Impact of social support for mothers as caregivers of cerebral palsy children in Japan

Moriwaki, Mutsuko; Yuasa, Hitomi; Kakehashi, Masayuki; Suzuki, Hideaki; Kobayashi, Yasuki

doi:10.1016/j.pedn.2021.10.010

Cited by 11 publications

(10 citation statements)

References 33 publications

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“…. So mothers of children with CP need more specific training to take care of their children and improving their quality of life (Moriwaki et al, 2022). As revealed by the current study result, most of the studied mothers had inadequate overall reported practices regarding care of their children with cerebral palsy in pre intervention phase.…”

Section: Table (4)mentioning

confidence: 64%

Effect of an Educational Program about Cerebral Palsy Management on Mothers' Performance

ahmed

Khalil

zeid

2023

Port Said Scientific Journal of Nursing

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Aim: The study aimed to evaluate the effect of an educational program about cerebral palsy management on mothers' performance. Design: A quasi-experimental research design was used in conducting this study. Subjects: A consecutive sampling consisted of 50 mothers that were attending to physiotherapy clinic at genetic counseling center in Port Said city. Setting: The study was conducted in physiotherapy clinic at genetic counseling center in Port Said city. Tools of data collection: The data was collected by self-administer questionnaire, Mothers reported practices regarding care of their children. Results: Increased total knowledge of mothers to 94% in post intervention phase, while declined to 54% at follow up phase. Also improvement in the overall practices of the studied mothers throughout the program phases. Conclusion: Both the mothers' total knowledge score and their overall reported practices increased once the program was implemented. Recommendations: Continuous health education and counseling programs for mothers on the problems associated with cerebral palsy and how to dealing with it should be provided.

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Section: Table (4)mentioning

confidence: 64%

Effect of an Educational Program about Cerebral Palsy Management on Mothers' Performance

ahmed

Khalil

zeid

2023

Port Said Scientific Journal of Nursing

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“…Caregiver factors were grouped into five categories, including caregiver demographics, emotional functioning, physical functioning, overall health and social functioning. Caregiver demographical factors included age, 8 12 14 15 21 23 gender, 21 educational level, 14 15 21 23 monthly income, 14 15 21 23 number of caregiver, 15 socioeconomic status, 21 geographical area, 23 mother employment, 19 additional helper 14 and daily caring time. 12 Emotional functioning factors included anxiety, 15 20 24 depression, 12 14 15 17 20 22 24 mental health, 12 22 25 26 perceived stress, 20 26 beliefs of rehabilitation, 8 perceived self-efficacy 8 17 and experiential avoidance.…”

Section: Resultsmentioning

confidence: 99%

“…Children factors were grouped into five categories, including children demographics, disease related, behavioural functioning, overall health and social environment. Children demographical factors included age, 8 12 14 15 21 23 gender, 14 15 21 23 going to nursery/school, 19 residence, 19 birth order, 21 number of children, 14 15 23 number of disabled child 15 and body mass index. 12 Disease-related factors included type of CP, 21 23 severity of CP, 12 14 17 21 tube/intravenous nutrition, 19 aetiology, 21 additional physical illness, 14 associated conditions 21 23 and functional impairments.…”

Section: Resultsmentioning

confidence: 99%

“…Children demographical factors included age, 8 12 14 15 21 23 gender, 14 15 21 23 going to nursery/school, 19 residence, 19 birth order, 21 number of children, 14 15 23 number of disabled child 15 and body mass index. 12 Disease-related factors included type of CP, 21 23 severity of CP, 12 14 17 21 tube/intravenous nutrition, 19 aetiology, 21 additional physical illness, 14 associated conditions 21 23 and functional impairments. 23 This category was included in 5 of the 15 studies.…”

Section: Resultsmentioning

confidence: 99%

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Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review

et al. 2023

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ObjectivesTo identify caregiver and children factors associated with caregiver burden on primary caregivers of children with cerebral palsy (CP).DesignSystematic reviewData sourcesSeven electronic databases, including PubMed, Cochrane Library, Scopus, PsycINFO, Web of Science, CINAHL and Embase, were systematically searched up to 1 February 2023.Eligibility criteriaOriginal observational studies reporting caregiver burden and related factors among caregivers of children with CP.Data abstraction and synthesisTwo reviewers independently screened results and assessed the quality of studies. Title, abstract, full-text screening and data abstraction were done independently by two reviewers. Risk of bias was assessed using the JBI Critical Appraisal Checklist for Analytical Cross-Sectional Studies. The quality of evidence for factors was rated using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) approach.Results16 articles were included in the review. All studies were cross-sectional and examined caregiver-reported burden measures. The Zarit Burden Interview was the most commonly used questionnaire. Depression of caregiver and severity of illness in children with CP were moderate quality of evidence for factors contributing to caregiver burden.ConclusionsHigher caregiver burden is associated with more depressive feelings and worse life quality of the caregiver, and with more severe physical disability of the children. Future studies should focus on high-quality longitudinal research and appropriate assistance to reduce caregiver burden and improve the quality of caregiving for children with CP.PROSPERO registration numberCRD42021268284.

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“…While both parents are impacted by caring for CMC, the literature suggests caregiving at home impacts psychosocial and physical health of the primary caregiver [4]. In a cross-cultural study, Krulik et al found that mothers of young children with chronic illness experienced more problems with attachment, depression, a lowered sense of competence, social isolation, and problems with their spouses compared to mothers of children without chronic illness [5].…”

Section: Caring For Children With Medical Complexitymentioning

confidence: 99%

“The gender gap in caring for children with medical complexity”

Werner

2023

J Perinatol

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Impact of social support for mothers as caregivers of cerebral palsy children in Japan

Cited by 11 publications

References 33 publications

Effect of an Educational Program about Cerebral Palsy Management on Mothers' Performance

Effect of an Educational Program about Cerebral Palsy Management on Mothers' Performance

Factors associated with caregiver burden among family caregivers of children with cerebral palsy: a systematic review

“The gender gap in caring for children with medical complexity”

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