Involvement of the Dutch General Population in Advance Care Planning: A Cross-Sectional Survey

Raijmakers, Natasja; Rietjens, Judith; Kouwenhoven, Pauline S. C.; Vezzoni, Cristiano; Thiel, Ghislaine J. M. W. van; Delden, Johannes J. M. van; Heide, Agnes van der

doi:10.1089/jpm.2012.0555

Cited by 32 publications

(51 citation statements)

References 44 publications

(62 reference statements)

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“…For appointing ACD, age was strongest predictor which reflects the tendency found internationally for more planning for, and experience of, death and illness at a later age. [25][26][27] For instructional ACD, being female was associated with higher completion of this document, again consistent with some international studies, 28,29 although others found no gender-based differences. 20,30,31 Most significant, however, is the finding that instructional ACD were associated with a person who has had their own 'health scare'.…”

Section: Discussionsupporting

confidence: 89%

Prevalence of advance care directives in the community: a telephone survey of three Australian States

White

Willmott

Tilse

et al. 2019

Internal Medicine Journal

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Background The community prevalence of advance care directives (ACD) is low despite known benefits of advance care planning for patients, families and health professionals. Aim To determine the community prevalence of instructional and appointing ACD in New South Wales, Victoria and Queensland and factors associated with completion of these documents. Methods A telephone survey of adults living in New South Wales, Victoria and Queensland (n = 1175) about completion of instructional ACD (making their own decisions about future healthcare) and appointing ACD (appointing another to decide). Quota sampling occurred based on population size by state, gender and age, with oversampling in smaller jurisdictions (Victoria and Queensland). Results Overall response rate was 33%. Six per cent of respondents reported completing an instructional ACD while 12% reported completing an appointing ACD. Female gender, higher educational level, personal experience of a major health scare and being widowed were significant predictors of completing an instructional ACD. Older age, higher educational level and being widowed were significant predictors of completing an appointing ACD. Conclusions Despite long‐standing efforts to increase advance care planning, community prevalence of ACD remains low, particularly for instructional ACD. This study found some different predictors for instructional ACD compared with appointing ACD, and also a potential role for experiential factors in triggering uptake. These findings suggest supplementing general community awareness campaigns with more nuanced and targeted efforts to improve ACD completion.

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Section: Discussionsupporting

confidence: 89%

Prevalence of advance care directives in the community: a telephone survey of three Australian States

White

Willmott

Tilse

et al. 2019

Internal Medicine Journal

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“…Only the difference in awareness of the term ACP was not significant after adjustment. This finding that older age, higher education and worse health status are associated with ACP engagement is consistent with data from other cross-sectional studies from Alberta21 and elsewhere 11 12. The trend of increased engagement in discussing and documenting end-of-life care preferences has also been seen in USA between 2002 and 2010 14…”

Section: Discussionsupporting

confidence: 88%

“…Despite an increasing international consensus on the benefits of ACP,6 low levels of public engagement remain a concern 9. A meta-analysis in the palliative care context10 and cross-sectional studies of the public11 12 have explored the reasons for this, but there is a paucity of longitudinal data about whether public engagement in ACP activities is changing over time 13 14. To address this gap in time series data, we have examined for trends in public engagement in elements of ACP using raw data from three independently administered public surveys, conducted in a single Canadian province in 2007, 2012 and 2013.…”

Section: Introductionmentioning

confidence: 99%

Evidence of increasing public participation in advance care planning: a comparison of polls in Alberta between 2007 and 2013

Simon

Ghosh

Heyland

et al. 2016

BMJ Support Palliat Care

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“…) and 7% in the Netherlands have completed ADs (Raijmakers et al . ). Furthermore, in Australia, only 1%–7.9% of individuals, including patients in residential care facilities (Nair et al .…”

Section: Introductionmentioning

confidence: 97%

“…However, AD utilisation was found to be relatively low. Only 25%-30% of the general public in the USA (Rao et al 2014) and 7% in the Netherlands have completed ADs (Raijmakers et al 2013). Furthermore, in Australia, only 1%-7.9% of individuals, including patients in residential care facilities (Nair et al 2000, Taylor et al 2003, have completed ADs.…”

Section: Introductionmentioning

confidence: 99%

Willingness to complete advance directives among low-income older adults living in the USA

Lee

Hong

2015

Health Soc Care Community

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This study explored low-income older adults' willingness to (i) complete advance directives, legal documents, whereby an individual designates decision-makers in the event that they cannot make their own decisions about end-of-life treatment preferences, and (ii) the role of social support and other predictors that impact their willingness. This study was conducted as part of a larger study exploring behaviours of advance care planning among low-income older adults. Out of a total of 255 participants from the original study, this study included 204 participants who did not complete an advance directive for data analysis. A cross-sectional study using probability random sampling stratified by ethnicity was used. Older adults residing in two supportive housing facilities or who were members of a senior centre in San Diego, California, USA, were interviewed in person between December 2010 and April 2011. Hierarchical logistic regression analysis revealed that the majority of participants (72.1%) were willing to complete advance directives and the factors significantly predicting willingness to complete included self-rated health, attitudes towards advance decision-making and social support. Participants with a poorer health status (OR = 1.43, 95% CI = 1.07-1.90) were more willing to complete advance directives. Conversely, participants with higher positive attitudes (OR = 1.18, 95% CI = 1.00-1.39) and greater social support (OR = 1.07, 95% CI = 1.00-1.15) were also more willing to complete advance directives. The findings suggest the importance of ongoing support from healthcare professionals in end-of-life care planning. Healthcare professionals can be a source of support assisting older adults in planning end-of-life care. Initiating ongoing communication regarding personal value and preference for end-of-life care, providing relevant information and evaluating willingness to complete as well as assisting in the actual completion of advance directives will be necessary.

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Involvement of the Dutch General Population in Advance Care Planning: A Cross-Sectional Survey

Cited by 32 publications

References 44 publications

Prevalence of advance care directives in the community: a telephone survey of three Australian States

Prevalence of advance care directives in the community: a telephone survey of three Australian States

Evidence of increasing public participation in advance care planning: a comparison of polls in Alberta between 2007 and 2013

Willingness to complete advance directives among low-income older adults living in the USA

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