Intellectual disability nursing and transcultural care

Doody, Owen; Doody, Catriona M

doi:10.12968/bjon.2012.21.3.174

Cited by 13 publications

(6 citation statements)

References 28 publications

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“…In the Irish context and coinciding with such developments, Ireland has witnessed an increase in population diversity (Doody & Doody ). Such diversity places a greater emphasis on services to provide care appropriate to the needs of the individual and their family with one such population group being persons with an intellectual disability.…”

Section: Introductionmentioning

confidence: 99%

Surveying community nursing support for persons with an intellectual disability and palliative care needs

Bailey

Doody

Lyons

2014

Brit J Learn Disabil

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Accessible summary• People with intellectual disability live within their community and will require services to support them at end of life.• Often people with intellectual disability are denied access to essential services.• This paper identifies the experiences of community nurses caring for persons with an intellectual disability and palliative/end-of-life care needs. SummaryPalliative care services have developed over the years to support all persons with life-limiting conditions. Moreover, services for people with an intellectual disability have moved from the traditional institutional setting to supporting people with an intellectual disability to live in their own community and family home. The expansion of palliative care services and integration of people with intellectual disability into their communities has resulted in an increased demand and greater diversity in the population groups accessing palliative care services. This study aims to describe the provision of community nursing support for persons with an intellectual disability and palliative/end-of-life care needs from the perspective of community nurses. A quantitative descriptive cross-sectional survey was employed. On receipt of ethical approval, data were collected through self-reporting questionnaires and descriptive analysis was conducted to describe frequencies and to identify patterns of the respondents using SPSS version 18. Only 85 people with an intellectual disability were referred to palliative/end-of-life care services over a 3-year period. Those delivering care expressed challenges including, understanding communication styles, late referrals, lack of time, knowledge and skills. Highlighted within the study were the benefits of liaison between family and professional and nonprofessional carers. Findings provide insight into the importance of teamwork, advance planning, knowing the person and best practice in providing palliative/end-of-life care for people with intellectual disability through collaboration.

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Section: Introductionmentioning

confidence: 99%

Surveying community nursing support for persons with an intellectual disability and palliative care needs

Bailey

Doody

Lyons

2014

Brit J Learn Disabil

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“…However, the National Disability Survey (NDS; Central Statistics Office (CSO), 2008) indicates 50,400 people with a disability in Ireland. These statistical sources present different rates, and Doody and Doody (2012) identify the reasons for the differences based on the methodology used in both collection methods. While accurate prevalence data for AS and ASD in Ireland are not available, the Health Service Executive (HSE, 2011) estimates through the 2006 national census data (CSO, 2007) and the NDS (CSO, 2008) that there is a prevalence of 1.1% for ASD in Ireland, and of which, 38% are aged between 0 and 17 years.…”

Section: Introductionmentioning

confidence: 99%

Exploring fathers’ perceptions of parenting a child with Asperger syndrome

Halloran

Sweeney

Doody

2013

J Intellect Disabil

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This study explores Irish fathers' perceptions of parenting a child with Asperger syndrome (AS). Ethical approval was granted by the service provider, and Husserlian phenomenological approach facilitated the exploration. Data were collected through semi-structured interviews of nine fathers in the West region of Ireland. Data were transcribed and analysed using Colaizzi's (1978) method. The study highlighted that parenting a child with AS is an arduous task, but while there are difficulties, many positive aspects to their parenting experience were reported. Overall, the study highlights the importance of listening to parents and their initial concerns regarding their child's development.

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“…This has been recognised within the overall realm of the field of disability where academics within the disability rights movement have appraised the social model of disability, debating its generalisability and proposing potential alternatives to the social model (Burchardt , Gabel & Peters ). A reconceptualisation of the social model has relevance within the present study, as in practice the unique skills of the ID CNS and their bio‐psycho‐social‐educational model of care provision (Doody & Doody ) are evident. These skills are used to perform an individualised assessment of need, plan of care, support implementation of the plan and monitor and evaluate its performance and suitability for the individual in order to provide a holistic person‐centred approach to care.…”

Section: Discussionmentioning

confidence: 94%