Internet use and stigmatized illness

Berger, M; Wagner, Todd H.; Baker, Laurence C.

doi:10.1016/j.socscimed.2005.03.025

Cited by 472 publications

(353 citation statements)

References 27 publications

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“…Bradley (2010) Providing information about issues of privacy and confidentiality may be particularly important to users of e-mental health services. A survey of internet users (N = 7014) in America compared the internet usage patterns of participants who reported experiencing a stigmatised illness, such as depression, to those who reported other health related conditions, such as back pain (Berger, Wagner & Baker, 2005). The survey revealed that participants who reported a stigmatised illness were significantly more likely to access the internet for health information and to communicate with clinicians on the internet about their condition than participants who did not report having a stigmatised illness Providing information about the efficacy of treatment programs may also be important, although again much of this evidence comes from research into improving attitudes toward face to face psychological interventions.…”

Section: Providing Information To Improve Attitudesmentioning

confidence: 99%

8. Making and Keeping the Connection: Improving Consumer Attitudes and Engagement in E-Mental Health Interventions

Casey¹,

Clough²

2015

The Psychology of Social Networking Vol.1

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Section: Providing Information To Improve Attitudesmentioning

confidence: 99%

8. Making and Keeping the Connection: Improving Consumer Attitudes and Engagement in E-Mental Health Interventions

Casey¹,

Clough²

2015

The Psychology of Social Networking Vol.1

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“…É mais provável que um indivíduo acometido por uma patologia busque informações sobre saúde na rede do que um indivíduo sadio (nettleton, 2004;BeRGeR et al, 2005;BundoRF et al, 2006). Portadores de patologias consideradas estigmatizantes (depressão, incontinência urinária, herpes, entre outras) encontram no anonimato das relações virtuais um caminho, pois a possibilidade de falar sobre suas queixas aumenta consideravelmente com a comunicação à distância, tanto com médicos quanto com outros indivíduos portadores de quadros semelhantes.…”

Section: A Internet Como Recursounclassified

“…Portadores de patologias consideradas estigmatizantes (depressão, incontinência urinária, herpes, entre outras) encontram no anonimato das relações virtuais um caminho, pois a possibilidade de falar sobre suas queixas aumenta consideravelmente com a comunicação à distância, tanto com médicos quanto com outros indivíduos portadores de quadros semelhantes. o risco de discriminação, embaraço e humilhação é drasticamente reduzido (BeRGeR et al, 2005). ao mesmo tempo, 353 pode-se fazer uso da internet para a aquisição de informações sobre questões relativas à saúde com o objetivo de seguir um estilo de vida saudável, revelando uma postura pró-ativa, de autocuidado em relação à saúde (PandeY et al, 2003).…”

Section: A Internet Como Recursounclassified

Internet na promoção da saúde: um instrumento para o desenvolvimento de habilidades pessoais e sociais

Garbin¹,

Guilam²,

Neto³

2012

Physis

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O desenvolvimento de habilidades pessoais e sociais, no sentido da aquisição de maior controle e maior poder de decisão (Empowerment), é considerado estratégia de fundamental importância na promoção da saúde. O acesso à informação é uma das bases para tal. Muito vem sendo dito e escrito sobre o imenso potencial da internet, estudos apontam-na como um instrumento especial para obtenção de informação e de capacitação, tanto individual, quanto comunitária. Este texto se apoia na literatura científica nacional e internacional sobre promoção da saúde, informação e saúde na internet e divisão/exclusão digital, com o objetivo de discutir a possibilidade de utilização da rede como recurso em projetos voltados para a promoção da saúde, apontando pontos positivos e possíveis barreiras, com destaque para a questão da divisão/exclusão digital de boa parte da população brasileira. Os autores consideram que a internet pode vir a ser uma grande aliada na construção de projetos de promoção da saúde. No entanto, no desenvolvimento desses projetos, é fundamental considerar os potenciais riscos e compreender que as estratégias e programas na área da promoção da saúde precisam se adaptar às necessidades e possibilidades de cada local e levar em conta as diferenças sociais, culturais e econômicas.

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“…Universally, individuals with chronic or stigmatized diseases such as stroke are more likely to search for health information on the Internet than those without the health conditions do [16][17][18][19]. Stroke is the foremost cause of serious long-term disability with high health care cost [20] and puts an increasing economic burden on health care resources [21].…”

Section: Introductionmentioning

confidence: 99%

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation (Preprint)

Lee¹,

Shin²,

An³

2018

Preprint

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Background: The websites are common resources of health-information to stroke survivors and caregivers to obtain information and resources for continual management of stroke and the long-term sequels. Korean Americans (KAs) are frequent users of the webbased health information related to stroke management. The high stroke risk factors and mortality in KAs and lack of insurance, thus limited access to long-term care explains KAs' reliance on the web-based information. Quality of information on the websites is often questioned. Objective: This study aimed to provide a systematic evaluation of stroke-related websites regarding (1) trustworthiness (2) readability, and (3) the suitability for stroke prevention and self-management in KAs. Methods: The search terms 'stroke,' 'CVA,' '중풍 [jungpung],' and '뇌졸증[noejoljung]' were used to find stroke-related websites on Google and Yahoo. A total of 156 websites appeared on the 1 st and 2 nd pages. After eliminating duplicates and irrelevant websites (n=116), a total of 42 websites (15 in English and 27 in Korean) were evaluated using the National Library of Medicine's health websites evaluation tool for trustworthiness; SMOG for readability; and Suitability Assessment of Materials (SAM) for suitability. All three instruments used the 3-point Likert scale: superior (=2), adequate (=1), or not suitable (=0). Results: Overall, 26 (61.9%) websites received a rating of "adequate" or above for trustworthiness; however, in currency/timeline, the information on 47.6% hasn't been updated more than a year. In terms of authority, 33% failed to provide the publisher and contact information. Regarding accuracy, 50% of the websites didn't cite sources of health information. The overall readability was not suitable; only two (4.8%) websites were rated 5 th grade or lower reading level. In the suitability evaluation, only one website was rated as "superior," 25 (59.5%) websites were "adequate," and 16 (38.1%) websites were "not suitable." Among the suitability subcategory criteria, many websites were limited in graphical directions, interactive motivations for desired healthy behaviors, and multiplelanguage translations. Conclusion: The existing stroke-related websites in either English or Korean are trustworthy and suitable, yet precise citation of evidence-based information will improve trustworthiness. The high reading level of the information may set a barrier to utilization of web-based health information to KAs with a lower level of education. With the consideration of culturally relevant information in multiple languages, graphical examples, multimedia, and interaction features are the areas for improvement in suitability. The improved features can reduce the reading burden of stroke patients/caregivers and build more confidence or self-efficacy when applying the information for condition management and rehabilitation in daily living. These strategies are especially crucial to KAs, who inevitably seek web-based information to fill the gap between their demand and access to he...

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Internet use and stigmatized illness

Cited by 472 publications

References 27 publications

8. Making and Keeping the Connection: Improving Consumer Attitudes and Engagement in E-Mental Health Interventions

8. Making and Keeping the Connection: Improving Consumer Attitudes and Engagement in E-Mental Health Interventions

Internet na promoção da saúde: um instrumento para o desenvolvimento de habilidades pessoais e sociais

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation (Preprint)

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