Impact of a Disease Management Program Upon Caregivers of Chronically Critically Ill Patients

Douglas, Sara L.; Daly, Barbara J.; Kelley, Carolyn; O’Toole, Elizabeth E.; Montenegro, Hugo

doi:10.1378/chest.128.6.3925

Cited by 91 publications

(111 citation statements)

References 30 publications

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“…Bu çalışmada da kendine kısmen yetebilen/bağımlı olarak tanımlanan hastalara bakım veren bakım vericilerin bakım yüklerinin fazla, yaşam kalitesi puanlarının düşük saptanması KOAH'lı hastaların ek sağlık sorunlarının olmasının ve günlük aktivitelerini yerine getirmede sınırlı-lık yaşamalarının bakım vericilerin bakım yükünü ve yaşam kalitesini etkilediğini göstermektedir. Yaşlı bireylere bakım vermek ve yaşlının bağımlı olması bakım vericilerde daha fazla zorlanmaya neden olmaktadır [24,25]. Aktivite kısıtlılığı olan yaşlı KOAH'lı hastaların aynı yaştaki kısıtlılığı olmayan hastalara göre bakım alma sürelerinin daha uzun olduğu ve bakım vericilerinin bakım yüklerinin arttığı saptanmıştır [15].…”

Section: Discussionunclassified

Care Burden and Quality of Life Among the Caregivers of Patients with COPD

Tel¹,

Demirkol²,

Kara³

et al. 2012

Tur Toraks Der

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Objective: An individual with COPD needs the assistance and support of the caregiver in many areas, such as his daily life, medicines and medical controls. The difficulties undergone during the disease course affect not only patients but also their caregivers. The aim of the research was to determine the care burden and quality of life of caregivers. Materials and Methods:Two hundred and eighteen caregivers of COPD patients who lived within the responsibility area of a district clinic were included in the research. The Informational Form, Burden Interview and WHOQOL BREF were used to collect the data.Results: It was found that the quality of life of caregivers decreased as the care burden increased. The caregivers whowere aged 45<, lived in the extended family, had low economic incomes and experienced difficulty in the care had more burden. It was determined that the psychological domain of the quality of life of caregivers who were aged 45> and literate was lower. The social domain of the quality of life of those who were widowed and had an insufficient economic income was lower. All domains of the quality of life among those who lived in separated families were low. Scores of psychological and social domains of the caregivers of female patients were lower, whereas scores of the social domain of caregivers who had dependent patients, had completed primary education and used aids to daily living were lower. Conclusion:The quality of life of the caregivers decreases while they perform care of the COPD patient.

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Section: Discussionunclassified

Care Burden and Quality of Life Among the Caregivers of Patients with COPD

Tel¹,

Demirkol²,

Kara³

et al. 2012

Tur Toraks Der

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“…Una posible explicación de los resultados de estudios previos es que los cuidadores pueden experimentar esta sobrecarga después del alta hospitalaria debido a la frustración ya que manejan toda la atención con menos apoyo que en el ambiente institucional. (29) Esto es consistente, con estudios en los que los cuidadores de pacientes con exacerbación aguda de EPOC experimentan mayor sobrecarga en programas domiciliarios en los que tienen que asumir un incremento de actividades en relación con la hospitalización convencional podría aliviar a los cuidadores de algunos de las tareas. (8) Aunque las políticas de salud apelan a la colaboración entre cuidadores formales e informales, los servicios se centran principalmente en el paciente.…”

Section: Discussionunclassified

Ansiedad entre cuidadores de pacientes con Enfermedad Pulmonar Obstructiva Crónica tras el alta hospitalaria

García-Guillamón

Bernabeu-Mora

Montilla-Herrador

et al. 2017

eglobal

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Objetivo: Identificar los factores que influyen en cambios en la ansiedad de los cuidadores tres meses después del alta hospitalaria por exacerbación aguda de la Enfermedad Pulmonar Obstructiva Crónica (EPOC). Metodología: Estudio longitudinal. Participaron 87 cuidadores de pacientes hospitalizados por exacerbación aguda de EPOC. Se midió la ansiedad en el momento de la hospitalización y tres meses después del alta. Además, se midieron potenciales factores asociados a su cambio en cuatro dominios: Contexto del cuidado, demandas del cuidado, recursos y características del paciente. Utilizamos regresiones logísticas múltiples univariadas y multivariadas para determinar los cambios en la ansiedad tres meses después. Resultados: Presentaron ansiedad en el momento de la hospitalización el 57,5% de los cuidadores. De ellos, el 44% había remitido su ansiedad tres meses después del alta hospitalaria. Sin embargo, el 22% de los cuidadores quienes no habían presentado ansiedad en el momento de la hospitalización se mostraron ansiosos a los 3 meses. La gravedad de la EPOC y no recibir apoyo de otro cuidador disminuyó las probabilidades de remisión de la ansiedad. La sobrecarga moderadamente alta incrementa las probabilidades de presentar nuevos síntomas de ansiedad. Conclusiones: La percepción de los síntomas de la ansiedad es dinámica. Los cuidadores pueden recuperarse si reciben ayuda de otro cuidador o si el paciente al que cuidan no está en un estado severo de EPOC.

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“…Previous intervention studies that included evaluation of caregiver outcomes are summarized in Table 1. Two randomized [34,44]. Jones et al [45] conducted a RCT that mainly targeted ICU survivors.…”

Section: Interventions: Did They Work?mentioning

confidence: 99%

“…caregivers [34,44], skills and information were focused on assisting long-term recovery of patients rather than supporting family caregivers. The telephone-based mindfulness intervention introduced by Cox et al [47] has the potential to be expanded to a larger scale using various modalities (e.g., mobile phone) across care settings (e.g., family waiting areas in ICU or longterm care facilities).…”

Section: Suggestions For Future Researchmentioning

confidence: 99%

Psychological and Physical Health in Family Caregivers of Intensive Care Unit Survivors: Current Knowledge and Future Research Strategies

2016

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Purpose: This article provides an overview of current knowledge on the impact of caregiving on the psychological and physical health of family caregivers of intensive care unit (ICU) survivors and suggestions for future research. Methods: Review of selected papers published in English between January 2000 and October 2015 reporting psychological and physical health outcomes in family caregivers of ICU survivors. Results: In family caregivers of ICU survivors followed up to five years after patients' discharge from an ICU, psychological symptoms, manifested as depression, anxiety and post-traumatic stress disorder, were highly prevalent. Poor self-care, sleep disturbances and fatigue were identified as common physical health problems in family caregivers. Studies to date are mainly descriptive; few interventions have targeted family caregivers. Further, studies that elicit unique needs of families from diverse cultures are lacking. Conclusion: Studies to date have described the impact of caregiving on the psychological and physical health in family caregivers of ICU survivors. Few studies have tested interventions to support unique needs in this population. Therefore, evidence for best strategies is lacking. Future research is needed to identify ICU caregivers at greatest risk for distress, time points to target interventions with maximal efficacy, needs of those from diverse cultures and test interventions to mitigate family caregivers' burden.

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Impact of a Disease Management Program Upon Caregivers of Chronically Critically Ill Patients

Cited by 91 publications

References 30 publications

Care Burden and Quality of Life Among the Caregivers of Patients with COPD

Care Burden and Quality of Life Among the Caregivers of Patients with COPD

Ansiedad entre cuidadores de pacientes con Enfermedad Pulmonar Obstructiva Crónica tras el alta hospitalaria

Psychological and Physical Health in Family Caregivers of Intensive Care Unit Survivors: Current Knowledge and Future Research Strategies

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