Reflections of Hospice Staff Members About Educating Hospice Family Caregivers Through Telenovela

Abstract

<jats:sec><jats:title>Objective:</jats:title><jats:p> Hospice family caregivers are seeking additional information related to patient care, pain and symptom management, and self-care. This study interviewed hospice staff about the potential dissemination of bilingual telenovelas to address these caregiver needs. </jats:p></jats:sec><jats:sec><jats:title>Methods:</jats:title><jats:p> Qualitative structured phone interviews were conducted with 22 hospice professionals from 17 different hospice organizations in 3 different Midwest states. The interviews were conducted from October to December 2019. Hospice staff volunteers were recruited from conferences, then individual interviews were audio-recorded, transcribed, and thematic analysis was conducted to gain an in-depth understanding of how to best implement telenovela video education into hospice care. </jats:p></jats:sec><jats:sec><jats:title>Results:</jats:title><jats:p> Most participants were hospice nurses (36%) located primarily in Missouri (91%), with a mean of 9 years of experience. Three discrete themes emerged, the educational resources currently provided to patient/families, perceptions of the usefulness of telenovelas for education, and practical suggestions regarding the dissemination of telenovelas. The development of 4 telenovela videos covering different topics is described. </jats:p></jats:sec><jats:sec><jats:title>Conclusion:</jats:title><jats:p> Hospice staff responded favorably to the concept of telenovelas and identified important keys for dissemination. </jats:p></jats:sec>

Advance Care Planning for Spanish-Language Speakers: Patient, Family, and Interpreter Perspectives

“…More broadly, a community-based approach that extends ACP outside of the healthcare system walls was recommended by our participants, particularly one that targets families. Cruz-Oliver et al suggest that solutions for Spanish families can include the use of community religious leaders and media (Cruz-Oliver et al, 2021; Cruz-Oliver & Sanchez-Reilly, 2016). This is also supported by Sudore et al (2018) who suggest that conversations among family/friends “maybe one of the most important targets for ACP interventions.” When those conversations are normalized, it allows ACP to be a common topic in households.…”

Comparison of Traditional Videos With Telenovelas for Hospice Family Caregivers Education

“…Details of telenovela development and content are published elsewhere. 3 Both the traditional videos and the telenovela were posted to a private YouTube channel. Family caregivers were provided links each week to access either the videos or the episodes.…”

“…2 However, technologyenhanced educational materials are not widely available for hospice staff to use for patient and family education. 3 One innovative and emerging format for video health education is the use of telenovela. A "telenovela" is usually a television show which narrates stories with a characteristically dramatic plot.…”

“…Following Brame's 7 suggestions for development of effective educational videos, we explored adapting the educational videos using the telenovela format. 3 This brief report aims to address the following research questions: (1) What family caregiver characteristics are related to likelihood of watching traditional videos as compared to telenovelas? (2) How do viewers respond to telenovela videos as compared to traditional videos?…”