

Hassali

et al. 2014

Health Expectations

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HIV/AIDS treatment and health related quality of life: Importance of knowing patients’ perspective

Cited by 8 publications

References 2 publications

A Mixed-Methods Outcome Evaluation of a Mentorship Intervention for Canadian Nurses in HIV Care

A Mixed-Methods Outcome Evaluation of a Mentorship Intervention for Canadian Nurses in HIV Care

Implementation Process of a Canadian Community-based Nurse Mentorship Intervention in HIV Care

A qualitative insight of HIV/AIDS patients' perspective on disease and disclosure

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