Indigenous access to cataract surgery: an assessment of the barriers and solutions within the Australian health system

Boudville, Andrea I; Anjou, Mitchell D; Taylor, Hugh R.

doi:10.1111/j.1442-9071.2012.02840.x

Cited by 19 publications

(36 citation statements)

References 12 publications

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“…Similar results have been found in the United States, 33 where 63% of subjects had undetected eye disease; insurance coverage (cost) was also a factor associated with poor access to care. Findings from other studies [34][35][36] agree that education, lack of knowledge that a problem exists, cost, fear, fatalism, ageism, and the ability to cope were also important barriers.…”

mentioning

confidence: 73%

Cataract Blindness

Robin¹,

Ravilla²

2012

Arch Ophthalmol

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mentioning

confidence: 73%

Cataract Blindness

Robin¹,

Ravilla²

2012

Arch Ophthalmol

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“…Although the data analyzed for this report did not allow us to quantify access to or acceptance of medical care, others have found many barriers to Aboriginal people receiving optimal medical and surgical care for chronic diseases, related to healthcare systems, remoteness, and cultural factors. 22,23 In the case of RHD, there is the added complication that cardiac surgery is not available in the NT, so surgical intervention involves travel to cities many thousands of kilometers away. If outcomes for RHD are to be improved in similar settings, healthcare services must improve the capacity of the health workforce, the availability of specialist care, the systems for delivering care to patients with complex, chronic diseases, and the mechanisms to address cultural impediments to uptake of Western medical care.…”

Section: Discussionmentioning

confidence: 99%

Acute Rheumatic Fever and Rheumatic Heart Disease

et al. 2013

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Background-Although acute rheumatic fever (ARF) and its sequel, rheumatic heart disease (RHD), continue to cause a large burden of morbidity and mortality in disadvantaged populations, most studies investigating the effectiveness of control programs date from the 1950s. A control program, including a disease register, in the Northern Territory of Australia where the Indigenous population has high rates of ARF and RHD allowed us to examine current disease incidence and progression. Methods and Results-ARF and RHD incidence rates, ARF recurrence rates, progression rates from ARF to RHD to heart failure, and RHD survival and mortality rates were calculated for Northern Territory residents from 1997 to 2010. For Indigenous people, ARF incidence was highest in the 5-to 14-year age group (males, 162 per 100 000; females, 228 per 100 000). There was little evidence that the incidence of ARF or RHD had declined. The ARF recurrence rate declined by 9% per year after diagnosis. After a first ARF diagnosis, 61% developed RHD within 10 years. After RHD diagnosis, 27% developed heart failure within 5 years. For Indigenous RHD patients, the relative survival rate was 88.4% at 10 years after diagnosis and the standardized mortality ratio was 1.56 (95% confidence interval, 1.23-1.96). Conclusions-For Indigenous Australians in the Northern Territory, ARF and RHD incidence and associated mortality remain very high. The reduction in ARF recurrence indicates that the RHD control program has improved secondary prophylaxis; a decline in RHD incidence is expected to follow. (Circulation. 2013;128:492-501.)

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“…Providers of non‐clinical support are both health system‐based (clinicians, coordinators, administrators), and community‐based (Elders, family, school staff). We found that patient liaison and case management is central to the coordination of eye care services, particularly given patient distrust and fear of cataract surgery . A key finding was the prominent role of eye health coordinators in providing these types of non‐clinical support.…”

Section: Discussionmentioning

confidence: 94%

“…27,30 Secondary and tertiary eye care coordination included organising and facilitating surgery attendance, booking travel and accommodation for ophthalmic care, and ensuring appropriate follow-up care. 38,41 Key providers of eye care coordination and associated support included eye health coordinators, 11,12,[24][25][26]30,34,35,40,41 Aboriginal Health Workers (AHWs), 23,25,27,34 primary health care staff, 34,38,41 and community liaison staff. 12,23 One study reported that support provided by regional eye health coordinators was intended to cover multiple communities, but in practice was delivered only to the communities where the coordinators resided.…”

Section: Coordination Of Carementioning

confidence: 99%

“…27 The need for a central trachoma coordinator in the Northern Territory was suggested in one study, but the lack of sustainable funding for such a role was a barrier. 24 Administrative functions, such as clerical support for visiting eye care practitioners, 11,25 and case management, including organising eye care appointments for patients, 34 were identified as cost-effective enablers of improved outcomes for patients undergoing cataract surgery. Cultivating patient engagement with eye care was noted as a central component of coordination, with several studies identifying that contacting and counselling patients, reminding them about appointments, and community outreach were enablers of patient attendance at ophthalmic outreach clinics 38 and cataract surgery.…”

Section: Coordination Of Carementioning

confidence: 99%

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Non‐clinical eye care support for Aboriginal and Torres Strait Islander Australians: a systematic review

Yashadhana

Lee

Massie

et al. 2020

Medical Journal of Australia

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Objectives To describe research into non‐clinical support eye health care for Aboriginal and Torres Strait Islander (Indigenous) Australians, the people who provide such care, and its impact on eye health outcomes. Study design Systematic review and qualitative analysis of peer‐reviewed research publications. Data sources Peer‐reviewed research articles published between January 2000 and July 2018 and included in MEDLINE/EMBASE, Web of Science, Informit, EBSCO (CINAHL and Anthropology Plus), or ProQuest Central. Study selection We included English language, peer‐reviewed articles reporting empirical data on non‐clinical support for eye health for Indigenous Australians. Two authors independently assessed the titles and abstracts of 1678 unique articles for inclusion in a full text review; the full texts of 104 publications were reviewed, of which 77 were excluded and 27 included in our qualitative analysis. Data synthesis Qualitative analysis identified five key areas of non‐clinical support for Indigenous eye health: coordination of eye care, integrating and linking services, cultural support, health promotion, and social and emotional support. People who provide non‐clinical support include eye health coordinators, Aboriginal Health Workers, primary care clinicians, family members, carers, and community‐based liaison workers. The availability of non‐clinical support is associated with increased patient attendance at eye care services, higher visual acuity examination and cataract surgery rates, broader eye health knowledge, and greater cultural responsivity. Conclusion Non‐clinical support is critical for facilitating attendance at appointments by patients and ensuring that preventive, primary, and tertiary eye care services are accessible to Indigenous Australians. Greater financial investment is needed to support key providers of non‐clinical support, especially eye health coordinators, community‐based liaison officers, and family members and carers.

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Indigenous access to cataract surgery: an assessment of the barriers and solutions within the Australian health system

Cited by 19 publications

References 12 publications

Cataract Blindness

Cataract Blindness

Acute Rheumatic Fever and Rheumatic Heart Disease

Non‐clinical eye care support for Aboriginal and Torres Strait Islander Australians: a systematic review

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