2021
DOI: 10.1177/02692163211015838
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It’s almost superstition: If I don’t think about it, it won’t happen’. Public knowledge and attitudes towards advance care planning: A sequential mixed methods study

Abstract: Background: Internationally, participation in advance care planning is low. Whilst a community action approach is advocated, what the public know and understand about advance care planning is unknown. Aim: To assess public awareness, knowledge and attitudes towards advance care planning and identify strategies to raise awareness within a public health framework. Design: Sequential mixed methods comprising a cross-sectional survey and focus group/interviews. Setting/participants: A random representative sample … Show more

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Cited by 24 publications
(24 citation statements)
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“…This is consistent with previous studies about the general public's and palliative care population's perspectives concerning advance care planning. 54,55 Assessing and providing support for family members during discussion has the potential to enhance individuals' willingness to progress the advance care planning process. This may also empower family members to help them cope with their respective issues, resulting in them regaining the power to support their relatives.…”
Section: Discussionmentioning
confidence: 99%
“…This is consistent with previous studies about the general public's and palliative care population's perspectives concerning advance care planning. 54,55 Assessing and providing support for family members during discussion has the potential to enhance individuals' willingness to progress the advance care planning process. This may also empower family members to help them cope with their respective issues, resulting in them regaining the power to support their relatives.…”
Section: Discussionmentioning
confidence: 99%
“…Last, this study reached theoretical saturation just before the first Covid-19 pandemic lockdown in the UK. The pandemic placed many vulnerable patient populations including those with MS, at risk of responding poorly to Covid-19 [62] where there was a greater emphasis on engaging in ACP for vulnerable populations, including those with MS [28] [29] [30] [31, 63]. Although the ethical discussion group participants mentioned practical challenges associated with engaging in ACP-related conversations virtually during the pandemic, we omitted to include perspectives of people living with MS and their families during this critical moment in time.…”
Section: Discussionmentioning
confidence: 99%
“…Although primarily concerned with improving the appropriateness and quality of care, ACP may contribute to controlling important health spending and making more appropriate and considered use of scarce resources in end of life [27]. The COVID-19 pandemic, leading to an acute risk of deterioration and dying for many, prompted many health professionals to engage in ACP discussions with ‘at risk’ individuals [28] [29] [30] [31].…”
Section: Introductionmentioning
confidence: 99%
“…5 A recent Australian survey found that only 15% of adults had completed ACP documentation, 6 while studies in Northern Ireland and Singapore found rates of having had an ACP discussion to be 7% and 12.5%, respectively. 7,8 ACP education and conversations have generally been restricted to the health system, but in a recent study, healthcare providers reported insufficient time and their own lack of knowledge as significant barriers. 9 Over the last decade, there has been an increasing recognition of the importance of community engagement in ACP promotion and education.…”
Section: Introductionmentioning
confidence: 99%