“…Here, I draw a line between participatory research and participatory design -while the terms are sometimes used interchangeably, the former will refer here to decisions concerning research protocol, while the latter will concern the design of an artefact, but not necessarily experiments and interviews, and so on (see Albouys-Perrois et al, 2018, for a brief overview of literature on adapting participatory design practices to people who are B/VI). In drawing this distinction, participatory design is more closely aligned with other progressive design approaches such as codesign (Coughlan et al, 2020;Yusim, 2019), user-centered design (Bardot et al, 2017;Rassmus-Gröhn, 2008) or inclusive design (Chamberlain and Dieng, 2011;de Almeida, 2014). This is not simply a rhetorical move, as important questions have been raised about the degree to which B/VI participants actually have any control over the research protocol and how they are represented in the final research output.…”