Importance and satisfaction ratings on 38 key employment concerns among African American women with multiple sclerosis

Rumrill, Phillip D.; Wu, Rongxiu; Goldstein, Penina; Adams, Chithra; Sheppard-Jones, Kathleen; Lee, Beatrice; Bishop, Malachy; Tansey, Timothy N.; Minton, Deborah; Leslie, Mykal

doi:10.3233/jvr-191068

Cited by 4 publications

(7 citation statements)

References 32 publications

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“…These variables are largely missing in studies from European countries with substantial minority populations. In line with what Rumrill et al 39 point out, people with MS from minority groups might be exposed to greater risks of discrimination and barriers.…”

Section: Discussionsupporting

confidence: 67%

“… 35 Several studies showed that the employment rates were low for non-Caucasian Americans with MS. Hispanics, Afro-Americans, and Afro-American women with MS all had low levels of employment in the US. 35 , 38 , 39 In a recent American study on work loss due to the Covid-19 pandemic, it was found that non-Caucasian persons with MS reported work loss to a higher extent than those identifying as white. 33 …”

Section: Resultsmentioning

confidence: 99%

“… 38 An American survey study on employment states that African American women with MS are a group that has been given very little attention. 39 Ethnic discrimination in the labor market has been documented among the general population as well. 106 Rumrill et al 39 point out that African American women may be exposed to a triple disadvantage, considering gender, ethnicity, and their impairment.…”

Section: Discussionmentioning

confidence: 99%

“… 39 Ethnic discrimination in the labor market has been documented among the general population as well. 106 Rumrill et al 39 point out that African American women may be exposed to a triple disadvantage, considering gender, ethnicity, and their impairment. It is concluded that further research is needed.…”

Section: Discussionmentioning

confidence: 99%

“…It is concluded that further research is needed. 39 An interactive effect of different variables – eg gender, age, ethnicity, and impairment – has been shown to be significant, with a higher risk of experiencing discrimination in relation to employment 107 and a greater risk of living in poverty 108 in studies including persons with different impairments.…”

Section: Discussionmentioning

confidence: 99%

See 4 more Smart Citations

Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability

Ståhl¹,

Bjereld²,

Dunér³

2022

JMDH

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Multiple sclerosis (MS) is a chronic neurological disease with an increasing prevalence. As such, most studies are devoted to various medical aspects of the disease. The theoretical framework used in this scoping review was the social model of disability – a perspective focusing on environmental barriers and discrimination that disabled people face in society. The aim was to explore previous research on disabling barriers and discrimination against persons with MS, and to identify research gaps in connection with this population. The scoping review was performed in two steps: (1) a main search in 8 databases, followed by (2) citation and reference searches. The final sample consisted of 96 included articles. The result showed that most studies had been conducted in the US, and the dominant area of research was employment discrimination. Previous research has studied MS related to various areas, such as employment, social welfare and social services, transportation, housing and accessibility of public places, health services, and in relation to others within society. However, this scoping review showed that although several areas of disability and MS had been included in the previous research, most of the identified areas were researched in few studies without the possibility to generalize the findings to a larger population or a cross-cultural context. Few studies compared differences between persons with MS based on gender, age, and ethnicity. What impact the invisible symptoms of MS had on disability was also researched to a limited extent. The findings have implications for future research and clinical practice. To better understand living conditions for persons with MS from a global perspective, more research across countries is needed. Healthcare professionals need to assess the individual’s situation regarding both symptoms of the disease and the impact of societal barriers and discrimination to optimize care of persons with MS.

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Section: Discussionsupporting

confidence: 67%

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 3 more Smart Citations

Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability

Ståhl¹,

Bjereld²,

Dunér³

2022

JMDH

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Subjective well-being of adults with multiple sclerosis during COVID-19: Evaluating stress–appraisal–coping and person–environment factors.

Iwanaga¹,

Chan²,

Rumrill³

et al. 2023

Rehabilitation Psychology

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Background: People with multiple sclerosis (MS) have been coping with high levels of stress during the ongoing coronavirus pandemic, affecting their employment, physical, and mental health, and overall life satisfaction. Objective: This study evaluated constructs of the stress-appraisal-coping theory and positive person-environment factors as predictors of subjective well-being for adults with MS. Method: Participants included 477 adults with MS recruited through the National Multiple Sclerosis Society. Hierarchical regression analysis was used to determine the incremental variance in subjective well-being accounted for by demographic covariates, functional disability, perceived stress, stress appraisal, coping styles, and positive person-environment contextual factors. Results: Positive stress appraisal and coping flexibility were significantly associated with subjective well-being at the bivariate correlation level and at the step they were entered into the regression model. Marital status, household income, functional disability, perceived stress, hope, core self-evaluations, and social support were significant predictors in the final model, accounting for 60% of the variance in subjective well-being scores (R 2 = .60, f 2 = 1.48; large effect size). Conclusions: Findings from this study support a stress management and well-being model based on constructs of Lazarus and Folkman's stress-appraisal-coping theory and positive person-environment contextual factors, which can inform the development of theory-driven and empirically supported stress management and wellbeing interventions for people with MS during the ongoing global health crisis. Impact and ImplicationsThe coronavirus disease 2019 (COVID-19) has significantly disrupted the lives of people around the world and disproportionately affected the disability community, including people with multiple sclerosis (MS). In addition to managing stressors and challenges associated with chronic disease, people with MS must also cope with high levels of stress and anxiety during the ongoing pandemic, which can acutely affect their physical health, mental health, and life satisfaction. Therefore, effective stress management and well-being interventions that can be provided remotely, in person, and blended are needed to help individuals with MS manage disease complications and stress levels. This study evaluated constructs of the stress-appraisal-coping theory and positive person-environment contextual factors as predictors of subjective well-being in adults with MS. Findings suggested that positive personality traits and supportive environments may play a role as protective factors against perceived stress and facilitate subjective well-being. Importantly, findings of this study can be used to guide the development of theory-driven and empirically supported stress management, health promotion, and psychological interventions for people with MS during and beyond the COVID-19 pandemic.

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Psychometric validation of the Patient-Reported Outcomes Measurement Information System Global Health Scale for people with multiple sclerosis.

Chan,

Iwanaga,

et al. 2024

Rehabilitation Psychology

View full text Add to dashboard Cite

Importance and satisfaction ratings on 38 key employment concerns among African American women with multiple sclerosis

Cited by 4 publications

References 32 publications

Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability

Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability

Subjective well-being of adults with multiple sclerosis during COVID-19: Evaluating stress–appraisal–coping and person–environment factors.

Psychometric validation of the Patient-Reported Outcomes Measurement Information System Global Health Scale for people with multiple sclerosis.

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