Community-based participatory research and decolonizing research share
some recommendations for best practices for conducting research. One commonality
is partnering on all stages of research; co-developing methods of data analysis
is one stage with a deficit of partnering examples. We present a novel
community-based and developed method for analyzing qualitative data within an
Indigenous health study and explain incompatibilities of existing methods for
our purposes and community needs. We describe how we explored available
literature, received counsel from community Elders and experts in the field, and
collaboratively developed a data analysis method consonant with community
values. The method of analysis, in which interview/story remained intact, team
members received story, made meaning through discussion, and generated a
conceptual framework to inform intervention development, is detailed. We offer
the development process and method as an example for researchers working with
communities who want to keep stories intact during qualitative data
analysis.
The purpose of this research was to gain a better understanding of perceptions about the impact of historical and current loss on Apsáalooke (Crow) people acquiring and coping with chronic illness. This study took a qualitative phenomenological approach by interviewing community members with chronic illness in order to gain insight into their perceptions and experiences. Participants emphasized 10 areas of impact of historical and current loss: the link between mental health and physical health/health behaviors; resiliency and strengths; connection and isolation; importance of language and language loss; changes in cultural knowledge and practices; diet; grieving; racism and discrimination; changes in land use and ownership; and boarding schools. The findings from this research are being used to develop a chronic illness self-care management program for Crow people.
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