Information and communication technology for managing pain in palliative care: a review of the literature

Allsop, Matthew J; Taylor, Sally; Mulvey, Matthew R; Bennett, Mike; Bewick, Bridgette M.

doi:10.1136/bmjspcare-2013-000625

Cited by 40 publications

(65 citation statements)

References 47 publications

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“…In these instances, there may be value in approaches in which health professionals support identification of relevant and reliable online health information (17). A large proportion of ICT systems for pain management in palliative care support a unidirectional flow of information; data gathered from the patient and sent to the health professional with limited or no feedback (11). Among health professionals there is an increasing recognition of the desirability and achievability of selfmanagement of pain by patients with cancer (20); an approach that could empower patients and increase a sense of control over their lives.…”

Section: Discussionmentioning

confidence: 99%

Understanding patient requirements for technology systems that support pain management in palliative care services: A qualitative study

Allsop

Taylor

Bennett

et al. 2017

Health Informatics J

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Approaches to pain management using electronic systems are being developed for use in palliative care. This article explores palliative care patients' perspectives on managing and talking about pain, the role of technology in their lives and how technology could support pain management. Face-to-face interviews were used to understand patient needs and concerns to inform how electronic systems are developed. A total of 13 interviews took place with a convenience sample of community-based patients with advanced cancer receiving palliative care through a hospice. Data were analysed using framework analysis. Four meta-themes emerged:Technology could be part of my care; I'm trying to understand what is going on; My pain is ever-changing and difficult to control; I'm selective about who to tell about pain. Patients described technology as peripheral to existing processes of care. To be relevant, systems may need to take account of the complexity of a patient's pain experience alongside existing relationships with health professionals.

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Section: Discussionmentioning

confidence: 99%

Understanding patient requirements for technology systems that support pain management in palliative care services: A qualitative study

Allsop

Taylor

Bennett

et al. 2017

Health Informatics J

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“…These fields have also been shown to be potentially improved by the use of ICTs; however, the analysis of the exact form of implementation will require further studies in the field. 24,25 There were many limitations to the present study. First, a convenience sample was used to select respondents.…”

Section: Discussionmentioning

confidence: 91%

Qualitative Study for the Development of a Telemedicine System in Palliative Care

Egoavil¹,

Condor²,

Pinazo-Vidal³

et al. 2017

Palliat Med Hosp Care Open J

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Introduction: Technological advances in public health have allowed the life expectancy of people to increase. However, new challenges appear in populations that age as the greatest number of chronic and oncological diseases requiring chronic and/or palliative care. In Peru, this is an area that has not developed. The use of Information and Communication Technologies (ICT) can optimize healthcare, and in the case of palliative care they could shorten the distances between the specialist, the caregiver and the patient. Objective: To know the needs of health professionals and caregivers of patients who are in palliative care, regarding the management of information, knowledge, attitudes and the use of ICT in palliative care. Materials and Methods: As part of the TeleJampiq project, a first phase of qualitative study is developed. A focus group was conducted with six caregivers. Family members' information was obtained through two field reports and two interviews. Finally, the exploration of the needs and suggestions of palliative care specialists was carried out by ten in-depth interviews (six physicians, one psychologist and three nurses). Through the data analysis we were able to identify three major themes in which the results were classified: Management of information on chronic diseases and terminal patients, knowledge and actions in palliative care and use of ICT for palliative care. Results: Management of information on chronic diseases and terminal patients. It is essential to draw a distinction between terminability and palliation. Managing these concepts could make a difference from the start of treatment. Knowledge and actions in palliative care. Nonfamily caregivers' knowledge of the meaning of palliative care is like that of specialists (doctors and nurses). Use of ICT for palliative care. The use of mobile devices among health personnel interviewed is overwhelming. Engaging in aspects of information management to other specialists such as nutritionists and psychologists would be beneficial. Conclusions: It is necessary to use ICT in the field of chronic and palliative care, being a fundamental aspect the communication between personnel working in the system and the use of scales, care protocols, among others.

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“…for cardiovascular diseases [4], there are not any established solutions for palliative care patients. Various research on ICT systems has already shown some evidence on usage of web-based and mobile phone applications, e.g., to support symptoms management, to improve contact between patients and care givers over distance [5], [6] or intervention (e.g., nutrition, social network, physical exercises) apps to improve quality of life [7]. Andebe et al studied the usefulness of a mobile phone assessment in 15 palliative patients and caregivers in an African population by performing qualitative interviews after an usage period of 6 weeks [6].…”

Section: Prior Workmentioning

confidence: 99%

Unobstrusive mobile monitoring of well-being of ambulatory patients in palliative care: what can remote data tell us?

Pavic¹,

Kraft²,

Gückenberger³

et al. 2018

Preprint

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Background: For advanced cancer patients in palliative care, a crucial phase is the transition from palliative care in the hospital to the home setting, where 24-7 care is not guaranteed any more. To fill this gap after transition, we are evaluating the feasibility of a physical and social activity tracking system consisting of a FDA approved bracelet (Biovotion Everion MD®) collecting vital data, e.g., heart rate, oxygen saturation etc., and an Android smart-phone (Samsung Galaxy S5) collecting patients' self-reports of pain and distress as well as acceleration, GPS and phone call statistics data. When study participants are asked, how they are doing in general, a common answer is "There are good days and there are bad days." Apparently, they order their days into different groups. We argue that these "good" and "bad" days have impact on a patient's behavior and is therefore visible in the collected activity data. Objective: As a part of the study's goals, we aim to show the explanatory power of the collected data: the collected data reflect the health status of a patient. Methods: Data is collected over a study period of 12 weeks as part of a feasibility study with an explorative and descriptive study design. Study participants are enrolled from the wards of the Clinic of Radiation-Oncology at the University Hospital Zurich, including the specialized palliative care ward. The data collection chain consists of the patients' devices, Wi-Fi and internet for secured data upload and a receiving web server. The raw data is preprocessed involving resampling and basic feature extraction. Complex features are extracted using unsupervised machine learning methods, e.g., clustering. Heat maps are used to provide overview visualizations of sensor modalities. Integrated views are generated for multi-modal reconstruction and visualization of patients' daily routines. Results: Data collection started in March 2017 and already 13 study participants have finished their study participation or had to abort their participation due to health reasons. We collected more than 10000 hours of valid bracelet data and about 410000 GPS positions from the smart-phone. The cohort shows a high variability in live circumstances, e.g., some are still working, and others hardly leave their homes. We give examples of two patients with different courses of disease in order to demonstrate our approach. Conclusions: Our remote monitoring system delivers a large amount of data that allows us to reconstruct the daily routines of the patients showing differences between good and bad days.Trial Registration: The local Ethics Committee (Kantonale Ethikkommission Zürich) has approved the study protocol; approval number PB_2016-00895.

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Information and communication technology for managing pain in palliative care: a review of the literature

Cited by 40 publications

References 47 publications

Understanding patient requirements for technology systems that support pain management in palliative care services: A qualitative study

Understanding patient requirements for technology systems that support pain management in palliative care services: A qualitative study

Qualitative Study for the Development of a Telemedicine System in Palliative Care

Unobstrusive mobile monitoring of well-being of ambulatory patients in palliative care: what can remote data tell us?

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