Important Research Priorities in Intellectual Disability in India: A Public Health Perspective

Lakhan, Ram; Ekúndayò, Olúgbémiga T.

doi:10.4103/jnrp.jnrp_102_17

Cited by 5 publications

(6 citation statements)

References 15 publications

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“…Data on health-related challenges and use of health services is not available readily. Hence there is an urgent need to apply public health intervention to map and prevent diseases among persons with ID (Lakhan & Ekundayo, 2017) as well as approaches to health promotion must be strengthened. Also, the research focusing on healthcare needs of such people lacks significance and such research works should be encouraged.…”

Section: Discussionmentioning

confidence: 99%

“…An unpublished report of Special Olympics Bharat (SOB), through a large‐scale health screening in India, it has been found that persons with intellectual disability are at increased risk of secondary health issues: 35% have untreated tooth decay; 15% have an eye disease; 35% have low bone density; 21% fail hearing tests; and 60% have at least one kind of skin or nail condition (SOB, 2021). Also, people with ID suffer from a higher burden of behaviour problems (Kishore et al, 2004) with a possibility of having psychiatric comorbidity among the people having intellectual disability (Lakhan & Ekundayo, 2017).…”

Section: Health Challenges Among Persons With Idd In Indiamentioning

confidence: 99%

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Health care for persons with intellectual and developmental disabilities in India

Mishra,

Narayan

2024

Policy Practice Intel Disabi

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Legislations for persons with disabilities emerged in the 1990s in India, providing them with rights and entitlements. Aligned with the UNCRPD, the Rights of Persons with Disabilities Act (2016) supports improved programmes and services. There are no exclusive policies for those with intellectual and developmental disabilities. Different government departments and non‐government organisations provide services including centrally sponsored programmes to persons with disabilities and enable them to exercise their rights. For example, rehabilitation and provision of aids and appliances lie with the Ministry of Social Justice and Empowerment, right to education is with the Ministry of Education, and, early intervention and health services and related supports are with the Ministry of Health. In India, non‐government organisations also play a vital role in health care services. In this paper, we discuss the existing health care systems including medical services in India for persons with disabilities with a specific focus on persons with intellectual and developmental disabilities. The discussion include how the system was evolved and what is in place today, the coverage, strengths, and limitations in the system. We have tried to provide a comprehensive description of existing policies, and practices of health care as well as the cultural influences with regard to health care for people with intellectual and developmental disabilities in India.

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Section: Discussionmentioning

confidence: 99%

Section: Health Challenges Among Persons With Idd In Indiamentioning

confidence: 99%

Health care for persons with intellectual and developmental disabilities in India

Mishra,

Narayan

2024

Policy Practice Intel Disabi

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“…The tradition of positivistic research that has dominated the field of inquiry in disability and rehabilitation in India has made a significant contribution to knowledge and understanding and will continue to do so in the future (Lakhan & Ekúndayò, 2017). However, the authors of the current study contend that as progress from a medico-deficit model of disability to a social model that promotes equity and inclusion continues, it will be important for researchers to provide data that relates immediately to the work of practitioners and the support provided by families and carers.…”

Section: Discussionmentioning

confidence: 99%

Training in Qualitative Research Methods for Professionals working with Persons with Disabilities

Rose

Das

Narayan

et al. 2021

DCID

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Purpose:The study aimed to investigate the impact of intensive in-service training in qualitative research methods on the research competencies of a cohort of rehabilitation professionals.Method: A series of three-day workshops was held on professional development in the promotion and utilisation of qualitative research in the field of disability and rehabilitation. It was organised at five centres across India for professionals working in that field. Data was collected through a survey of workshop participants, to ascertain the impact and efficacy of the training provided. Results:The results suggest that practitioners working in the area of disability and rehabilitation see considerable value in the application of qualitative research and are enthusiastic about its potential to improve the lives of those with whom they work. They believe that such an approach will provide useful data and increased knowledge in respect of the lives of individuals with disabilities and those interventions that provide them with greatest benefits. The survey revealed that the knowledge of qualitative research methods was limited even among professionals who had studied for research degrees. Conclusion:There is the need for more intensive training in qualitative methods in order to enhance the quality of research in disability and rehabilitation in India, and to assist in improving the lives of individuals with disabilities, their families, carers and those who work with them.

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“…However, not much literature is available on the special needs of PIDs now that they have higher life expectancy. 38 This poses an enormous challenge for physicians and mental health professionals dealing with older PIDs, since the practice is not informed by robust scientific evidence.…”

Section: Identification and Management Of Comorbiditiesmentioning

confidence: 99%

Addressing the Visible and Invisible Gaps and Challenges in the Diagnosis and Management of Intellectual Disability

Arun

Mahajan

2023

Journal of Indian Association for Child and Adolescent Mental H

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Intellectual disability (ID) can be caused by various environmental and genetic factors and can lead to significant disability. There are numerous challenges in the field in terms of diagnosis and management. In this article, we have reviewed the literature in this field. A dependable estimate of the prevalence in India still remains to be made. Preventive measures and screening play an important role. The country could greatly benefit from a national newborn screening program, presence of more trained professionals, and public awareness measures. Drug treatments spanning beyond the usual drug classes have not yet found a breakthrough. Persons with ID face many challenges in the field of education, disability certification, access to government schemes, job placements, and living arrangements. We must take cognizance of these challenges at the earliest and work toward rectifying them.

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Important Research Priorities in Intellectual Disability in India: A Public Health Perspective

Cited by 5 publications

References 15 publications

Health care for persons with intellectual and developmental disabilities in India

Health care for persons with intellectual and developmental disabilities in India

Training in Qualitative Research Methods for Professionals working with Persons with Disabilities

Addressing the Visible and Invisible Gaps and Challenges in the Diagnosis and Management of Intellectual Disability

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