Investigation of the relationship between burnout, life satisfaction and quality of life in parents of children with disabilities

Aktan, Osman; Orakcı, Şenol; Durnalı, Mehmet

doi:10.1080/08856257.2020.1748429

Cited by 30 publications

(29 citation statements)

References 37 publications

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“…31 Mothers who have disabled children have difficulties in the care and treatment of their children and they experience burnout, hopelessness, depression, and stress. 13,15,17,18,30 The stress that families experience not only affects their ability to care for the child, but also affects their mental and physical health and the quality of their relationship with their children. 21 Therefore, the coping styles used by the parents to handle this stress are important for well-being and psychological health.…”

Section: Discussionmentioning

confidence: 99%

“…The burnout level increases as the severity of the child's disability increases. 13 Families need support systems to deal with the problems faced by families with disabled children, especially the high level of stress and the burnout that occurs after the more intense difficulties. 17,31 Since intense emotional burden causes serious psychosocial problems in mothers, it is | 1511 important to address the difficulties experienced by mothers professionally.…”

Section: Discussionmentioning

confidence: 99%

“…Similar to this study, a negative correlation was found between the burnout level of the mothers who have disabled children and their perceptions of quality of life and life satisfaction. 13 Social and educational support for families with children with disabilities can contribute to increasing life satisfaction and personal achievement levels and reducing burnout levels. Nurses can try to reduce the burden and stress of the family and help them cope with it through efforts intended to meet the needs of families with children with disabilities.…”

Section: Discussionmentioning

confidence: 99%

“…In this current study, emotional exhaustion scores of mothers who stated that they had difficulties in all kinds of care of children with disabilities were higher ( p < 0.05). The burnout level increases as the severity of the child's disability increases 13 . Families need support systems to deal with the problems faced by families with disabled children, especially the high level of stress and the burnout that occurs after the more intense difficulties 17,31 .…”

Section: Discussionmentioning

confidence: 99%

“…Nurses, who have a responsibility to provide holistic care to families, should advise these families on coping with stress and take initiatives to increase their social support 10,12,31 . Despite descriptive studies in the literature regarding the problems experienced by families with disabled children, 1,13‐18 we did not encounter any study emphasizing the relationship between burnout, life satisfaction, and coping styles of families with children with disabilities. Therefore, this study was needed.…”

Section: Introductionmentioning

confidence: 96%

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Determination of burnout, life satisfaction, and stress coping styles of parents with disabled children

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et al. 2021

Perspect Psychiatr Care

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and coping strategies of families who had a disabled child and the relationships between them.Design and Methods: This descriptive and cross-sectional study conducted with 191 parents of children with disabilities.Findings: As the life satisfaction of childcare providers increased, their emotional exhaustion decreased and sense of personal accomplishment increased (p < 0.05).Practice Implications: It is necessary that nurses and health team members should provide regular and continuous education for burnout, life satisfaction, family stress and coping styles to parents of disabled children using interactive education techniques and group interactions.burnout, coping with stress, disabled child, life satisfaction parent | INTRODUCTIONHaving a child with a disability is a crisis situation that can affect the quality of life of family members, the gender roles of parents, their economic expenses, their working status, their health, stress situations, their decision to maintain a marriage, and their decision to give birth to a new child. 1 The presence of a disabled person in the family generates ongoing problems in every period of life. Living with a disabled individual requires adaptation and causes some limitations in the lives of family members. 2,3 The birth of the disabled child or the subsequent disability situation causes difficulties and changes as the family members adapt to the new conditions, family structure, and relationships with each other and their inner worlds. 4 It is emphasized that this situation, which is difficult to get used to, affects parents' close environment economically, socially, and psychologically. 2,3,5 In addition, disability in children affects the emotional burden in the family, the social support for families is low, 6 and the physical and mental health of mothers, especially, is negatively affected due to their higher responsibility for these children. 7 Families need help and support in dealing with the stressful and long-term changes required to care for a child with disabilities. Therefore, it is important for nurses who care for children with disabilities and their families to know these families, to know their lives, and to plan family-centered nursing care. The nurse should make a holistic and family-centered care plan using many roles and independent functions such as educator, counselor, advocate, decision maker, and caregiver while carrying out her studies in this field. 8,9 Research indicates that the gathering of families with similar problems has positive effects, professional support services for families reduces stress, family burdens, 6 and burnouts, and increase their satisfaction. 10,11 Nurses, who have a responsibility to provide This study was presented as an oral presentation in the 1st International 2nd National Public Health Nursing Congress, April 23-26, 2018, Ankara.holistic care to families, should advise these families on coping with stress and take initiatives to increase their social support. 10,12,31 Despite descriptive studies in the literature rega...

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