Ichtyose et stigmatisation sociale au Burkina Faso

Korsaga, N.; Somé,; Salissou, L.; Tapsoba, Gilbert Patrice; Ouédraogo, M.; Traoré, Fagnima; Doulla, Moussa; Barro, F.; Traoré,; Niamba, P.; Traoré, A.

doi:10.1016/j.annder.2016.03.013

Cited by 5 publications

(3 citation statements)

References 13 publications

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“…There is widespread misconception about the aetiology of this disorder in the society. In some communities this is believed to be caused due to mothers attraction to the look of crocodile skin, and thus, the children acquired the skin of a reptile [14] . In some other cultures (Philippine) they are thought to be due to maternal carvings.…”

Section: Discussionmentioning

confidence: 99%

Harlequin Ichthyosis: Case Report of a rare disorder and Stigma attached to it

Sharma¹

2017

jmscr

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Section: Discussionmentioning

confidence: 99%

Harlequin Ichthyosis: Case Report of a rare disorder and Stigma attached to it

Sharma¹

2017

jmscr

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“…Clinicians should be sensitive to the sociocultural stigma of such a rare, highly visible condition; this is often more common within Sub-Saharan Africa, specifically rural or isolated communities, which may have poor health education and propagate alternative (often harmful occult) beliefs on health and disease 4. There is very little in the literature describing social attitudes to LI (and attempts to tackle them) in LMICs 4 28 29. Affected infants have been called ‘snake children’, due to the appearance of the generalised scales on the skin, subsequently leading to social exclusion, even parental abandonment, lack of engagement in familial and educational activities and poor clinical and psychosocial outcomes 4.…”

Section: Global Health Problem Analysismentioning

confidence: 99%

Recognition and management of congenital ichthyosis in a low-income setting

Saso¹,

Dowsing

Forrest

et al. 2019

BMJ Case Rep

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We report the case of a 3-week old girl in The Gambia who presented to hospital with an undiagnosed skin disorder evolving since birth. Using telemedicine to seek specialist dermatology advice abroad, she was diagnosed with and managed for suspected congenital lamellar ichthyosis. Poor early recognition and limited resources, for both acute and chronic care, created significant challenges to optimal management; these were overcome, in part, by adopting a common sense, back-to-basics approach to treatment and by empowering the parents to take ownership of their infant’s daily skin and eye care. This case highlights key global health issues associated with managing chronic, often debilitating, paediatric dermatological conditions in a low-income setting; namely, poor access to important diagnostic tools and medications, lack of experience and expertise in the management of severe skin disease and its associated complications, absence of long-term community support, alternative health beliefs and risk of sociocultural stigma.

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“…It includes a heterogeneous set of congenital or acquired pathologies characterized by xerosis cutis and the presence of excessive desquamation, reminiscent of fish scales. These pathologies are distinguished by their mode of transmission, age of onset, clinical presentation and the causal genetic anomaly [1]. Harlequin ichthyosis is a rare and fatal fetal disorder: the most serious autosomal recessive congenital ichthyosis and is most often complicated by infection.…”

Section: Introductionmentioning

confidence: 99%

Vibrio Cholerae Septicemia and Harlequin Ichthyosis: Outstanding Association

Fouad¹,

Bennaoui²,

Slitine³

et al. 2018

TOIDJ

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Background:Harlequin ichthyosis is a rare and fatal fetal disorder, most often complicated by infection. Sepsis due to Vibrio cholerae is rare, especially in neonatology. The association between ichthyosis and Vibrio cholerae infection has never been described in medical literature. Introduction:We report the case of a newborn admitted to the neonatal intensive care unit, with a typical characteristics of Harlequin ichthyosis and a sepsis due to Vibrio cholerae, diagnosed with the blood culture. The outcome was fatal; characterized by death six hours after his hospitalization. Conclusion:Cases of Harlequin ichthyosis complicated with septicemia with Pseudomonas Aeruginosa have been described. Vibrio cholerae infections are usually confined to the gastrointestinal tract but some species, especially non-01 strains, can cause extra-intestinal infections including septicemia and meningitis.

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Ichtyose et stigmatisation sociale au Burkina Faso

Cited by 5 publications

References 13 publications

Harlequin Ichthyosis: Case Report of a rare disorder and Stigma attached to it

Harlequin Ichthyosis: Case Report of a rare disorder and Stigma attached to it

Recognition and management of congenital ichthyosis in a low-income setting

Vibrio Cholerae Septicemia and Harlequin Ichthyosis: Outstanding Association

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