Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program

Held, Suzanne; Hallett, John; Schure, Mark; Allen, Sarah M.; Milne‐Price, Shauna; Trottier, Coleen; Shows, Brianna Bull; Inouye, Jillian

doi:10.1016/j.socscimed.2019.112583

Cited by 8 publications

(14 citation statements)

References 39 publications

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“…Most importantly, participants had the opportunity to restore their relationships or kinship bonds rooted in their ancestral history. Additional details about program content and approach can be found at Held et al, (2019) and Schure et al (2020).…”

Section: Resultsmentioning

confidence: 99%

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Developing an Indigenous goal-setting tool: Counting Coup

Dáakuash

Birdhat-Howe

Keene

et al. 2020

TIJIH

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Chronic illness self-management best practices include goal-setting as an important tool for developing better self-management habits and are often included as elements of chronic disease self-management interventions. However, the goal theory that many of these tools employ relies on individualistic principles of self-efficacy that are not culturally consonant within many Indigenous communities. During the creation of the [blinded] program, a chronic illness management intervention, we developed a goal-setting tool specific to the [blinded] Nation. Emerging from an Indigenous paradigm and methodology, Counting Coup serves as a goal-setting tool that promotes the [blinded] culture, connects individuals with their ancestors, and focuses on achievement of goals within relationships. Future research and practice should be grounded in the historical and cultural contexts of their communities when designing and implementing goal-setting tools. Limitations to Counting Coup as a goal-setting tool include the need for program facilitators to have a relationship with participants due to Counting Coup’s foundation in relational accountability and that the environmental context may pose difficulties for participants in moving towards behavior change.

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Section: Resultsmentioning

confidence: 99%

“…Community members who are doing well managing their chronic illness facilitate seven gatherings with ten community members who are interested in learning to better manage their chronic illnesses. The content and approach for each of the gatherings arose from data analysis discussions (Held, et al, 2019;Schure, et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

Developing an Indigenous goal-setting tool: Counting Coup

Dáakuash

Birdhat-Howe

Keene

et al. 2020

TIJIH

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“…In an effort to mitigate the legacy of colonial discourse in the academy, research partners of Indigenous communities have progressively called for decolonizing research by placing Indigenous voices, epistemologies, and cultural contexts at the center of the research process (Battiste, 2000; Dickerson et al, 2020; Held et al, 2019; L. T. Smith, 2012; Swadener & Mutua, 2008).…”

Section: Discussionmentioning

confidence: 99%

“…T. Smith, 2012; Swadener & Mutua, 2008). Integrating Indigenous ways of knowing and Western research methods may be critical in eliminating health disparities among Indigenous peoples (Cochran et al, 2008; Held et al, 2019; Simonds & Christopher, 2013) as is the sovereignty of Indigenous communities to supervise the research at all times (Martin, 2008). IST offers a salient theoretical framework for social science research on AI health when combined with a “culturally-safe” (Brascoupé & Waters, 2009, p. 6) strength-based collaborative research methodology that involve years of developing trust and commitments to partnership.…”

Section: Discussionmentioning

confidence: 99%

“…While examining the need for an Indigenous epistemological approach in Australia, Foley (2003) outlines features he deems necessary for IST, including (1) the practitioner must be Indigenous, as should any research supervisors; (2) the practitioner should be well versed in various forms of social theory; (3) any knowledge gained from the research should benefit the Indigenous community, and this knowledge or data is owned by the participants; and (4) if possible, traditional Indigenous language should be used. We acknowledge the importance of including Indigenous researchers and supervisors to any research project with Indigenous communities but argue that social science research on health can include both Indigenous and non-Indigenous peoples working in partnership toward the mitigation of complex health disparities as long as certain ethical principles are followed, such as the principles inherent in community-based participatory research (CBPR) (Wallerstein et al, 2018), or taking such tactics as culturally consonant data analysis methodologies developed in locally based Indigenous conceptual frameworks like relationality (Held et al, 2019).…”

Section: Ist and Western Knowledge Claimsmentioning

confidence: 99%

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Indigenous standpoint theory as a theoretical framework for decolonizing social science health research with American Indian communities

Cox

Firemoon

Anastario

et al. 2021

AlterNative: An International Journal of Indigenous Peoples

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Theoretical frameworks rooted in Western knowledge claims utilized for public health research in the social sciences are not inclusive of American Indian communities. Developed by Indigenous researchers, Indigenous standpoint theory builds from and moves beyond Western theoretical frameworks. We argue that using Indigenous standpoint theory in partnership with American Indian communities works to decolonize research related to American Indian health in the social sciences and combats the effects of colonization in three ways. First, Indigenous standpoint theory aids in interpreting how the intersections unique to American Indians including the effects of colonization, tribal and other identities, and cultural context are linked to structural inequalities for American Indian communities. Second, Indigenous standpoint theory integrates Indigenous ways of knowing with Western research orientations and methodologies in a collaborative process that works to decolonize social science research for American Indians. Third, Indigenous standpoint theory promotes direct application of research benefits to American Indian communities.

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Community sharing: Contextualizing Western research notions of contamination within an Indigenous research paradigm

Allen

Held

Milne‐Price

et al. 2021

American J of Comm Psychol

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Báa nnilah is a chronic illness self‐management program designed by and for the Apsáalooke (Crow) community. Arising from a collaboration between an Indigenous nonprofit organization and a university‐based research team, Báa nnilah's development, implementation, and evaluation have been influenced by both Indigenous and Western research paradigms (WRPs). Báa nnilah was evaluated using a randomized wait‐list control group design. In a WRP, contamination, or intervention information shared by the intervention group with the control group, is actively discouraged as it makes ascertaining causality difficult, if not impossible. This approach is not consonant with Apsáalooke cultural values that include the encouragement of sharing helpful information with others, supporting an Indigenous research paradigm's (IRP) goal of benefiting the community. The purpose of this paper is to address contamination and sharing as an area of tension between WRP and IRP. We describe how the concepts of contamination and sharing within Báa nnilah's implementation and evaluation are interpreted differently when viewed from these contrasting paradigms, and set forth a call for greater exploration of Indigenous research approaches for developing, implementing, and evaluating intervention programs in Indigenous communities. (Improving Chronic Illness Management with the Apsáalooke Nation: The Báa nnilah Project.: NCT03036189), ClinicalTrials. gov: NCT03036189).

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Improving chronic illness self-management with the Apsáalooke Nation: Development of the Báa nnilah program

Cited by 8 publications

References 39 publications

Developing an Indigenous goal-setting tool: Counting Coup

Developing an Indigenous goal-setting tool: Counting Coup

Indigenous standpoint theory as a theoretical framework for decolonizing social science health research with American Indian communities

Community sharing: Contextualizing Western research notions of contamination within an Indigenous research paradigm

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