Information needs across the colorectal cancer care continuum: scoping the literature

Mossel, Catherine van; Leitz, Lorraine; Scott, Samantha; Daudt, Helena; Dennis, Darcy; Watson, Heather; Alford, Maxine; Mitchell, Alex J.; Payeur, N.; Cosby, C.; Levi‐Milne, R.; Purkis, Mary Ellen

doi:10.1111/j.1365-2354.2012.01340.x

Cited by 31 publications

(43 citation statements)

References 184 publications

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“…On the other hand, we want to be clear that our research was not in vain as we did accomplish two goals laid out by Arksey and O'Malley and we garnered data that compelled us forward into a more in-depth analysis to answer our initial question in specific detail. Additionally, we were able to say useful things about the state of academic interest in issues relating to the information needs of people with colorectal cancer, the results of which have been already published [10]. Because our work proved useful in unexpected ways, we encourage others to consider a scoping review as a constructive method in their broader research process in that it can contribute to the clarification of next steps.…”

Section: Discussionmentioning

confidence: 96%

“…We learned what has captured the attention of researchers and by default, what has not. That we narrowed down the original 10,753 papers to a specific set of 239 papers indicates the limited amount of literature that addresses our subject [10]. Given the prevalence of colorectal cancer, we find this not only startling, but useful in directing our future research.…”

Section: Discussionmentioning

confidence: 99%

“…Once we completed these electronic searches, we conducted a hand-search of four key journals and scanned the reference lists from relevant papers to identify other papers that may not have been found in the initial search. We also searched the Social Science Citation Index for papers that our initial searches may have missed [10]. We followed Arksey and O’Malley’s recommendation to conduct a very broad search since comprehensiveness is “the whole point of scoping the field” [1].…”

Section: Discussionmentioning

confidence: 99%

“…We published our findings using a combination of tables with descriptions according to our themes [10]. This approach proved useful to us in our analysis and allowed us to clearly link our findings with our research goals: to examine the extent of the literature and to identify gaps.…”

Section: Discussionmentioning

confidence: 99%

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Enhancing the scoping study methodology: a large, inter-professional team’s experience with Arksey and O’Malley’s framework

Daudt

Mossel

Scott

2013

BMC Med Res Methodol

1,437

1,232

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BackgroundScoping studies are increasingly common for broadly searching the literature on a specific topic, yet researchers lack an agreed-upon definition of and framework for the methodology. In 2005, Arksey and O’Malley offered a methodological framework for conducting scoping studies. In their subsequent work, Levac et al. responded to Arksey and O’Malley’s call for advances to their framework. Our paper builds on this collective work to further enhance the methodology.DiscussionThis paper begins with a background on what constitutes a scoping study, followed by a discussion about four primary subjects: (1) the types of questions for which Arksey and O’Malley’s framework is most appropriate, (2) a contribution to the discussion aimed at enhancing the six steps of Arskey and O’Malley’s framework, (3) the strengths and challenges of our experience working with Arksey and O’Malley’s framework as a large, inter-professional team, and (4) lessons learned. Our goal in this paper is to add to the discussion encouraged by Arksey and O’Malley to further enhance this methodology.SummaryPerforming a scoping study using Arksey and O’Malley’s framework was a valuable process for our research team even if how it was useful was unexpected. Based on our experience, we recommend researchers be aware of their expectations for how Arksey and O’Malley’s framework might be useful in relation to their research question, and remain flexible to clarify concepts and to revise the research question as the team becomes familiar with the literature. Questions portraying comparisons such as between interventions, programs, or approaches seem to be the most suitable to scoping studies. We also suggest assessing the quality of studies and conducting a trial of the method before fully embarking on the charting process in order to ensure consistency. The benefits of engaging a large, inter-professional team such as ours throughout every stage of Arksey and O’Malley’s framework far exceed the challenges and we recommend researchers consider the value of such a team. The strengths include breadth and depth of knowledge each team member brings to the study and time efficiencies. In our experience, the most significant challenges presented to our team were those related to consensus and resource limitations. Effective communication is key to the success of a large group. We propose that by clarifying the framework, the purposes of scoping studies are attainable and the definition is enriched.

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Section: Discussionmentioning

confidence: 96%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Enhancing the scoping study methodology: a large, inter-professional team’s experience with Arksey and O’Malley’s framework

Daudt

Mossel

Scott

2013

BMC Med Res Methodol

1,437

1,232

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Assessment of quality of nutrition information materials for pelvic cancer patients in the UK

et al. 2018

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A cancer diagnosis serves as a 'teachable moment' for many patients to consider health behaviours, such as diet (1) . Patients diagnosed with a pelvic malignancy (prostate, bladder, rectum or gynaecology) may be interested in changing their dietary habits (2) . Improved dietary habits may reduce the risk of disease progression in these cancer groups (3) . However, lack of access to information from healthcare professionals may prompt them to seek advice from online sources (4) . To the authors' knowledge, the quality of patient information from online sources has not been assessed. The aim of the study is to evaluate the content and readability of the available online patient information materials (PIMs) in relation to diet and nutrition specifically for pelvic cancer patients.PIMs relating to diet and nutrition following a cancer diagnosis were identified by searching in Public Sector organisations, Cancer Centres and registered charities throughout the UK. Searches included key terms related to cancer in the pelvic area or generic cancer and related to provision of information about a healthy diet after diagnosis, nutritional management of treatment-related symptoms or weight management. Content was assessed with an evidence-based checklist developed by the Picker Institute (5) . Readability was assessed with the Flesch Reading Ease score (FRE), Flesch-Kincaid Grade Level (FKGL) and the Simplified Measure of Gobbledygook (SMOG) Grade.Few cancer centres (5/14) and charities (8/196) had online information on diet and nutrition. A total of 18 PIMs were identified; 17 were leaflets/booklets and one source (Cancer Research UK) had online information only. Four PIMs were pelvic cancer-specific (prostate, bladder and bowel cancer) and 14 were generic cancer. The NHS Choices website had no online information specifically on diet and cancer but provided a link to other sources for information. Content scores ranged from 22-36/40. PIMs from charities scored higher than the ones from cancer centres (n 11; 30·6 ± 3·7 Vs n 7; 27·0 ± 4·1, P = 0·068). The average readability level was 8 th grade-level, which corresponds to the reading ability of 13-14 year-olds. One third of the materials scored higher than the upper acceptable reading level.This study highlights the lack of targeted, reliable and easy to understand patient information about diet and nutrition in pelvic cancer. The content and the language of some of the current materials may need to be revised.

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Unmet information needs and impact of cancer in (long-term) thyroid cancer survivors: results of the PROFILES registry

et al. 2014

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Information needs across the colorectal cancer care continuum: scoping the literature

Cited by 31 publications

References 184 publications

Enhancing the scoping study methodology: a large, inter-professional team’s experience with Arksey and O’Malley’s framework

Enhancing the scoping study methodology: a large, inter-professional team’s experience with Arksey and O’Malley’s framework

Assessment of quality of nutrition information materials for pelvic cancer patients in the UK

Unmet information needs and impact of cancer in (long-term) thyroid cancer survivors: results of the PROFILES registry

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