Illness Uncertainty and Quality of Life in Children With Cancer

Fortier, Michelle A.; Batista, Melissa L.; Wahi, Aditi; Kain, Alexandra; Strom, Suzanne L.; Sender, Leonard S.

doi:10.1097/mph.0b013e318290cfdb

Cited by 37 publications

(27 citation statements)

References 25 publications

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“…This result corresponds to the finding reported by many existing studies that as illness-related distress increases, resilience (Fortier et al, 2013) and HRQOL (Molzon et al, 2017;Sharkey et al, 2017) decrease. This result corresponds to the finding reported by many existing studies that as illness-related distress increases, resilience (Fortier et al, 2013) and HRQOL (Molzon et al, 2017;Sharkey et al, 2017) decrease.…”

Section: Discussionsupporting

confidence: 91%

“…Third, this study verified that illness-related distress, social support, hope and defensive coping had indirect effects on resilience and the level of indirect effects on HRQOL was in the order of illness-related distress, social support, defensive coping, hope and courageous coping. This result corresponds to the finding reported by many existing studies that as illness-related distress increases, resilience (Fortier et al, 2013) and HRQOL (Molzon et al, 2017;Sharkey et al, 2017) decrease. Furthermore, among adolescents with significant social support, the levels of resilience (Haase et al, 1999(Haase et al, , 2014Hong & Park, 2015) and HRQOL (Arabyat & Raisch, 2015;Gonzalez-Saenz de Tejada et al, 2017) are high.…”

Section: Discussionsupporting

confidence: 91%

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Impact of resilience on the health‐related quality of life of adolescents with a chronic health problem: A structural equation approach

Kim¹,

Kim

2018

Journal of Advanced Nursing

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Aim The aim of this study was to test the impact of resilience on the health‐related quality of life among adolescents with a chronic health problem, we established a structural model to explain patients’ health‐related quality of life. Background There are various resilience‐related factors with major effects on the health‐related quality of life among adolescents with a chronic disease; however, little is known about relationships among resilience, these influencing factors and direct and indirect effects of health‐related quality of life among adolescents with a chronic health problem. Design This study adopted a cross‐sectional, descriptive correlational design. Methods Participants were 220 adolescents with a chronic disease who were aged between 10 and 18 years and currently receiving treatment at a hospital or clinic for least 6 months from February to October 2017 in Korea. Results This study verifies that hope and courageous coping had direct effects on the resilience of adolescents with a chronic health problem and the level of direct effects on health‐related quality of life was in the following order: hope, resilience and courageous coping. In addition, illness‐related distress, social support, hope and defensive coping had indirect effects on resilience and the level of indirect effects on health‐related quality of life was in the following order: illness‐related distress, social support, defensive coping, hope and courageous coping. Conclusion Resilience is a major factor that improves health‐related quality of life among adolescents with a chronic health problem. In consideration of the direct and indirect paths verified through this study, it is necessary to develop interventions to improve health‐related quality of life among adolescents with a chronic health problem.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionsupporting

confidence: 91%

Impact of resilience on the health‐related quality of life of adolescents with a chronic health problem: A structural equation approach

Kim¹,

Kim

2018

Journal of Advanced Nursing

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“…27 Perhaps the most obvious and important intervention strategy to decrease uncertainty is increased skillful communication by healthcare providers that is timely, developmentally appropriate, and empathically delivered regarding diagnosis, prognosis, and what to expect during their treatment course. 24 Because cancer-related information is often complex, ambiguous, and emotionally difficult, providing written information and/or directing AYA to age-relevant information sources, such as web-sites, may be a helpful component of an uncertainty intervention. To take in, understand, make decisions about, and act on information relevant to their cancer journey, interventions designed to support effective expression and communication of their thoughts and emotions are needed.…”

Section: Discussionmentioning

confidence: 99%

The Resilience in Illness Model Part 2: Confirmatory Evaluation in Adolescents and Young Adults With Cancer

et al. 2017

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Background Empirically derived and tested models are necessary to develop effective, holistic interventions to improve positive health outcomes in adolescents and young adults (AYA) with cancer, yet few exist. This paper is the second of two papers reporting on evaluation of the Resilience in Illness Model (RIM) as a predictive model to guide positive health research and practice. Objective To report the confirmatory model evaluation of the RIM. Methods A confirmatory evaluation of RIM was done using baseline data from a sample of 113 AYA aged 11 to 24 years who were undergoing hematopoietic stem cell transplant and enrolled in a randomized controlled trial of a behavioral intervention to enhance resilience. Data were analyzed using latent variable structural equation modeling. Results Goodness-of-fit indices supported RIM as a confirmed model and accounted for large amounts of variance in the outcomes of self-transcendence (62%) and resilience (72%), and in three of five mediators, specifically social integration (74%), courageous coping (80%), and hope-derived meaning (87%) as well as small to moderate amounts of variance in the remaining mediators of defensive coping (1%) and family environment (35%). Conclusions Findings establish the RIM as a plausible predictive framework for explaining ways AYA with cancer transcend their illness and achieve resilience resolution, and for guiding intervention studies in this population. Additional research is needed to explore RIM's transferability based on stage of illness, other chronic diseases, and cultural diversity. Implications for Practice Results support the RIM as an appropriate guide for developing and evaluating interventions to foster positive adjustment in AYA with cancer.

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“…Previous studies have been showed that talking with children about their illnesses reduces their anxiety and depression [2]. Conversely, if children received no information or lack of information about illnesses, they experienced negative emotions because of the illness uncertainty [3]. Some children experience childhood cancer to be stressful and traumatic [4,5].…”

Section: Page 3/24mentioning

confidence: 99%

Talking with Children About Cancer: A Content Analysis of Text in Children's Picture Books

Yamaji

Sawaguchi

Ota

2020

Preprint

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Background To tell children that they are diagnosed with cancer is challenging for any healthcare professional and family. Pictures books are one of the communication tools for talking with children about severe diseases. However, little research is available about the contents and appropriateness of picture books about cancer for children. Methods This study aimed to examine the contents of children's picture books about cancer and explore the advantages and disadvantages of using picture books to communicate with children about cancer. We searched the picture books about cancer written for children aged under ten years old on the Amazon.com Web site on 5 July 2019 and hand-searched on the cancer-related institutes' Web site. We extracted the texts of relevant picture books and conducted a contents analysis of them. Two researchers independently coded the patterns and contents and calculated the agreement between the codings of two researchers using Cohen's kappa coefficient. Results We identified 2,555 picture books and included 30 of them. We identified three main contents, (a) cancer-related knowledge, (b) impacts of cancer, and (c) dealing with cancer. Cancer-related knowledge refers to the information about what is going on and what children have to do. Impacts of cancer refer to the impact of having a child with cancer. Dealing with cancer relates to the actions to reduce or minimize stressful events that had been described. These contents were written with simple words and illustrations. Some of them included the essential contents, which might be misunderstood by children. Conclusions Picture books use plain language with illustrations and might be helpful for children to understand about cancer. However, as these books do not include all contents, it is necessary to select and use multiple books depending on the content which is wanted to tell the child. Moreover, there was no picture book which was developed based on children's information needs and validated. Further research should evaluate the impacts of these books as a communication tool when talking with children diagnosed with cancer.

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Illness Uncertainty and Quality of Life in Children With Cancer

Cited by 37 publications

References 25 publications

Impact of resilience on the health‐related quality of life of adolescents with a chronic health problem: A structural equation approach

Impact of resilience on the health‐related quality of life of adolescents with a chronic health problem: A structural equation approach

The Resilience in Illness Model Part 2: Confirmatory Evaluation in Adolescents and Young Adults With Cancer

Talking with Children About Cancer: A Content Analysis of Text in Children's Picture Books

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