Home care for burn survivors: A phenomenological study of lived experiences

Heydarikhayat, Nastaran; Ashktorab, Tahereh; Rohani, Camelia

doi:10.1080/01621424.2020.1749206

Cited by 8 publications

(4 citation statements)

References 25 publications

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“…Out of 103 studies, 81 (79%) studies explicitly mentioned using a ‘descriptive phenomenological’ research design or approach. Four studies reported a generic phenomenological research design but used a descriptive phenomenological data analysis technique (Ghorbani et al, 2021; HeydariKhayat et al, 2021; Luo et al, 2021; Sun et al, 2021). Ten studies reported being a descriptive, qualitative, or descriptive qualitative study ‘with’ or ‘grounded in’ a phenomenological approach.…”

Section: Resultsmentioning

confidence: 99%

Examining characteristics of descriptive phenomenological nursing studies: A scoping review

Shorey

2022

Journal of Advanced Nursing

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Qualitative research methods have been receiving increasing recognition in healthcare and nursing research, as it seeks to understand a natural phenomenon through the emphasis on the meaning, views and experiences of participants (Al-Busaidi, 2008). As nurse researchers strive to develop knowledge that embraces the ideals of holistic nursing, it is essential for nurse researchers to understand human experiences in health and illness and explore the needs of both nurses, patients and other stakeholders (Wojnar &

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Section: Resultsmentioning

confidence: 99%

Examining characteristics of descriptive phenomenological nursing studies: A scoping review

Shorey

2022

Journal of Advanced Nursing

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“…As rehabilitation occurs, the burn patient is able to attain a degree of pre-injury abilities as closely as possible (6, 7), and is able to do things that are desirable to them as recover progresses (8,9). Along the recovery trajectory for burn survivors, previous studies have observed that the greatest physical and psychosocial decline may be experienced following discharge (10)(11)(12). Concerns regarding pain, anxiety, and uncertainties about return to work/ community integration may emerge immediately following discharge (13,14).…”

Section: Background and Rationalementioning

confidence: 99%

Effects of A Nurse-Led Transitional Burns Rehabilitation Programme (4Cs-TBuRP) For Adult Burn Survivors: Protocol for a Randomised Control Trial

Bayuo

Wong

Chung

2021

Preprint

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Background: Transitioning from the burn unit to the home/ community can be chaotic with limited professional support. Some adult burn survivors may face varied concerns leading to poor outcomes in the early post-discharge period with limited access to professional help. Based on these, a nurse-led transitional burns rehabilitation programme has been developed and the current trial aims to ascertain its effects as well as explore the implementation process. Methods: A single-centre, double-arm randomised controlled trial with a process evaluation phase will be utilised for this study. All adult burn survivors aged ≥18 years with burn size ≥10% total burn surface area at the site during the study period will be screened for eligibility at least 72hours to discharge. A sample size of 150 will be block randomised to treatment (receiving the nurse-led transitional care programme and routine post-discharge service) and control groups (receiving routine post-discharge service). The nurse-led transitional care programme comprises of predischarge and follow-up phases with the delivery of bundle of holistic interventions lasting for 8 weeks. There are three timelines for data collection: baseline, immediate post-intervention, 4 weeks post-intervention. Discussion: The findings from this study can potentially inform the development and organisation of post-discharge care and affirm the need for ongoing comprehensive home-based care for burn survivors and their families. Trial registration: ClinicalTrials.gov Trial Registry approved the prospective registration on 20 th August 2020. Registration details can be viewed on https://clinicaltrials.gov/ct2/show/record/NCT04517721 .

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“…Home care may become chaotic, often with limited access to professional support in the early post-discharge period (Herzog & Grzelak, 2020;Rezaei et al, 2020). Some burn survivors may not return to the hospital due to long travel distances (HeydariKhayat et al, 2020a(HeydariKhayat et al, , 2020bJagnoor et al, 2018a;Rencken et al, 2020). Family members who have been identified as essential support systems may also be inadequately prepared to offer support (Bäckström et al, 2018;Lotfi et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

Adult Burn Survivors and Burn Care Staff Perceptions Regarding Transitioning From the Burn Unit: A Cross-Country Qualitative Study in Ghana and China

Bayuo,

Wong,

et al. 2024

Qual Health Res

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Rehabilitative care for burn patients in developing countries is often wrought with several issues. Post-discharge support is equally challenging as there is often limited rehabilitative care as the burn survivors and their families transition. To inform practice, this study sought to explore the perspectives of adult burn survivors and burn care staff regarding transitioning from the burn unit and the development of a transitional rehabilitation programme. We employed interpretive description for this study. Semi-structured face-to-face interviews were conducted with adult burn survivors and burn care staff across two tertiary healthcare facilities in Lanzhou, Gansu Province of China, and Ghana. The thematic analytical approach was employed to analyse the data. Forty-six participants comprising 26 adult burn survivors and 20 burn care staff participated in this study. Two themes and five subthemes emerged from the data. Transitioning from the burn unit to the home was described as complex with varied biopsychosocial needs emerging. However, available support was not comprehensive to resolve these needs. Existing pre-discharge support is limited across both settings. Burn survivors expressed interest in taking on an active role in the rehabilitation process and being able to self-manage their post-burn symptoms following discharge. Transitional rehabilitative support should include an active follow-up system, ensure patient- and family-centred support, and offer a bundle of comprehensive rehabilitative services using locally available items which do not financially burden burn survivors and their families. In conclusion, transitioning from the burn unit is filled with varied health needs. Transitional rehabilitative care is required to bridge the pre-discharge and post-discharge periods.

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Home care for burn survivors: A phenomenological study of lived experiences

Cited by 8 publications

References 25 publications

Examining characteristics of descriptive phenomenological nursing studies: A scoping review

Examining characteristics of descriptive phenomenological nursing studies: A scoping review

Effects of A Nurse-Led Transitional Burns Rehabilitation Programme (4Cs-TBuRP) For Adult Burn Survivors: Protocol for a Randomised Control Trial

Adult Burn Survivors and Burn Care Staff Perceptions Regarding Transitioning From the Burn Unit: A Cross-Country Qualitative Study in Ghana and China

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