Influence of adaptive behaviour on the quality of life of adults with intellectual and developmental disabilities

Balboni, Giulia; Mumbardó‐Adam, Cristina; Coscarelli, Alessandra

doi:10.1111/jar.12702

Cited by 25 publications

(9 citation statements)

References 43 publications

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“…Third, the results of this study show relationships between different predictor variables and QoL scores, but causal relationships were not established. Finally, we were unable to provide additional data on the relationship between QoL and other relevant variables, such as adaptive behavior, the presence of associated conditions, informants' demographic characteristics, parental socioeconomic status, or family factors (Bacherini et al, 2021; Balboni et al, 2020; 2021; Haddad et al, 2018; Lee, Knafl, et al, 2021; Menardo et al, 2017), which could increase the value of the explained variance. Future investigations on individual QoL in this population should therefore study the role of other variables, especially those that are susceptible to change (Shields et al, 2018; 2020) and that could act as mediating and moderating variables of QoL-related personal outcomes (Gómez, Schalock, & Verdugo, 2020).…”

Section: Discussionmentioning

confidence: 99%

Predictors of individual quality of life in young people with Down syndrome.

Morán¹,

Gómez²,

Balboni³

et al. 2022

Rehabilitation Psychology

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Purpose/Objective: Although the concept of quality of life (QoL) has become a reference framework for the provision of support and services to people with intellectual disability (ID), its conceptualization and application for persons with Down syndrome (DS) have received little attention. This study analyzed QoL outcomes in children and young people with DS and examined the influence of several individual and environmental variables on QoL. Research Method/Design: A cross-sectional study was conducted. Participants were 404 children and young people with DS aged 4 to 21 who were users of 73 organizations providing services to people with ID. The KidsLife-Down Scale was used to assess QoL-related personal outcomes perceived by professionals and relatives. Descriptive statistics were calculated. Correlation coefficients were computed and multiple regression analyses were conducted for each QoL domain and for the composite score. Results: The highest scores were obtained in material well-being, physical well-being, and rights, whereas the lowest scores were observed in self-determination and social inclusion. Multiple regression analyses showed that age, level of ID, level of support needs, degree of dependency, type of schooling, and size of organization were predicting factors of scores in QoL domains. Conclusions: This study underlines priority areas and relevant variables that must be considered when planning, implementing, and assessing supports and services to improve the QoL of children and young people with DS.

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Section: Discussionmentioning

confidence: 99%

Predictors of individual quality of life in young people with Down syndrome.

Morán¹,

Gómez²,

Balboni³

et al. 2022

Rehabilitation Psychology

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“…Children at high risk for ASD have been reported to perform lower in adaptive behavior at 20 months, 36 months, as well as in the middle of the childhood [29][30][31]. Adaptive behavior can be learned, and better adaptive skills increase the probability of the social inclusion of the individual and the improvement of his/her quality of life [32]. Therefore, it is important to determine the factors that may influence the adaptive behavior of an individual with ASD in early childhood [33].…”

Section: Discussionmentioning

confidence: 99%

Sleep Problems and 6-Sulfatoxymelatonin as Possible Predictors of Symptom Severity, Adaptive and Maladaptive Behavior in Children with Autism Spectrum Disorder

Bartakovicova

Keményová

Belica

et al. 2022

IJERPH

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In children with autism spectrum disorder (ASD), sleep disturbances are a frequent comorbidity with an adverse effect on their behavior and functioning. It was suggested that melatonin deficit is at least partly responsible for the sleep problems. The study aimed to investigate, in a sample of 56 children with ASD aged 2.8–13.3 years, if the sleep problems and melatonin secretion can serve as predictors of adaptive functioning and severity of the ASD core symptoms. We demonstrated that, after adjustment for age, the Sleep score assessed by the Children’s Sleep Habits Questionnaire predicts the Adaptive behavior composite score only in children younger than 6 years, and the preferred predictive model is for the domain Socialization. The age-adjusted Sleep score predicted Externalizing and Internalizing maladaptive behavior, with a near-zero contribution of age to the relationship between the Internalizing maladaptive behavior and Sleep score. After adjustment for age, the reduced night-time melatonin secretion predicted a higher severity of ASD symptoms in the domain Social affect and the Calibrated Severity Score, but not the sleep problems. Our results emphasize the importance of assessing sleep problems as a modifiable predictor of behavior in children with ASD and support the hypothesis about the role of melatonin in pathophysiology of ASD.

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“…Intellectual disability is characterised by significant limitations in intellectual functioning and adaptive behaviours (American Association on Intellectual and Developmental Disabilities, 2011). It negatively influences the quality of life (Balboni et al, 2020), functional autonomy (i.e., the ability to independently perform tasks of daily living, including basic and instrumental activities) and social inclusion (Alonso‐Sardón et al, 2019; Louw et al, 2020). The intellectual disability prevalence in adults living in high‐income countries varies worldwide, ranging from 0.5 to 8 cases per 1000 inhabitants in Australia and Canada, respectively (McKenzie et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

“…ences the quality of life (Balboni et al, 2020), functional autonomy (i.e., the ability to independently perform tasks of daily living, including basic and instrumental activities) and social inclusion (Alonso-Sard on et al, 2019;Louw et al, 2020). The intellectual disability prevalence in adults living in high-income countries varies worldwide, ranging from 0.5 to 8 cases per 1000 inhabitants in Australia and Canada, respectively (McKenzie et al, 2016).…”

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confidence: 99%

The influence of meaningful activities in the quality of life and functional autonomy of adults with intellectual disability: A prospective study during the COVID‐19 pandemic

Muñoz‐López¹,

Molina-García

Gutiérrez‐Cruz³

et al. 2023

Research Intellect Disabil

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Background: The COVID-19 pandemic might negatively impact the quality of life and functional autonomy of Spanish adults with intellectual disability, and meaningful activities could prevent this negative progression.Methods: This is a prospective cohort study in Spanish adults with intellectual disability during the COVID-19 pandemic. Quality of life, functional autonomy and functional independence were measured. The meaningful activities studied were structured-leisure, community self-management, and occupational and physical activities.Results: Seventy-three participants were included in the study. Quality of life and functional autonomy significantly deteriorated during the COVID-19 pandemic (all p > .001). Greater participation in community self-management activities before COVID-19 was associated with less detriment to quality of life (ß = À.312; p = .008), while greater participation in occupational and physical activities was associated with less detriment to the performance of instrumental activities (ß = À.317; p = .016; and ß = À.285; p = .030, respectively). Conclusion:People with intellectual disability living in residential homes experienced a decrease in their quality of life and functional autonomy during the COVID-19 pandemic. Their involvement in community self-management activities and physical and occupational activities before the pandemic had preventive effects on the detriment to the quality of life and functional autonomy.

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Influence of adaptive behaviour on the quality of life of adults with intellectual and developmental disabilities

Cited by 25 publications

References 43 publications

Predictors of individual quality of life in young people with Down syndrome.

Predictors of individual quality of life in young people with Down syndrome.

Sleep Problems and 6-Sulfatoxymelatonin as Possible Predictors of Symptom Severity, Adaptive and Maladaptive Behavior in Children with Autism Spectrum Disorder

The influence of meaningful activities in the quality of life and functional autonomy of adults with intellectual disability: A prospective study during the COVID‐19 pandemic

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