Interventions to support people with dementia and their caregivers during the transition from home care to nursing home care: A systematic review

Müller, Christian; Lautenschläger, Sindy; Meyer, Gabriele; Stephan, Astrid

doi:10.1016/j.ijnurstu.2017.03.013

Cited by 58 publications

(37 citation statements)

References 38 publications

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“…However, such support was ad hoc, with no formal programmes in place or referral to additional services to help families. While there is an emergence of published interventions to support caregivers, there is only limited information about their effectiveness (Brooks, Fielding, Beattie, Edwards, & Hines, 2018;Müller, Lautenschläger, Meyer, & Stephan, 2017), and more work is required to both improve the quality of the evidence and translate findings to the RAC sector.…”

Section: Discussionmentioning

confidence: 99%

Adjusting to life in a residential aged care facility: Perspectives of people with dementia, family members and facility care staff

Davison

Camões-Costa

Clark

2019

Journal of Clinical Nursing

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Aims and objectives To determine factors that facilitate or impede adjustment to residential aged care (RAC) from the perspectives of residents with dementia, families of residents with dementia and facility staff. Background The transition to a RAC facility can be highly stressful for people with dementia and their families, but we lack an understanding of how people with dementia experience this transition. Knowledge on adjustment to the new environment is essential in order to develop procedures and interventions that better support residents. Design and methods This study consisted of interviews with 12 residents with dementia who had resided at a RAC facility for six months or less; 14 family members of RAC residents with dementia; and 12 RAC facility staff members. Parallel interview schedules were constructed, with questions on the experience of relocating to RAC for a person with dementia and views on enablers and barriers to successful adjustment. Thematic analysis guided the analysis of data. The study adhered to the consolidated criteria for reporting qualitative research (COREQ) guidelines (see Supplementary File S1). Results Adjustment to RAC appeared variable, with several residents reporting poor acceptance of their circumstances several months after the relocation. The three groups were largely congruent regarding the importance of support from families and staff, and the development of new relationships with other residents, but not all residents had succeeded in forming friendships. The provision of meaningful activities and opportunities to exert autonomy day‐to‐day were seen as critical, but staff experienced challenges in providing individualised care due to lack of dedicated time to engage with residents. Conclusion and relevance to clinical practice There is a need for evaluated interventions to help people with dementia to successfully transition to RAC. Attention should be paid to the way in which care is coordinated within the RAC sector, to enable staff to provide individualised approaches to facilitate adjustment.

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Section: Discussionmentioning

confidence: 99%

Adjusting to life in a residential aged care facility: Perspectives of people with dementia, family members and facility care staff

Davison

Camões-Costa

Clark

2019

Journal of Clinical Nursing

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“…Much research has described the magnitude of effect of efficacious palliative care home-based programs, 26,27 however, there has been little empirical delineation of which specific elements contribute to positive patient and system outcomes. 28 In this article, we provide an overview of the essential components of quality palliative care in the home.…”

Section: Introductionmentioning

confidence: 99%

A Review of the Essential Components of Quality Palliative Care in the Home

Seow

Bainbridge

2018

Journal of Palliative Medicine

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Our metasynthesis of effective palliative homecare models, as well as, the values of those who use and provide these services, illuminates the underpinning elements of quality home-based care for patients with a life-limiting illness. However, the application of these elements must be relevant to the local community context. To create impactful, sustainable homecare programs, it is critical to capitalize on existing processes, partnerships, and assets.

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“…Since Hayward's initial pilot study, there appears to be no further published interventions to facilitate resident adjustment [11] but recent research continues to conclude that an intervention of this nature is needed [12]. The main aim of this study was therefore to create a more feasible, enhanced version of SettleIN.…”

Section: Introductionmentioning

confidence: 99%

SettleIN: Using a Manualised Intervention to Facilitate the Adjustment of Older Adults with Dementia Following Placement into Residential Care

Saint-Bryant

Murrill

Hayward

et al. 2020

IJERPH

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The authors examined the feasibility of delivering an adapted version of SettleIN, a manualised staff-led programme designed to facilitate adjustment to care for new residents with dementia. The effects of SettleIN on resident adjustment, mood and quality of life were also investigated. A pilot randomised controlled trial was conducted. Nineteen new residents with dementia and 21 staff participants were recruited. Residents were randomly assigned to receive the SettleIN programme or residential care as usual. Resident quality of life, mood and overall adjustment were measured at baseline and post-intervention, in week seven. Interviews were conducted with staff in week seven to explore intervention feasibility. Despite medium to large effect sizes, there was no significant difference in mean change scores between the two conditions, with regards to quality of life, psychological wellbeing or overall adjustment outcomes. Qualitative feedback indicated that SettleIN was not feasible across all areas, with problems around recruitment and practicality. However, SettleIN was deemed feasible in terms of retention and acceptability among staff. The majority of staff felt that SettleIN was beneficial for residents but that organisational and programme factors impacted upon intervention feasibility. Further exploration of organisational barriers is needed in order to reduce the impact of such factors on care home research.

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Interventions to support people with dementia and their caregivers during the transition from home care to nursing home care: A systematic review

Cited by 58 publications

References 38 publications

Adjusting to life in a residential aged care facility: Perspectives of people with dementia, family members and facility care staff

Adjusting to life in a residential aged care facility: Perspectives of people with dementia, family members and facility care staff

A Review of the Essential Components of Quality Palliative Care in the Home

SettleIN: Using a Manualised Intervention to Facilitate the Adjustment of Older Adults with Dementia Following Placement into Residential Care

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