2023
DOI: 10.1186/s12939-022-01807-0
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Investigating people’s attitudes towards participating in longitudinal health research: an intersectionality-informed perspective

Abstract: Background Increasing evidence suggests that participation proportions in longitudinal health research vary according to sex/gender, age, social class, or migration status. Intersectionality scholarship purports that such social categories cannot be understood in isolation and makes visible the co-dependent nature of the social determinants of health and illness. This paper uses an intersectionality-informed approach in order to expand the understanding of why people participate in health resea… Show more

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Cited by 6 publications
(4 citation statements)
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“…Furthermore, the variables included in our study were limited and did not include important factors that may have affected enrollment, such as distance from the hospital, severity of symptoms, and patients' attitudes toward research and their motives to enroll in a health cohort. Understanding participants' motives to enroll in longitudinal health research is a critical factor in the success of these studies 32–35 . Participants' willingness to participate in longitudinal health research may be affected by altruism, trust, and personal benefits such as contributing to scientific knowledge, improving healthcare for themselves and others, and benefiting from the research results.…”
Section: Discussionmentioning
confidence: 99%
“…Furthermore, the variables included in our study were limited and did not include important factors that may have affected enrollment, such as distance from the hospital, severity of symptoms, and patients' attitudes toward research and their motives to enroll in a health cohort. Understanding participants' motives to enroll in longitudinal health research is a critical factor in the success of these studies 32–35 . Participants' willingness to participate in longitudinal health research may be affected by altruism, trust, and personal benefits such as contributing to scientific knowledge, improving healthcare for themselves and others, and benefiting from the research results.…”
Section: Discussionmentioning
confidence: 99%
“…The study used intersectionality-informed methods [ 78 ] to ensure a diverse sample by considering Participants’ overlapping identities and experiences. This approach captured the complexities of their lives and how social factors shaped their perspectives [ 78 ].…”
Section: Methodsmentioning
confidence: 99%
“…The study used intersectionality-informed methods [ 78 ] to ensure a diverse sample by considering Participants’ overlapping identities and experiences. This approach captured the complexities of their lives and how social factors shaped their perspectives [ 78 ]. Thus, beyond traditional categories, the selection process considered identities as multidimensional, leading to a comprehensive understanding of Participants’ perspectives [ 17 ].…”
Section: Methodsmentioning
confidence: 99%
“…Moreover, it is increasingly recognised that even when results may not have clinical significance, participants may wish to know them to understand more about themselves [ 2 ]. In a number of empirical studies about why people take part in longitudinal health studies, among both existing participants and the general public, a key motivator is the provision of personalised health information [ 3 5 ]. When study participants themselves have been asked if they wish to receive feedback, the vast majority do.…”
Section: Introductionmentioning
confidence: 99%