International Classification of Functioning, Disability and Health Core Sets for children and youth with cerebral palsy: a consensus meeting

Schiariti, Verónica; Selb, Melissa; Cieza, Alarcos; O’Donnell, Maureen

doi:10.1111/dmcn.12551

Cited by 155 publications

(152 citation statements)

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“…In accordance with the previous ICF Core Set projects, comprehensive and Brief (Common) ICF Core Sets were developed [31,32]. In addition, based on a decision made by the Steering Committee, three age-specific Brief Sets were also developed: a preschool set (ages 0-5 years), a school-age set (ages 6-16), and an older adolescent and adult set for individuals 17 years and older (Fig.…”

Section: Methodsmentioning

confidence: 99%

“…As in the previous ICF Core Set projects [31,33], for a specific category to be automatically included in the Comprehensive Core Set for ADHD in Votes A and B, at least 75% of the experts had to vote in favour of including that category. Categories that received 40% positive votes or less were automatically excluded from the comprehensive set.…”

Section: Stagementioning

confidence: 99%

“…ICF Core Sets have been developed for diagnoses such as cerebral palsy [31], depression [32], and bipolar disorder [33], but not yet for any DSM-5 defined neurodevelopmental disorder. For this reason, the Karolinska Institutet Center of Neurodevelopmental Disorders (KIND), in collaboration with the ICF Research Branch, a cooperation partner within the WHO Collaboration Centre for the Family of International Classifications in Germany (at DIMDI), and the European Network for Hyperkinetic Disorders (EUNETHYDIS), initiated the development of ICF Core Sets for ADHD [34].…”

Section: Introductionmentioning

confidence: 99%

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Standardised assessment of functioning in ADHD: consensus on the ICF Core Sets for ADHD

Bölte

Mahdi

Coghill

et al. 2018

Eur Child Adolesc Psychiatry

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Attention-deficit/hyperactivity disorder (ADHD) is associated with significant impairments in social, educational, and occupational functioning, as well as specific strengths. Currently, there is no internationally accepted standard to assess the functioning of individuals with ADHD. WHO's International Classification of Functioning, Disability and Health-child and youth version (ICF) can serve as a conceptual basis for such a standard. The objective of this study is to develop a comprehensive, a common brief, and three age-appropriate brief ICF Core Sets for ADHD. Using a standardised methodology, four international preparatory studies generated 132 second-level ICF candidate categories that served as the basis for developing ADHD Core Sets. Using these categories and following an iterative consensus process, 20 ADHD experts from nine professional disciplines and representing all six WHO regions selected the most relevant categories to constitute the ADHD Core Sets. The consensus process resulted in 72 second-level ICF categories forming the comprehensive ICF Core Set-these represented 8 body functions, 35 activities and participation, and 29 environmental categories. A Common Brief Core Set that included 38 categories was also defined. Age-specific brief Core Sets included a 47 category preschool version for 0-5 years old, a 55 category school-age version for 6-16 years old, and a 52 category version for older adolescents and adults 17 years old and above. The ICF Core Sets for ADHD mark a milestone toward an internationally standardised functional assessment of ADHD across the lifespan, and across educational, administrative, clinical, and research settings.

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Section: Methodsmentioning

confidence: 99%

Section: Stagementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Standardised assessment of functioning in ADHD: consensus on the ICF Core Sets for ADHD

Bölte

Mahdi

Coghill

et al. 2018

Eur Child Adolesc Psychiatry

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“…1 We would like to take this opportunity to respond to some issues raised in her letter. 2 The international community has embraced the International Classification of Functioning, Disability and Health (ICF) model; 3 however, the extensiveness of the classification has made it challenging to apply in everyday practice.…”

mentioning

confidence: 99%

“…5 The ICF Core Sets for children and youth with cerebral palsy (CP) are the first pediatric ICF Core Sets and were developed using the World Health Organization (WHO)-endorsed scientific process. 1 The contribution of the ICF Core Sets for children and youth with CP to clinical practice is manifold. First, they offer a 'framework' for guiding the functional assessment, evaluation, and follow-up of children and youth with CP worldwide.…”

mentioning

confidence: 99%

International Classification of Functioning, Disability and Health Core Sets for children and youth with CP: contributions to clinical practice

Schiariti

Selb²,

Cieza

et al. 2014

Develop Med Child Neuro

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Core Outcome Sets in Child Health

Lei

Shen

Yang³

et al. 2022

JAMA Pediatr

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ImportanceDeveloping core outcome sets is essential to ensure that results of clinical trials are comparable and useful. A number of core outcome sets in pediatrics have been published, but a comprehensive in-depth understanding of core outcome sets in this field is lacking.ObjectiveTo systematically identify core outcome sets in child health, collate the diseases to which core outcome sets have been applied, describe the methods used for development and stakeholder participation, and evaluate the methodological quality of existing core outcome sets.Evidence ReviewMEDLINE, SCOPUS, Cochrane Library, and CINAHL were searched using relevant search terms, such as clinical trials, core outcome, and children, along with relevant websites, such as Core Outcome Measures in Effectiveness Trials (COMET). Four researchers worked in teams of 2, performed literature screening and data extraction, and evaluated the methodological quality of core outcome sets using the Core Outcome Set–Standards for Development (COS-STAD).FindingsA total of 77 pediatric core outcome sets were identified, mainly developed by organizations or researchers in Europe, North America, and Australia and mostly from the UK (22 [29%]) and the US (22 [29%]). A total of 77 conditions were addressed; the most frequent International Classification of Diseases, 11th Revision category was diseases of the digestive system (14 [18%]). Most of the outcomes in pediatric core outcome sets were unordered (34 [44%]) or presented in custom classifications (29 [38%]). Core outcome sets used 1 or more of 8 development methods; the most frequent combination of methods was systematic review/literature review/scoping review, together with the Delphi approach and consensus for decision-making (10 [14%]). Among the 6 main types of stakeholders, clinical experts were the most frequently involved (74 [100%]), while industry representatives were rarely involved (4 [5%]). Only 6 core outcome sets (8%) met the 12 criteria of COS-STAD.Conclusions and RelevanceFuture quality of pediatric core outcome sets should be improved based on the standards proposed by the COMET initiative, while core outcome sets methodology and reporting standards should be extended to pediatric populations to help improve the quality of core outcome sets in child health. In addition, the COMET outcome taxonomy should also add items applicable to children.

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International Classification of Functioning, Disability and Health Core Sets for children and youth with cerebral palsy: a consensus meeting

Cited by 155 publications

References 29 publications

Standardised assessment of functioning in ADHD: consensus on the ICF Core Sets for ADHD

Standardised assessment of functioning in ADHD: consensus on the ICF Core Sets for ADHD

International Classification of Functioning, Disability and Health Core Sets for children and youth with CP: contributions to clinical practice

Core Outcome Sets in Child Health

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