“I Definitely Want Kids, But I Think the Risks Are Pretty High”: Fertility Desires and Perinatal HIV Transmission Knowledge Among Adolescents and Young Adults with Perinatally-Acquired HIV

Fair, Cynthia D.; Albright, Jamie N.

doi:10.1007/978-3-319-29936-5_10

Cited by 5 publications

(7 citation statements)

References 35 publications

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“…Women with perinatally acquired HIV consistently expressed confidence in antiretroviral medications, such that sexual and maternal-infant transmission can be minimized if women 'do the right thing', supporting previous publications regarding this group. 7,18 Many women further reported pregnancy and parenting as important aspects of their HIV care, a finding consistent with prior literature demonstrating high antiretroviral adherence in pregnancy. 19,20 Indeed, the ability to conceive, gestate and parent was a tremendous measure of self-worth and success among participants with perinatally acquired HIV.…”

Section: Discussionsupporting

confidence: 82%

“…Like other studies of women with HIV, disclosure to sexual partners is a topic of paramount anxiety and concern; 17 concerns regarding transmission caused many of our participants to either selectively disclose their HIV status or refrain from sexual relationships altogether. Women with perinatally acquired HIV consistently expressed confidence in antiretroviral medications, such that sexual and maternal–infant transmission can be minimized if women 'do the right thing', supporting previous publications regarding this group 7,18 . Many women further reported pregnancy and parenting as important aspects of their HIV care, a finding consistent with prior literature demonstrating high antiretroviral adherence in pregnancy 19,20 .…”

Section: Discussionsupporting

confidence: 77%

“…With improved antiretroviral therapy, individuals with perinatally acquired HIV are now of reproductive age and face unique challenges as they navigate sexual relationships, fertility and pregnancies 4,5 . They have often contended with repeated hospitalizations, the stigma of HIV and the anxiety associated with the possibility of transmission to others 6,7 . Despite concerns about transmission, the majority of persons with perinatally acquired HIV want to have children 7,8 .…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Reproductive health perspectives of young women with perinatally and behaviourally acquired HIV: A qualitative study

Comfort

Watnick

Peskin

et al. 2022

Repro Female Child Health

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Introduction:The aim of this study was to describe the sexual and reproductive goals of female adolescents with human immunodeficiency virus (HIV) in an urban cohort and decipher if they vary depending on the mode of HIV acquisition. Methods: We conducted in-depth qualitative interviews with 25 Black and/or Hispanic/Latinx female adolescents living with HIV (14 perinatally, 11 behaviourally acquired) aged 17-25 years who have access to care and antiretroviral therapy at an urban public hospitals (NYC, NY). Interviews were transcribed, coded and analysed using thematic analysis. Results: Interviews demonstrated that access to antiretroviral therapy and HIV disclosure to a sexual partner were critical aspects of sexual health for the majority of participants. Persons with perinatal HIV defined motherhood as a source of self-validation and were confident that antiretroviral therapy prevents HIV transmission. Persons with behaviourally acquired HIV viewed their status as an insurmountable barrier that will prevent them from attaining sexual intimacy with a partner and expressed persistent concerns about HIV transmission during pregnancy despite reassurance from medical providers. Conclusion: Sexual and reproductive perspectives of adolescents/young women living with HIV are multifactorial, highly stigmatized, and likely influenced by the mode of HIV acquisition. This population may benefit from patient-centred care models, including sexual health counselling that addresses sexual agency, intimacy, parenting and transmission risk reduction.

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Section: Discussionsupporting

confidence: 82%

Section: Discussionsupporting

confidence: 77%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Reproductive health perspectives of young women with perinatally and behaviourally acquired HIV: A qualitative study

Comfort

Watnick

Peskin

et al. 2022

Repro Female Child Health

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show abstract

“…In a qualitative study of twenty AYA living with PHIV in Puerto Rico, Silva-Suárez et al also found that most wished to become parents [20]. Fair and Albright noted the desire to seek healing from early childhood losses and improve the world for the next generation were common childbearing motivations among their study population of youth with PHIV [21].…”

Section: Discussionmentioning

confidence: 98%

“We Are Not Different than Others”: A Qualitative Study of the Lived Experience of Hispanic Adolescents and Young Adults Living with Perinatally Acquired HIV

Fair

Fraser

Zendt

et al. 2023

IJERPH

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Though Hispanic youth with perinatally acquired HIV (PHIV) comprise 14% of those living with PHIV, little research has documented their lived experiences. Eighteen Hispanic adolescents and young adults (AYA) with PHIV were recruited from two pediatric infectious disease clinics in California (mean age = 20.8 years, 12 females and 6 males). Interview transcripts were analyzed for emergent themes regarding relationships, childbearing intentions, and future career aspirations. Participants acknowledged HIV as cause for rejection and fear of transmission from partners. Most desired children in the future. Those with children (n = 7) expressed a strong desire to continue their education for the benefit of their children. Many did not view HIV as a barrier to their career aspirations. HIV influenced their daily lives. However, the challenges of poverty, loss, and trauma also significantly shaped their well-being. Health care providers offered emotional and instrumental support which helped AYA make progress towards their goals.

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“…Although it is not possible to know how many AYA with PHIV currently have children, there are approximately 10,688 youth with PHIV living in the United States, and research has found that this population has high fertility desires/intentions, with over 80% expressing a desire to have a child in the future ( 6 , 7 ). Childbearing motivations among AYAs with PHIV are strongly linked to experiences of parental loss due to illness, the wish to leave a legacy, and the desire to receive or offer unconditional love through the experience of parenting ( 8 – 10 ).…”

mentioning

confidence: 99%

“When Should I Tell?”: Perspectives on Disclosure to Their Children among Parents with Perinatally Acquired HIV

Fair

Allen

Trexler

et al. 2016

Front. Public Health

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Adolescents and young adults (AYA) with perinatally acquired HIV (PHIV) engage in developmentally expected behaviors, such as establishing relationships and having children. Previous research has focused on pregnancy management/outcomes of AYA with PHIV. However, little research has focused on the parenting experiences of this emerging cohort and on their views of disclosure to their offspring. This article examines data from a pilot study of five AYA parents with PHIV on disclosure to their child(ren) (n = 7, 6 HIV-negative). Disclosure of their own HIV status to their children is on the minds of parents with PHIV. However, few currently have children old enough to understand the parent’s diagnosis. Three parents indicated they would disclose their HIV status when their child was “old enough to understand” so that their child would be knowledgeable about HIV. One father also noted that he currently had more pressing parenting responsibilities beyond disclosure. When discussing their perspectives on disclosure, many referenced their personal stories indicating a link between their decision to disclose/not disclose to their child and their own disclosure narrative. One mother cited she did not plan to reveal her diagnosis to her son because he was uninfected, while another mother explained she did not want to worry her child. The mother of the only infected child “did not want to wait like my mother did” and planned to tell her son at an earlier age than when she learned of her own diagnosis. Clinical implications related to disclosure will be discussed and future areas of research identified.

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“I Definitely Want Kids, But I Think the Risks Are Pretty High”: Fertility Desires and Perinatal HIV Transmission Knowledge Among Adolescents and Young Adults with Perinatally-Acquired HIV

Cited by 5 publications

References 35 publications

Reproductive health perspectives of young women with perinatally and behaviourally acquired HIV: A qualitative study

Reproductive health perspectives of young women with perinatally and behaviourally acquired HIV: A qualitative study

“We Are Not Different than Others”: A Qualitative Study of the Lived Experience of Hispanic Adolescents and Young Adults Living with Perinatally Acquired HIV

“When Should I Tell?”: Perspectives on Disclosure to Their Children among Parents with Perinatally Acquired HIV

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