Information needs of the Chinese community affected by cancer: A systematic review

Lim, Bee Teng; Butow, Phyllis; Mills, Jill; Miller, Annie; Goldstein, David

doi:10.1002/pon.4347

Cited by 34 publications

(34 citation statements)

References 54 publications

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“…Indeed, this finding is not unique to our study sample. A systematic review of studies on Chinese populations found that the HSI is the most commonly reported needs, with a pooled prevalence of 43.01% [45]. Similar to previous studies in Hong Kong [6,8], the primary unmet need in the present study was having one member of the hospital staff with whom to talk about all aspects of one's condition, treatment and follow-up.…”

Section: Discussionsupporting

confidence: 78%

Measurement invariance across gender and age groups, validity and reliability of the Chinese version of the short-form supportive care needs survey questionnaire (SCNS-SF34)

Choi

Liao

Soong

et al. 2020

Health Qual Life Outcomes

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Background: Despite the wide use of the Short-Form Supportive Care Needs Survey Questionnaire (SCNS-SF34), the measurement invariance of the SCNS-SF34 across the main groups-gender and age-which might be of interest in the application of the instrument has never been confirmed. To provide an accurate assessment tool to evaluate the unmet needs of Chinese cancer patients, the present study aimed to assess the measurement invariance of the SCNS-SF34 across gender and age groups and to assess the validity and reliability of the Chinese version of the SCNS-SF34. Methods: The SCNS-SF34 was administrated to 1106 Chinese cancer patients. Other instruments included the Memorial Symptom Assessment Scale-Short Form (MSAS-SF), the Short-Form-12 Health Survey version 2 (SF-12 v2) and the Hospital Anxiety and Depression Scale (HADS). Factor structure, internal construct validity, convergent validity, known-group validity and internal consistency were assessed. Results: Our data fit the original five-factor model. Multi-group confirmatory factor analysis indicated measurement invariance across age and gender groups. The domains of the SCNS-SF34 had moderate correlations with the corresponding domains of the MSAS-SF, the SF-12 v2 and the HADS, which supported convergent validity. Of the 34 items, 33 had an item-total correlation that was corrected for an overlap of > 0.4 to support the internal construct validity. The SCNS-SF34 aptly differentiated patients by age and gender. The Cronbach's alpha coefficient ranged from 0.64 to 0.87. Conclusions: We confirm the measurement invariance of the Chinese version of the SCNS-SF34 across gender and age group. It is a valid and reliable tool for evaluating the needs of Chinese patients with cancer.

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Section: Discussionsupporting

confidence: 78%

Measurement invariance across gender and age groups, validity and reliability of the Chinese version of the short-form supportive care needs survey questionnaire (SCNS-SF34)

Choi

Liao

Soong

et al. 2020

Health Qual Life Outcomes

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“…The above studies suggest that unmet information needs may be a universal challenge, regardless of migration status. This is confirmed by systematic review findings, which indicated that information needs did not differ between Chinese natives (i.e., Hong Kong, China, Taiwan, and Singapore) and migrants (i.e., Australia and the United States) …”

Section: Introductionsupporting

confidence: 72%

Chinese‐Australian women with breast cancer call for culturally appropriate information and improved communication with health professionals

Levesque

Gerges

et al. 2019

Cancer Reports

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Background: For culturally and linguistically diverse patients, breast cancer presents complex physical, psychosocial, and health care challenges, often exacerbated by a lack of culturally appropriate information and communication barriers with the treating team (even with the help of interpreters).Aim: This qualitative study aims to broadly explore the experience of breast cancer and coping strategies utilized by Chinese-Australian women.Methods and results: Twenty-four Chinese-Australian women with breast cancer participated in either a semi-structured interview or a focus group conducted in participants' preferred language, audio-recorded, transcribed, and subjected to thematic analysis. Two prominent themes emerged, related to information seeking, and communication with health care professionals. The theme of information needs and seeking highlighted unmet information needs and the multiple sources that are consulted for information. The second theme, communication with health care professionals, language barriers, and preferences, identified varying degrees of involvement in treatment decision-making, preference for information and interactions in Cantonese or Mandarin, and problems with interpreter services.Conclusion: Chinese women with breast cancer face significant challenges in obtaining adequate information and can feel excluded from treatment decision-making. Women in this study expressed their eagerness for obtaining accurate information and engaging in open communication with their doctors. There is a need for culturally sensitive information resources and decision aids to enhance communication between Chinese migrant patients with cancer and health care professionals. Clinician participation in cultural awareness training is also recommended.

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“…There was also a level of frustration with not being able to use their native language (Arabic) to communicate their message directly with HCPs. Our findings are consistent with other studies which report migrants,[ 20 28 ] including Arab cancer survivors,[ 21 29 ] with low English language proficiency, being deterred from seeking health information. This was evident in this study with participants stating that language was a barrier to seeking information about cancer-support groups and participating in cancer workshops.…”

Section: Discussionsupporting

confidence: 93%

“…Immigrants who are not proficient in the dominant language of their host country often struggle to communicate with HCPs and have poorer health outcomes. [ 20 ] This is particularly true for immigrant cancer survivors who have a poorer quality of life, worse psychological status, and higher unmet supportive care needs than other cancer survivors, with communication barriers and lack of access to health professionals who speak their language accounting for most of these needs. [ 21 ]…”

Section: Introductionmentioning

confidence: 99%

Arab-migrant Cancer Survivors' Experiences of Using Health-care Interpreters: A Qualitative Study

Alananzeh

Ramjan

Kwok

et al. 2018

Asia-Pacific Journal of Oncology Nursing

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Objective:This paper is drawn from a larger mixed-method study that sought to explore the cancer experiences of Jordanian and Australian Arab cancer survivors and their family caregivers. This paper specifically focuses on the experiences of the Australian cancer survivors and their use of interpreter services to communicate with health-care providers (HCPs).Methods:Individual face-to-face interviews were conducted using a semi-structured interview guide. Data were manually thematically analyzed using an inductive approach.Results:Three key themes were identified which highlighted the communication issues the Arab-migrant cancer survivors experienced when using health-care interpreters: (1) “My language is weak” – needing someone to help them when communicating with their HCPs; (2) “I had a problem in the dialect” – the need to understand and to be understood by the interpreters; and (3) “I felt all the time that there is something missing” – not being heard by the interpreter. Low confidence in engaging and using the English language meant many cancer survivors were reluctant to seek support from cancer services or to attend workshops conducted in the English language. Despite the presence of professionally trained health-care interpreters in health-care communications, cancer survivors were frustrated when provided with interpreters who did not speak the same dialect, causing linguistic and cultural discord. This created confusion as information was often misinterpreted, resulting in the delivery and receipt of mixed messages.Conclusions:Despite the availability of professionally trained health-care interpreters, our findings identified the need for HCPs to ascertain linguistic and cultural congruence when arranging interpreter services.

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Information needs of the Chinese community affected by cancer: A systematic review

Cited by 34 publications

References 54 publications

Measurement invariance across gender and age groups, validity and reliability of the Chinese version of the short-form supportive care needs survey questionnaire (SCNS-SF34)

Measurement invariance across gender and age groups, validity and reliability of the Chinese version of the short-form supportive care needs survey questionnaire (SCNS-SF34)

Chinese‐Australian women with breast cancer call for culturally appropriate information and improved communication with health professionals

Arab-migrant Cancer Survivors' Experiences of Using Health-care Interpreters: A Qualitative Study

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