"If Only It Could Be Me": The Families of Pediatric Cancer Patients

Koch, Alberta

doi:10.2307/583758

Cited by 39 publications

(46 citation statements)

References 7 publications

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“…Positive responses of parents are about their good support systems, about new values or attitudes, re-evaluation of their goals, or a report that they value life more [17,20,22,62]. Another issue sometimes mentioned is increased closeness in families [33] or a strengthened marital relationship [34,52]. In this case family-and marital functioning are positively affected, whereas negative effects have been described as well.…”

Section: Psychological Distressmentioning

confidence: 99%

Adjustment and coping by parents of children with cancer: a review of the literature

Grootenhuis

1997

Support Care Cancer

196

167

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Studies published since about 1980 on psychological adjustment and coping of parents of children with cancer were reviewed. First, results concerning parental adjustment in terms of psychological distress, marital distress, and family functioning were summarized. Secondly, the use of coping strategies such as social support, communication, and search for meaning were described. Thirdly, factors that influence parental adjustment to childhood cancer, such as coping strategies and illness-related and demographic variables were discussed. All studies are summarized in a review table, with information about the number of participating parents and children, the purpose, measures and major results. Difficulties in generalizing findings are possibly due to the heterogeneous group of children with cancer, the differences in reporting emotional problems by mothers and fathers, the difficulties in assessing illness-specific problems, and the diversity in the ways of assessing coping and adjustment.

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Section: Psychological Distressmentioning

confidence: 99%

Adjustment and coping by parents of children with cancer: a review of the literature

Grootenhuis

1997

Support Care Cancer

196

167

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“…Despite these negative factors, the review also revealed some positives as parents reported good support systems, new values and attitudes, and changed life goals and that they valued life more (Eiser & Havermans, 1992; Greenberg & Meadows, 1991; Grootenhuis & Last, 1997b; Peck, 1979). Some families also became closer (Koch, 1985), and some marital relationships were strengthened (Koocher & O’Malley, 1981; Marky, 1982).…”

Section: Introductionmentioning

confidence: 99%

A Systematic Review of Qualitative Studies Exploring the Experience of Parents Whose Child Is Diagnosed and Treated for Cancer

Gibbins

Steinhardt

Beinart

2012

J Pediatr Oncol Nurs

100

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A growing body of research has investigated the experiences of parents of children treated for cancer. Until recently, a qualitative review has not been possible because of the lack of qualitative studies in this area. However, this has changed in recent years. The purpose of this systematic review is to summarize the findings from qualitative studies on the experiences of mothers and fathers from different countries and cultures. Twenty-eight qualitative studies were found to meet the inclusion criteria for this review. Key findings included the parents' desire to feel in control, the need to continuously adjust to the unpredictable nature of cancer treatment, the adoption of various coping styles, emotional and practical support being valued, and gender and cultural differences being reported. Clinical implications include the need for health care professionals to provide clear information and aid the sense of control, care to be individualized with gender and cultural backgrounds taken into account, and fathers' needs to be acknowledged and met. Other implications for clinical practice and future research are discussed.

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“…[2][3][4][5][6][7][8][9] Serious long-term effects were noted in a sample of 75 adults who had grown up with a sibling affected by cystic fibrosis, including survival guilt; global anxiety; fear of an early death for themselves; fear of intimacy; excessive concerns for others; heightened sense of vulnerability; somatic expressions, including headaches, ulcers, or ''identification illnesses'' that mirror symptoms of cystic fibrosis; and sleeping difficulties, including severe nightmares. 10,11 Psychosocial issues for siblings include resentment, anger, anxiety, depression, jealousy, and guilt; fear of the patient's death; fear of their own death; psychologic and physical isolation from parents; and behavioral problems.…”

Section: Research Background and Scope Of The Problemmentioning

confidence: 98%

The Sibling Center: A Pilot Program for Siblings of Children and Adolescents with a Serious Medical Condition

Fanos

Fahrner

Jelveh

et al. 2005

The Journal of Pediatrics

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"If Only It Could Be Me": The Families of Pediatric Cancer Patients

Cited by 39 publications

References 7 publications

Adjustment and coping by parents of children with cancer: a review of the literature

Adjustment and coping by parents of children with cancer: a review of the literature

A Systematic Review of Qualitative Studies Exploring the Experience of Parents Whose Child Is Diagnosed and Treated for Cancer

The Sibling Center: A Pilot Program for Siblings of Children and Adolescents with a Serious Medical Condition

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