Informational needs of gynecologic cancer survivors

Papadakos, Janet; Bussière-Côté, Sophie; Abdelmutti, Nazek; Catton, Pamela; Friedman, Audrey Jusko; Massey, Christine; Urowitz, Sara; Ferguson, Sarah E.

doi:10.1016/j.ygyno.2011.10.030

Cited by 71 publications

(64 citation statements)

References 22 publications

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“…In a study that used a similar informational needs instrument in patients with gynecologic cancer, information about topics in the medical domain were rated most important 21 . To address the information needs reported in the present study, patient education resources addressing fatigue, shortness of breath, and cough should be available for all lung cancer patients and should be prepared using best practices, including structured and culturally appropriate content 33 .…”

Section: Discussionmentioning

confidence: 99%

“…Participants completed a survey package that included the Supportive Care Needs Survey Short Form 34 (scns-SF34) 19 , an in-house developed information needs survey (8 items) 20,21 , the MD Anderson Symptom Inventory (mdasi) 22 , an adls questionnaire 23 , and a quality-of-life subscale from the European Organisation for Research and Treatment of Cancer's qlq-C30 questionnaire 24 . Surveys were completed by participants in the outpatient lung cancer clinic.…”

Section: Methodsmentioning

confidence: 99%

“…A modified instrument originally designed by content experts in Patient Education and Survivorship at Princess Margaret Cancer Centre for previous work in other cancer sites was therefore used 20,21 . That 8-item tool was designed specifically to assess patient preferences for various potential information needs (for example, drug coverage, legal issues, sick leave from work, symptom management, etc.).…”

Section: Information Needsmentioning

confidence: 99%

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The Prevalence and Nature of Supportive Care Needs in Lung Cancer Patients

et al. 2016

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PurposeIn the present work, we set out to comprehensively describe the unmet supportive care and information needs of lung cancer patients. MethodsThis cross-sectional study used the Supportive Care Needs Survey Short Form 34 (34 items) and an informational needs survey (8 items). Patients with primary lung cancer in any phase of survivorship were included. Demographic data and treatment details were collected from the medical charts of participants. The unmet needs were determined overall and by domain. Univariable and multivariable regression analyses were performed to determine factors associated with greater unmet needs. were recruited. The mean number of unmet needs was 8 (range: 0-34), and 69 patients (78%) reported at least 1 unmet need. The need proportions by domain were 52% health system and information, 66% psychological, 58% physical, 24% patient care, and 20% sexuality. The top 2 unmet needs were "fears of the cancer spreading" [n = 44 of 84 (52%)] and "lack of energy/tiredness" [n = 42 of 88 (48%)]. On multivariable analysis, more advanced disease and higher MD Anderson Symptom Inventory scores were associated with increased unmet needs. Patients reported that the most desired information needs were those for information on managing symptoms such as fatigue (78%), shortness of breath (77%), and cough (63%). ResultsConclusions Unmet supportive care needs are common in lung cancer patients, with some patients experiencing a very high number of unmet needs. Further work is needed to develop resources to address those needs.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Information Needsmentioning

confidence: 99%

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The Prevalence and Nature of Supportive Care Needs in Lung Cancer Patients

et al. 2016

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“…Women with cancer and their partners want healthcare professionals to initiate discussions about sexuality (Gilbert et al, 2011). Gynecologyc cancer patients prefer for information needs according to Papadoks et al (2012) the most popular modality was pamphlet, followed by a one-on-one discussion with a health care professional and website. For the physical domain, the most popular choice was one-on-one discussion, followed by pamphlet and website.…”

Section: Sexual Functions Of Turkish Women With Gynecologic Cancer Dumentioning

confidence: 99%

Sexual Functions of Turkish Women with Gynecologic Cancer during the Chemotherapy Process

Akkuzu¹,

Ayhan²

2013

Asian Pacific Journal of Cancer Prevention

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Background: The negative effects of gynecologic cancer on women's health is multidimensional. Sexual problems arising after chemotherapy are decreased interest and vaginal lubrication, lack of orgasm and dyspareunia and sense of reduction in sexual attractiveness in general. The purpose of this study was to evaluate changes that patients who receive chemotherapy for a gynecologic oncology disorder experience in their sexual functions. Materials and Methods: A descriptive/cross-sectional and qualitative study was performed. The Female Sexual Function Index (FSFI) was used in order to collect data on sexual capacity. The quantitative data obtained were evaluated with frequency and percentage calculations while content analysis was performed for the qualitative data. Results: All of the information related to sexuality was provided by the physician. Chemotherapy treatment affected sexuality negatively in 55.9%. Since receiving the diagnosis, 52.9% of women had experienced no sexual intercourse at all. Those who had an FSFI score of 30 and below made up 75% of the women. After the content analysis of data obtained during in in-depth interviewing, we focused on three main themes: desire for sexual intercourse, problems experienced during sexual intercourse, and coping with problems. Conclusions: An integrated system where sexual problems can be handled professionally should be present during gynecological cancer treatment.

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“…Several studies documented the need at the end of active treatment for information on prevention and risks of recurrence, the possibility of secondary cancers and other health problems associated with the treatments and the illness, long-lasting and late side effects, physical and psychological treatment, and psychological and social resources (Brennan, Butow, Spillane, & Boyle, 2010;Greimel, Lahousen, Dorfer, Lambauer, & Lang, 2011;Nicolaije et al, 2012;Papadakos et al, 2012). Moreover, gynecological cancer survivors describe the difficulty of accessing information and resources, as well as the difficulty of communicating with their healthcare professionals (Jones et al, 2012;Nicolaije et al, 2012).…”

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confidence: 99%