Improving Management of Patients With Autism Spectrum Disorder Having Scheduled Surgery: Optimizing Practice

Thompson, Debbie Gearner; Goddard, Anna

doi:10.1016/j.pedhc.2013.09.007

Cited by 39 publications

(55 citation statements)

References 13 publications

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“…Extrapolation suggests attention to individualisation may also smooth perioperative transitions. Souders et al 14 and Thompson and Tielsch-Goddard8 both used the severity of ASD to inform individualisation of perioperative intervention. Thompson and Tielsch-Goddard's8 quality improvement project for surgical admissions of children with ASD provides a template for individualisation of care.…”

Section: Discussionmentioning

confidence: 99%

“…Souders et al 14 and Thompson and Tielsch-Goddard8 both used the severity of ASD to inform individualisation of perioperative intervention. Thompson and Tielsch-Goddard's8 quality improvement project for surgical admissions of children with ASD provides a template for individualisation of care. In Thompson's follow-up interviews, parents stated their appreciation of the individualised care and nurses reported their increased satisfaction in caring for patients with ASD when additional attention is given to preventive stress management by inclusion of parents' and children's detailed knowledge of the unique needs.…”

Section: Discussionmentioning

confidence: 99%

“…Thompson and Tielsch-Goddard8 underlined the significance of better communication of individualised needs, pragmatic assessment of communication strategies and sensory differences unique to each individual and learning from parents, allowing their accumulated wisdom to guide interventions. To facilitate transmission of usable information gathered from caregivers, Thompson’s group developed a ‘Hand-off Communication Tool’ that was available to every member of the perioperative team to provide awareness of specific needs, and also to allow information to be added in real-time about staff interventions and patient responses.…”

Section: Discussionmentioning

confidence: 99%

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Interventions for paediatric surgery patients with comorbid autism spectrum disorder: a systematic literature review

2016

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Aims To survey perioperative management practices for paediatric patients diagnosed with autism spectrum disorder (ASD). Methods A systematic review was carried out of empirical studies and case reports published in peerreviewed journals of current best practices and behavioural interventions for paediatric patients with ASD who had undergone surgery. Results The final sample included 11 articles published between 1997 and 2016 that met broad inclusion criteria of surveying perioperative interventions for the ASD population. There is broad endorsement across the scant publications on this topic of the following practices: increased attention to individual patient needs, rehearsal and other desensitisation efforts, departure from a sole focus on sedation or restraint of the combative or uncooperative patient and engaging caregivers in tuning perioperative management to individual needs. Conclusions This review supports the need for an individualised structure and approach to the perioperative care of these unique patients.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Interventions for paediatric surgery patients with comorbid autism spectrum disorder: a systematic literature review

2016

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“…In such circumstances, parents felt they were positively accommodated and "received by warm hands" when they had the opportunity to provide information about the child's specific routines and needs to the treating nurses (17). However, this cannot be taken to an extreme; it is important to refrain from allocating full responsibility for the child's care onto the parents, as this can be unnecessarily burdensome and unwanted (17,33,34). A good interaction between the nurse and the family has been shown to result in successful care for children with ASD (24).…”

Section: Discussionmentioning

confidence: 99%

“…In essence, there are multiple means to administer a calm anesthesia induction. This would help to prevent noncompliant behavior from the child (17,33,34). Davignon et al (2014) found that alterations in the organization and administration of healthcare services is essential for the successful care of children with ASD (24).…”

Section: Discussionmentioning

confidence: 99%

Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Berglund

Huus

Enskär

et al. 2016

J Dev Behav Pediatr

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Perioperative and anesthesia guidelines for children with autism: A nationwide survey from Sweden. Developmental and Behavioral Pediatrics, 37(6) The overall aim of this study was to describe the current set of guidelines for the preparation and care for children with Autism spectrum disorder (ASD) in the perioperative setting across Sweden and explore the content of these guidelines in detail. Method: An online questionnaire was distributed to the chairpersons of all anesthesia departments (n= 68) and pediatric departments (n= 38) throughout Sweden. Follow-up phone calls were made to those departments that did not return the questionnaire. The presence of guidelines was analyzed via descriptive statistics. These guidelines and comments on routines used in these departments were analyzed inspired by conventional content analysis. Results: Seven out of the 68 anesthesia departments and none out of the 38 pediatric departments across Sweden have guidelines for preparing and/or administering care to children with ASD within the perioperative setting. From the guidelines and routines used, 3 categories emerge: "lacking the necessary conditions," "no extra considerations needed" and "care with specific consideration for children with ASD." These 3 categories span a continuum in the care. In the first category, the anesthesia induction could result in the child with ASD being physically restrained. In the last category, the entire encounter with the health care service would be adapted to the specific needs of the child. Conclusion: There is a lack of evidence-based guidelines specifically designed to meet the needs of children with ASD in the preoperative period in Sweden. Further research is needed to understand if children with ASD would benefit from evidence-based guidelines. Journal of

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Bariatric Surgery in Children and Adolescents with Cognitive Impairment and/or Developmental Delay: Current Knowledge and Clinical Recommendations

2019

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Improving Management of Patients With Autism Spectrum Disorder Having Scheduled Surgery: Optimizing Practice

Cited by 39 publications

References 13 publications

Interventions for paediatric surgery patients with comorbid autism spectrum disorder: a systematic literature review

Interventions for paediatric surgery patients with comorbid autism spectrum disorder: a systematic literature review

Perioperative and Anesthesia Guidelines for Children with Autism: A Nationwide Survey from Sweden

Bariatric Surgery in Children and Adolescents with Cognitive Impairment and/or Developmental Delay: Current Knowledge and Clinical Recommendations

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