Hospice Caregiver Depression: The Evidence Surrounding the Greatest Pain of All

Oliver, Debra Parker; Albright, David L.; Washington, Karla T.; Wittenberg-Lyles, Elaine; Gage, Ashley; Mooney, Megan; Demiris, George

doi:10.1080/15524256.2013.846891

Cited by 35 publications

(16 citation statements)

References 28 publications

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“…16 Informal caregivers have high rates of depression, anxiety, and grief, and in the few studies that have focused on their experiences, pain management for their charges has been the most commonly expressed concern. 17 …”

Section: Introductionmentioning

confidence: 99%

Pain in Hospice Patients With Dementia

Tarter

Demiris

Pike

et al. 2016

Am J Alzheimers Dis Other Demen

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Introduction At the end of life, patients with dementia often experience high levels of pain due to complex interplay of disease processes and numerous barriers to symptom management. In the hospice setting, informal caregivers play an essential role in pain management. This study describes their experience managing pain in hospice patients with dementia. Methods We conducted a qualitative analysis of audio-recorded interviews with informal caregivers of hospice patients with dementia who had chosen pain as the challenge they wanted to work on within a problem-solving therapy intervention. Results The thematic analysis of sessions with 51 caregivers identified 4 themes: difficulty in communicating with patients, lack of consistent guidance from health-care professionals, perceived uncertainty about the etiology of pain, and secondary suffering. Discussion Our findings indicate the possible need for increased support for caregivers, including educational interventions targeting pain etiology and assessment, and improved communication with health-care professionals.

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Section: Introductionmentioning

confidence: 99%

Pain in Hospice Patients With Dementia

Tarter

Demiris

Pike

et al. 2016

Am J Alzheimers Dis Other Demen

Self Cite

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“…But it may also be owing to the less severe disease phenotype which made survival for a longer duration possible and lesser complications. Study by Parker et al which involved assessment of anxiety among caregivers of terminally ill patients showed that 33% of the caregivers had anxiety 39 . Indicators of high anxiety levels in this study were young age and severity of disease in patients.…”

Section: Discussionmentioning

confidence: 42%

Quality of life, caregiver burden and mental health disorders in primary caregivers of patients with Cirrhosis

Hareendran

Devadas

Sreesh

et al. 2020

Liver International

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Background and Aims Caregivers are needed for cirrhotic patients as there is progressive decline in cognition and self‐care. We intend to study the quality of life (QOL), psychosocial burden and prevalence of mental health disorders among caregivers. Methods Cross‐sectional study where caregivers, defined as person who takes responsibility of providing care to patient, of cirrhotic patients were included. Short form 36 health survey (SF‐36) to assess QOL, Zarit Burdern Index12 (ZBI) for caregiver burden (CB). Patient Health Questionnaire (PHQ) identified depression and Generalized Anxiety Disorder (GAD‐7) questionnaires, anxiety. Results Of 132 caregivers, mean age of caregiver was 41.2 ± 10.3 years, with female preponderance. Mean MELD was 21.4 ± 7, majority belonged to CHILD C. Comparing the SF36 score of caregivers to normal population showed lower level of QOL for caregivers. Mean ZBI score – 14 ± 5.8. Mean GAD score – 8.1 ± 5.1, 54 (41%) had anxiety. Mean PHQ score – 7.8 ± 5.2, 45 (34%) had depression. Regression analysis Alcoholic cirrhosis, history of hepatic encephalopathy (HE), Anxiety, Depression and recidivism predicted CB. Treatment costs (ODDS‐1.15), alcoholic cirrhosis (ODDS –8.9), history of HE (ODDS‐7.5) and caregiver duration (ODDS‐0.25) predicted anxiety. Treatment costs (ODDS‐1.5), caregiver age (ODDS‐0.87), spouse as caregiver (ODDS‐10.9) and higher education (ODDS‐0.79) predicted depression. Conclusions Caregivers of cirrhotic patients have high prevalence of CB with low QOL and high incidence of anxiety and depression, compared with the general population. Alcoholism in patients precipitates while higher education helps cope up with these disorders.

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“…2 Nearly one-third of family caregivers of patients receiving hospice care report they are moderately to severely anxious and/or depressed. 3 Research has shown that hospice caregivers are seeking additional information related to patient care, pain and symptom management, and self-care. 3 Caregivers need education and assistance to make patient-centered and family-centered care a reality for hospice patients.…”

Section: Introductionmentioning

confidence: 99%

“…3 Research has shown that hospice caregivers are seeking additional information related to patient care, pain and symptom management, and self-care. 3 Caregivers need education and assistance to make patient-centered and family-centered care a reality for hospice patients. 4…”

Section: Introductionmentioning

confidence: 99%

Reflections of Hospice Staff Members About Educating Hospice Family Caregivers Through Telenovela

Cruz‐Oliver

Abshire

Budhathoki

et al. 2020

Am J Hosp Palliat Care

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Objective: Hospice family caregivers are seeking additional information related to patient care, pain and symptom management, and self-care. This study interviewed hospice staff about the potential dissemination of bilingual telenovelas to address these caregiver needs. Methods: Qualitative structured phone interviews were conducted with 22 hospice professionals from 17 different hospice organizations in 3 different Midwest states. The interviews were conducted from October to December 2019. Hospice staff volunteers were recruited from conferences, then individual interviews were audio-recorded, transcribed, and thematic analysis was conducted to gain an in-depth understanding of how to best implement telenovela video education into hospice care. Results: Most participants were hospice nurses (36%) located primarily in Missouri (91%), with a mean of 9 years of experience. Three discrete themes emerged, the educational resources currently provided to patient/families, perceptions of the usefulness of telenovelas for education, and practical suggestions regarding the dissemination of telenovelas. The development of 4 telenovela videos covering different topics is described. Conclusion: Hospice staff responded favorably to the concept of telenovelas and identified important keys for dissemination.

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Hospice Caregiver Depression: The Evidence Surrounding the Greatest Pain of All

Cited by 35 publications

References 28 publications

Pain in Hospice Patients With Dementia

Pain in Hospice Patients With Dementia

Quality of life, caregiver burden and mental health disorders in primary caregivers of patients with Cirrhosis

Reflections of Hospice Staff Members About Educating Hospice Family Caregivers Through Telenovela

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