How can we describe impact of adult patient participation in health-service development? A scoping review

Olsson, Ann Britt Sandvin; Strøm, Anita; Haaland‐Øverby, Mette; Fredriksen, Kari; Stenberg, Una

doi:10.1016/j.pec.2020.02.028

Cited by 25 publications

(33 citation statements)

References 65 publications

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“…They have also examined the impact of user involvement on service delivery, for example, accessibility, utilisation, responsiveness and information (Peikes et al 2016) as well as providers' and user representatives' knowledge, identity, attitudes and satisfaction Pietilä 2020, Rise andSteinsbekk 2016). A scoping review study (Sandvin Olsson et al 2020) has synthesised research and updated the seminal study by Crawford et al (2002). The review documents a large variety of impacts, purposes and approaches to user involvement in the literature.…”

Section: Cell 4: How Does User Involvement Influence On Service Development?mentioning

confidence: 99%

“…Healthcare professionals on micro-and mesolevels are considered crucial as they implement new approaches to improve persons' illness management and quality of life. User representatives operating on the meso-and macrolevel play a crucial role in developing high-quality healthcare services together with healthcare professionals (Sandvin Olsson et al 2020). There is also a growing recognition that LTCM involves public health issues as well as clinical issues (Grady and Gough 2014).…”

Section: Introductionmentioning

confidence: 99%

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Rethinking long‐term condition management: An actor‐level framework

Vaagan¹,

Olsson²,

Arntzen

et al. 2021

Sociology Health & Illness

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To understand the complexities of managing long-term conditions and develop appropriate responses, micro-, meso-and macrolevels must be considered. However, these levels have not been combined in a single analytical framework of long-term condition management (LTCM). This article aims to describe a framework of LTCM practice and research that combines societal levels and key agents. The actor-level framework, based on the works of Abram De Swaan and Randall Collins, provides a broader understanding of LTCM as an interdisciplinary research field compared to previous contributions. The framework has three main advantages. First, it encourages knowledge production across levels and actors that address the complexity of long-term illness management. Second, it broadens the scope of LTCM as an interdisciplinary research field and practice field. Finally, it facilitates the integration of knowledge production from different disciplines and research traditions. The framework could stimulate interdisciplinary research collaboration to enhance knowledge of processes and interactions influencing the lives of individuals with long-term conditions.

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Section: Cell 4: How Does User Involvement Influence On Service Development?mentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Rethinking long‐term condition management: An actor‐level framework

Vaagan¹,

Olsson²,

Arntzen

et al. 2021

Sociology Health & Illness

Self Cite

View full text Add to dashboard Cite

show abstract

Section: Introductionmentioning

confidence: 99%

“… 5 Patient participation can occur on the direct care (micro), health‐care organization (meso), and societal and governmental (macro) levels. 8 , 9 The fundamentals of care highlights a holistic perspective on the patient and address the critical need to embed the patient's voice at many levels of the health‐care system. 7 , 10 …”

Section: Introductionmentioning

confidence: 99%

“…Although PRs have been involved in developing health care for decades, and their participation is increasingly sought on all levels, the impact of their contributions is difficult to measure and seems to vary widely. 2 , 9 , 12 , 17 PRs’ participation in HCWGs is also still hampered by obstacles, 1 , 4 and reports on how to further develop the PR role remain sparse. Since PRs are increasingly expected in health‐care working groups on all levels in Sweden, it is important to deepen the understanding of their role and contributions to the groups and possibilities for improvements.…”

Section: Introductionmentioning

confidence: 99%

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Patient representatives: Crucial members of health‐care working groups facing an uncertain role and conflicting expectations. A qualitative study

Hult

Lundgren

Jangland

2021

Health Expectations

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Background Patient representatives (PRs) have been involved for decades in health‐care development, and their participation is increasingly sought in health‐care working groups (HCWGs) on every level. However, information on how the role could be further developed and teamwork improved remains sparse. Objective To explore the role of patient representatives in clinical practice guideline (CPG) monitoring groups, to describe their contributions and identify possibilities of improvement. Design Qualitative design using semi‐structured interviews analysed by content analysis. Setting and participants Interviews were conducted with 11 PRs, 13 registered nurses, and 9 physicians, all members of national committees monitoring CPGs for cancer in Sweden. Results Most participants considered the PR role important but mentioned several problems. PRs’ contributions were hampered by uncertainties about their role, the low expectations of other group members and their sense that their contributions were often disregarded. Some professionals questioned whether PRs were truly representative and said some topics could not be discussed with PRs present. Conclusion This study highlights the fundamental problems that remain to be solved despite the long involvement of PRs in HCWGs. Even though the PR role and teamwork differed between the groups, most PRs need to be empowered to be actively involved in the teamwork and have their engagement and knowledge fully utilized. Enhancing teamwork through clarifying roles and expectations could lead to more inclusive and equal teams able to work more effectively towards the goal of improving health care. Patient or public contribution PRs were information givers in data collection.

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Methods of engagement and levels of involvement of stakeholders in the management of work-related musculoskeletal disorders: A systematic scoping review

Fearnley

Joseph

Vasanthan

et al. 2022

J Public Health (Berl.)

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Aim: Stakeholders have an important role in both prevention and management of work related musculoskeletal disorders (WRMSDs). However, the scope of practice is unclear regarding the methods and levels of stakeholder engagement (SE) in management of WRMSDs. The aim of this review is to map the literature regarding various methods and levels of SE and how it is best implemented when managing WRMSDs. Methods: A systematic literature search was conducted in several major databases using key search phrases. Various methods and levels of SE in management

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How can we describe impact of adult patient participation in health-service development? A scoping review

Cited by 25 publications

References 65 publications

Rethinking long‐term condition management: An actor‐level framework

Rethinking long‐term condition management: An actor‐level framework

Patient representatives: Crucial members of health‐care working groups facing an uncertain role and conflicting expectations. A qualitative study

Methods of engagement and levels of involvement of stakeholders in the management of work-related musculoskeletal disorders: A systematic scoping review

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