Involving fathers in research

Macfadyen, Ann; Swallow, Veronica; Santacroce, Sheila Judge; Lambert, H

doi:10.1111/j.1744-6155.2011.00287.x

Cited by 59 publications

(55 citation statements)

References 11 publications

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“…Whilst Darbyshire () argued there was a need to understand the experiences of both parents, Mikkelsen and Frederiksen () contend that FCC has been built on a narrow understanding of the family based primarily on mothers' views and much of the research on parents' experiences in hospital has focused on mothers (Macfadyn et al . ).…”

Section: Introductionmentioning

confidence: 97%

Protecting, providing, and participating: fathers' roles during their child's unplanned hospital stay, an ethnographic study

Higham

Davies

2012

Journal of Advanced Nursing

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Section: Introductionmentioning

confidence: 97%

Protecting, providing, and participating: fathers' roles during their child's unplanned hospital stay, an ethnographic study

Higham

Davies

2012

Journal of Advanced Nursing

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“…Because full-time working men often lack flexibility for appointment scheduling, they would have to participate in studies that do not affect their availability for work; however, this may involve extra childcare costs or cause disruption to other family members (MacFadyen, Swallow, Santacroce, & Lambert, 2011; Phares, Rojas, Thurston, & Hankinson, 2010). Such work-related barriers reduce the availability of fathers for research participation (Bögels & Phares, 2008).…”

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confidence: 99%

“…If so, fathers may not feel that they are valued in the research process (Bögels & Phares, 2008; Macfadyen et al, 2011) and, in reality, they may not be. In addition, researchers may have assumed that fathers are unwilling to participate, and, as a result, focused their recruitment on mothers (Sherr, Davé, Lucas, Senior, & Nazareth, 2006).…”

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confidence: 99%

Father Participation in Child Psychopathology Research

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Forehand

Pomerantz

et al. 2017

J Abnorm Child Psychol

102

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The purpose of the current study was two-fold: (1) To examine time trends of the inclusion of fathers in child psychopathology research from 2005 to 2015; and (2) to examine online crowdsourcing as a method to recruit and study fathers. In study 1, findings indicated that, relative to two earlier reviews of father participation from 1984 – 1991 and 1992 – 2004, there has been limited progress in the inclusion of fathers in child psychopathology research over the last decade. In study 2, without explicit efforts to recruit fathers, almost 40% of a sample of 564 parents recruited from online crowdsourcing (Amazon’s Mechanical Turk) were fathers. Major demographic differences did not emerge between mother and father participants and data were equally reliable for mothers and fathers. Fathers were more likely to drop out over the course of a 12-month follow-up but these differences in retention between mothers and fathers were non-significant if fathers were retained at a 2-week follow-up. Finally, family process models tested across four assessments (baseline, 4, 8, and 12 month follow-ups) indicated that data from fathers are equally supportive of convergent validity as data from mothers. We concluded that online crowdsourcing is a promising recruitment methodology to increase father participation in child psychopathology research.

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“…Face to face interviews helped to elicit greater depth of detail from parents [37]. Our purposive sampling approach meant our results specifically apply to the research cohort because parents from different ethnic and socio economic backgrounds participated, and 19 fathers (a group who are often under-represented in healthcare research) took part in the study [31,49-53]. Parent recollections were first hand experiences of care management; couple interviews enhanced discourse due to this double hermeneutic [54], as participants shared their mutual care experiences.…”

Section: Discussionmentioning

confidence: 99%

Emerging communities of child-healthcare practice in the management of long-term conditions such as chronic kidney disease: qualitative study of parents’ accounts

Carolan

Smith

Hall

et al. 2014

BMC Health Serv Res

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BackgroundParents of children and young people with long-term conditions who need to deliver clinical care to their child at home with remote support from hospital-based professionals, often search the internet for care-giving information. However, there is little evidence that the information available online was developed and evaluated with parents or that it acknowledges the communities of practice that exist as parents and healthcare professionals share responsibility for condition management.MethodsThe data reported here are part of a wider study that developed and tested a condition-specific, online parent information and support application with children and young people with chronic-kidney disease, parents and professionals. Semi-structured interviews were conducted with 19 fathers and 24 mothers who had recently tested the novel application. Data were analysed using Framework Analysis and the Communities of Practice concept.ResultsEvolving communities of child-healthcare practice were identified comprising three components and several sub components: (1) Experiencing (parents making sense of clinical tasks) through Normalising care, Normalising illness, Acceptance & action, Gaining strength from the affected child and Building relationships to formalise a routine; (2) Doing (Parents executing tasks according to their individual skills) illustrated by Developing coping strategies, Importance of parents’ efficacy of care and Fear of the child’s health failing; and (3) Belonging/Becoming (Parents defining task and group members’ worth and creating a personal identity within the community) consisting of Information sharing, Negotiation with health professionals and Achieving expertise in care. Parents also recalled factors affecting the development of their respective communities of healthcare practice; these included Service transition, Poor parent social life, Psycho-social affects, Family chronic illness, Difficulty in learning new procedures, Shielding and avoidance, and Language and cultural barriers. Health care professionals will benefit from using the communities of child-healthcare practice model when they support parents of children with chronic kidney disease.ConclusionsUnderstanding some of the factors that may influence the development of communities of child-healthcare practice will help professionals to tailor information and support for parents learning to manage their child’s healthcare. Our results are potentially transferrable to professionals managing the care of children and young people with other long-term conditions.

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Involving fathers in research

Abstract: Scientific Inquiry provides a forum to facilitate the ongoing process of questioning and evaluating practice, presents informed practice based on available data, and innovates new practices through research and experimental learning.

Cited by 59 publications

References 11 publications

Protecting, providing, and participating: fathers' roles during their child's unplanned hospital stay, an ethnographic study

Protecting, providing, and participating: fathers' roles during their child's unplanned hospital stay, an ethnographic study

Father Participation in Child Psychopathology Research

Emerging communities of child-healthcare practice in the management of long-term conditions such as chronic kidney disease: qualitative study of parents’ accounts

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