International Classification of Functioning, Disability and Health Core Sets for children and youth with <scp>CP</scp>: contributions to clinical practice

Schiariti, Verónica; Selb, Melissa; Cieza, Alarcos; O’Donnell, Maureen

doi:10.1111/dmcn.12639

Cited by 15 publications

(9 citation statements)

References 7 publications

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“…These ICF Core Set for common childhood onset-disabilities capture unique functional areas for each condition [ 25 ]. The ICF Core Sets for CP offer service providers and stakeholders an age-appropriate framework to explore functioning and disability for assessment, treatment, evaluation, and policy purposes in a global context [ 26 ]. As shown in Figure 1 , there are five ICF Core Sets for CP, a comprehensive and a common core sets covering ages 0 to 18 years, and three age-specific core sets capturing relevant functional developmental information.…”

Section: Introductionmentioning

confidence: 99%

Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Schiariti

Longo

Shoshmin

et al. 2018

IJERPH

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Background: The International Classification of Functioning, Disability, and Health (ICF) Core Sets for children and youth with cerebral palsy (CP) offer service providers and stakeholders a specific framework to explore functioning and disability for assessment, treatment, evaluation, and policy purposes in a global context. Objective: Describe global initiatives applying the ICF Core Sets for children and youth with CP, with a focus on contributions to clinical practice and challenges in their implementation. Methods: This is a descriptive cross-sectional study. Ongoing initiatives applying the ICF Core Sets for CP in Russia, Poland, Malawi, and Brazil are included. Results: The main contributions of applying the ICF Core Sets for children and youth with CP include: (1) an objective description of abilities and limitations in everyday activities; (2) a consistent identification of facilitators and barriers influencing functioning; (3) a practical communication tool promoting client-centered care and multidisciplinary teamwork; and, (4) a useful guideline for measurement selection. The main challenges of adopting the ICF Core Sets are related to lack of ICF knowledge requiring intense training and translating results from standardized measures into the ICF qualifiers in a consistent way. Conclusions: Global initiatives include research and clinical applications at the program, service and system levels. The ICF Core Sets for CP are useful tools to guide service provision and build profiles of functioning and disability. Global interprofessional collaboration, capacity training, and informatics (e-records) will maximize their applications and accelerate adoption.

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Section: Introductionmentioning

confidence: 99%

Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Schiariti

Longo

Shoshmin

et al. 2018

IJERPH

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“…In the qualitative interviews, the parent‐caregivers reported 83 outcomes, while the health care professionals of the PBC reported 51 outcomes. The literature search identified 57 outcomes from 10 publications concerning outcome sets for comparable patient groups: five publications on ICHOM standard sets of patient‐centred outcome measures, three published core outcome sets, and two publications on meaningful outcomes in neurodisability 7–11,13,19,20,25,27,28 …”

Section: Resultsmentioning

confidence: 99%

“…The literature search identified 57 outcomes from 10 publications concerning outcome sets for comparable patient groups: five publications on ICHOM standard sets of patient-centred outcome measures, three published core outcome sets, and two publications on meaningful outcomes in neurodisability. [7][8][9][10][11]13,19,20,25,27,28 In total, 104 unique outcomes were identified from these three sources, which we refer to as the longlist. Children and parent-caregivers reported 83 outcomes, the professionals reported 52 outcomes, and the published outcome sets gave 64 outcomes.…”

Section: Inventories Of Important Outcomesmentioning

confidence: 99%

Meaningful outcomes for children and their caregivers attending a paediatric brain centre

Heydenrijk-Kikkert

Schmidt

Pangalila

et al. 2023

Develop Med Child Neuro

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AimTo identify meaningful outcomes of children and their caregivers attending a paediatric brain centre.MethodWe compiled a long list of outcomes of health and functioning of children with brain‐related disorders such as cerebral palsy, spina bifida, (genetic) neurodevelopmental disorders, and acquired brain injury. We incorporated three perspectives: patients, health care professionals, and published outcome sets. An aggregated list was categorized using the International Classification of Functioning, Disability, and Health: Children and Youth version in a patient validation survey for children and parent‐caregivers to prioritize outcomes. Outcomes were considered meaningful when ranked ‘very important’ by 70% or more of the participants.ResultsWe identified 104 outcomes from the three perspectives. After categorizing, 59 outcomes were included in the survey. Thirty‐three surveys were completed by children (n = 4), caregivers (n = 24), and parent‐caregivers together with their child (n = 5). Respondents prioritized 27 meaningful outcomes covering various aspects of health and functioning: emotional well‐being, quality of life, mental and sensory functions, pain, physical health, and activities (communication, mobility, self‐care, interpersonal relationships). Parent‐caregiver concerns and environmental factors were newly identified outcomes.InterpretationChildren and parent‐caregivers identified meaningful outcomes covering various aspects of health and functioning, including caregiver concerns and environmental factors. We propose including those in future outcome sets for children with neurodisability.

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“…The CP Core Set is a short form of the ICF consisting of 25 items specific to CP. The Core Set offers the opportunity to evaluate the child in a holistic frame (16). The Brief Core set consists of 25 domains, including body structure (s), body function (b), activity and participation (d), and environmental factors (e).…”

Section: Measurementsmentioning

confidence: 99%

An Icf Core Set Based Investigation of the Effects of Gross Motor Functions on Health in Children With Cerebral Palsy

Üneş,

Coşkun

2023

Türk Fizyoterapi Ve Rehabilitasyon Dergisi

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Purpose: The Gross Motor Function Measure (GMFM) is commonly used to assess gross motor functions in children with cerebral palsy (CP). Our aim was to investigate the relationship between gross motor function and health status in children with CP based on clinical types and functional levels. Methods: This cross-sectional study included 75 children with CP (mean age ± SD 7.59 ±3.86 years). The 66-item Gross Motor Function Measure (GMFM-66) was used to measure the gross motor functions of children. The International Classification of Functioning, Disability and Health (ICF) CP Core Set was used to assess the general health status of children including body functions and structures, activity and participation, and environmental factors for obtaining a holistic framework. Results: Of the children, 61 (81.3%) were spastic and 14 (18.7%) were dyskinetic. Children were divided into 3 groups based on the Gross Motor Function Classification System (GMFCS) level as mild (levels 1-2, n=28), moderate (level 3, n=16), and severe (levels 4-5, n=31). The GMFM-66 had moderate to strong correlations with body functions and structures (r=-0.811, p

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International Classification of Functioning, Disability and Health Core Sets for children and youth with CP: contributions to clinical practice

Cited by 15 publications

References 7 publications

Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Implementation of the International Classification of Functioning, Disability, and Health (ICF) Core Sets for Children and Youth with Cerebral Palsy: Global Initiatives Promoting Optimal Functioning

Meaningful outcomes for children and their caregivers attending a paediatric brain centre

An Icf Core Set Based Investigation of the Effects of Gross Motor Functions on Health in Children With Cerebral Palsy

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