Human rights of children with intellectual disabilities: comparing self‐ratings and proxy ratings

Abstract

Background: A child rights-based approach to research articulates well with Article 12 of the

Making sustainability in occupational therapy visible by relating to the Agenda 2030 goals – A case description of a Swedish university

“…Moreover, an interdisciplinary approach is crucial in designing interventions to increase participation in and outside school activities (SDGs 4 and 10), and, related to SDG 3, it is not a diagnosis per se that primarily affects participation but rather factors such as sibling support and family atmosphere. Other research projects are related to children with disabilities (Lygnegård, Donohue, Bornman, Granlund, & Huus, 2013), children's rights, and basic and special needs in low-and middle-income countries (SDGs 1 and 10) (Huus, Granlund, Bornman, & Lygnegård, 2015). How children's voices are emphasised, and what rights, according to the UN Convention on the Rights of the Child, the children themselves think that they have, as well as the rights their primary caregivers think they have, have also been researched (Huus, Dada, Bornman, & Lygnegård, 2016), which relates to SDGs 1, 3, 4 and 5.…”

Intellectual developmental disorders in Mexico: a call for programmes promoting independence and inclusion

“…Specifically in Mexico, the study of these disorders has not been a legal, social science or public health priority, and this has resulted in a dearth of scientific evidence. This is because the absence of policies promoting inclusion, respect of human rights, and non-discrimination inadvertently result in economic, social and political exclusion for persons with IDD (Huus et al, 2015). Specific competencies and guidelines are needed, as are interventions with a focus on prevention, rehabili tation, community integration and workforce inclusion (Lazcano-Ponce et al, 2008).…”

“…JAMA Internal Medicine, 176, 55-63. doi: 10.1001/ jamainternmed.2015.6058. Wong, J., Motulsky, A., Buckeridge, D. L., et al (2016 Treatment indications for antidepressants prescribed in primary care in Quebec, Canada, 2006-2015. JAMA, 315, 2230-2232.…”

The Principles and Ethics of Including Children with Disability in Child Research

“…In line with these Conventions, the inclusion of children with disability in research can be considered not only a requirement but a moral imperative (Carpenter and McConkey, ), along with the right to speak for themselves (i.e. self‐report) rather than through proxies (Einararsdόttir, ; Gray and Winter, ; Harcourt and Sargeant, ; Huus and others, ; Wickenden and Kembhavi‐Tam, ). In this context, child participatory research approaches have received growing attention in recent decades; however, the voices of children with disability remain largely absent from research (Stafford, ).…”