Inquiry and computer program Onko-Online: 25 years of clinical registry for breast cancer at the University Medical Centre Maribor

Abstract

Background High-quality routine care data collected in the clinical registry play a significant role in improving the management of cancer patients. Clinical cancer registries record important data in the course of cancer diagnosis, treatment, follow-up and survival. Analyses of such comprehensive data pool make it possible to improve the quality of patients care and compare with other health care providers. Methods The first inquiry at the Department of Gynaecologic and Breast Oncology of the then General Hospital Maribor to follow breast cancer patients has been introduced in 1994. Based on our experience and new approaches in breast cancer treatment, the context of inquiry has been changed and extended to the present form, which served as a model for developing a relevant computer programme named Onko-Online in 2014. Results During the 25-year period, we collected data from about 3,600 breast cancer patients. The computer program Onko-Online allowed for quick and reliable collection, processing and analysis of 167 different data of breast cancer patients including general information, medical history, diagnostics, treatment, and follow-up. Conclusions The clinical registry for breast cancer Onko-Online provides data that help us to improve diagnostics and treatment of breast cancer patients, organize the daily practice and to compare the results of our treatment to the national and international standards. A limitation of the registry is the potentially incomplete or incorrect data input by different healthcare providers, involved in the treatment of breast cancer patients.

Cervix-Online computer program: 27 years of hospital-based clinical registry for cervical cancer at the University Medical Centre Maribor

“…A computer program has been designed for all of them and articles on the use of this software to follow-up patients with ovarian malignancies were published in 1996 and 1999 and for breast cancer patients in 2019. [6][7][8] Registry for cervical cancer records data known to be associated with high risk for cervical cancer, such as high parity, specifically seven prior fullterm pregnancies, early age at first intercourse, before 20 years of age, cigarette smoking, both active and passive and the use of combined oral contraceptives. [9][10][11][12][13] Lower socio-economic status with FIGURE 1.…”

“…A computer program has been designed for all of them and articles on the use of this software to follow-up patients with ovarian malignancies were published in 1996 and 1999 and for breast cancer patients in 2019. 6 , 7 , 8 …”