2023
DOI: 10.1097/anc.0000000000001061
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Inclusion of Spanish-Speaking Families in NICU Symptom Research Using a Community Advisory Board

Abstract: Background: Admission rates of Hispanic/Latinx families to the neonatal intensive care unit (NICU) are rising, yet knowledge regarding their experiences is limited. Non-English-speaking families are often excluded from research because study measures are not available in their language. The inclusion of these families in NICU research is crucial to understand the impact of cultural and language barriers in infant and family care, and the translation of study measures into Spanish could better ensure that these… Show more

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Cited by 2 publications
(8 citation statements)
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“…Race and ethnicity were combined into one category per recommendation from the CAB because some Hispanic/Latinx families consider this classification to be their race and struggle to comfortably provide a response when race and ethnicity are separate. 16 Decision-making and Goals of Care Questionnaire. Because there is no validated measure for decision-making in the NICU, this 28-item instrument was developed by the research team (1 nurse scientist and 2 psychologists) for use in a previous study with English-speaking participants based on the literature and expert input.…”
Section: Methodsmentioning
confidence: 99%
See 4 more Smart Citations
“…Race and ethnicity were combined into one category per recommendation from the CAB because some Hispanic/Latinx families consider this classification to be their race and struggle to comfortably provide a response when race and ethnicity are separate. 16 Decision-making and Goals of Care Questionnaire. Because there is no validated measure for decision-making in the NICU, this 28-item instrument was developed by the research team (1 nurse scientist and 2 psychologists) for use in a previous study with English-speaking participants based on the literature and expert input.…”
Section: Methodsmentioning
confidence: 99%
“…This questionnaire had reasonable reliability (Cronbach α mother = 0.74 and Cronbach α father = 0.90) and is reported fully elsewhere. 16 In the current study, parents were asked about the presence of each of the 6 symptoms and if treatment had been received for the symptom (yes/no) and then ranked on a Likert scale regarding the severity, frequency, how much the symptom bothered the infant, and how much the symptom distressed the parent for each of the symptoms that were indicated by the parent as being present. Infant suffering and QOL were also rated on a 5-point Likert scale.…”
Section: Methodsmentioning
confidence: 99%
See 3 more Smart Citations