Issues of Disclosure and Intrusion: Ethical Challenges for a Community Researcher

Carter, Kathleen; Banks, Sarah; Armstrong, Andrea; Kindon, Sara; Burkett, Ingrid

doi:10.1080/17496535.2013.769344

Cited by 17 publications

(19 citation statements)

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“…The reality of the local team mixing the private and the professional removes the 'ordered' separations upon which formal ethics and scientific evidence rest. Negotiating ethical concerns in social relations requires a degree of openness and flexibility, and opportunities for local team members to articulate the complex and uncertain challenges arising from their personal encounters across the dividing line between researchers and researched Carter et al, 2013). It also needs considerable support from us (wider partners) to help them reflect on their work and their modes of engagement and to be critical listeners when trying to manage complex community dynamics.…”

Section: Discussionmentioning

confidence: 99%

Between a rock and a hard place: Ethical dilemmas of local community facilitators doing participatory research projects

et al. 2015

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Participatory research is supposed to involve participants in a collective definition of goals and the co-production and sharing of research outputs. However, when articulated through an extended period of time involving a range of local, national and international actors, the practicalities of participatory research means that certain groups and individuals become responsible for taking leading roles, with subsequent ethical dilemmas. In the 'Community-owned solutions for future environmental challenges in the Guiana Shield, South America' (COBRA) project, the participatory research process involves a group of five Indigenous researchers -"the local team" -in charge of carrying out the research on the ground e.g. defining procedures, carrying out community engagement and supporting the communities in analysing and disseminating the material. This local team is, in turn, supported by researchers from a national NGO and foreign academics.Considerable responsibility has been given to the local team for achieving project outcomes, and freedom in defining project tasks and activities. This paper analyses the multiple ethical dilemmas arising out of this situation, particularly the role of the local team as intermediaries between the wider community and project partners. We highlight the existence of significant mismatches between research expectations, and the ethical processes in operation at community level which are usually established on long-term, tacit and reciprocal relationships. We discuss how local community researchers are challenged with balancing the tensions between these two ethical polarities, while at the same time producing participatory research outcomes that are acceptable by everyone involved.

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Section: Discussionmentioning

confidence: 99%

Between a rock and a hard place: Ethical dilemmas of local community facilitators doing participatory research projects

et al. 2015

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“…Complex ethical issues arise with CBPR particularly around the autonomy, consent and confidentiality of individuals and groups, justice in the provision of resources (Buchanan, Miller, & Wallerstein, 2007) and the potential for harm to co-researchers (Carter, Banks, Armstrong, Kindon, & Burkitt, 2013;Sunderland, Catalana, Kendall, McAuliffe, & Chenoweth, 2010). CBPR in therapy needs to be undertaken with especially careful regard for the potential for harm to all co-researchers.…”

Section: The Potential For Distressmentioning

confidence: 99%

Community-based participatory research in counselling and psychotherapy

Spong

Waters

2015

European Journal of Psychotherapy & Counselling

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Over the last 20 years, there has been an increased interest in communitybased participatory research (CBPR) across a range of disciplines. This approach to research focuses on the empowerment of those for whom the research is relevant by ensuring that they or their representatives have the opportunity for full involvement in developing and undertaking studies, and in disseminating the research findings. However, there is little evidence within counselling and psychotherapy of a substantial engagement with research that includes clients, potential clients and their communities as full partners in the research process. This paper describes CBPR and critically explores its potential for developing knowledge in counselling and psychotherapy.Innerhalb der letzten zwanzig Jahre ist das Interesse an partizipativer Forschung beständig gewachsen -und das disziplinübergreifend. Dieser Ansatz verbindet mit seiner Forschung immer auch eine gewisse Befähigung eben jener, die sie zum Objekt haben. Das soll vor allem durch die vollständige Miteinbeziehung der betreffenden Menschen oder ihrer Vertreter in Entwicklung, Durchführung sowie anschließende Verbreitung der Forschungsergebnisse gewährleistet werden. Jedoch gibt es, etwa für die Beratung oder Psychotherapie, bislang wenig Hinweise dafür, dass (mögli-che) Klienten oder ihr Umfeld auch tatsächlich und wesentlich am Forschungsprozess beteiligt werden. Der vorliegende Aufsatz greift den partizipativen Forschungsansatz auf und setzt sich kritisch mit ihm und seinen Potenzialen für Beratung und Psychotherapie auseinander.En los últimos veinte años ha habido un aumento en el interés en investigaciones participativas basadas en la comunidad, en un gran número de disciplinas. Este método de investigación se focaliza en potentizar a aquéllos para quien la investigación es relevante, asegurándoles que ellos o sus representantes tienen la oportunidad para involucrarse completamente en desarrollar estudios y en divulgar los resultados de las investigaciones. Sin embargo, existe poca evidencia en psicoterapia y en orientación psicológica, de un compromiso substancial con investigaciones que incluya clientes, clientes potenciales y sus comunidades como participantes completos en el proceso de investigación. Este artículo describe investigaciones participativas basadas en la comunidad y explora críticamente su potencial para desarrollar el conocimiento en psicoterapia y en orientación psicológica.Palabras clave: orientación psicológica; investigación participativa comunal; investigación participativa basada en la comunidad; clínica de investigación en orientación psicológica; psicoterapia Negli ultimi 20 anni è molto cresciuto l'interesse per la ricerca partecipativa basata sulla comunità in un'ampia gamma di discipline. Questo approccio alla ricerca si focalizza sul potenziamento di coloro per i quali la ricerca è rilevante, garantendo che essi stessi, o i loro rappresentanti, possano essere pienamente coinvolti nello sviluppo, nell'avvio di studi e nella diffusione dei risultati dell...

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“…5 Reciprocal sharing of personal stories is an effective way to gather rich, descriptive data, yet it can also make the researcher feel vulnerable 3 and emphasise the two-way vulnerability between the researcher and the researched. 14,25 Self-disclosure such as this is suggested to be good research practice, 26 as a way of "levelling the field" 3 and nurturing a more egalitarian interaction. At the same time, it can be argued that self-disclosure is ethically problematic on the basis that it is deceptive and exploitative of research participants.…”

Section: Participant Relationships and Unclear Relational Boundariesmentioning

confidence: 99%

“…In particular, this has been noted by researchers engaged in community based participatory research [12][13][14] and research with vulnerable populations. 13,15 Moreover, with emerging qualitative methodologies such as 'autoethnography' , both experienced and novice qualitative health researchers face new ethical issues.…”

mentioning

confidence: 91%

“…While the focus of this paper is on supporting novice researchers, experienced qualitative researchers also face ethical challenges associated with the unpredictable, iterative and relational nature of qualitative research and the inadequacy of current ethics review processes, which are positivistic. In particular, this has been noted by researchers engaged in community based participatory research [12][13][14] and research with vulnerable populations. 13,15 Moreover, with emerging qualitative methodologies such as 'autoethnography' , both experienced and novice qualitative health researchers face new ethical issues.…”

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confidence: 91%

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Undertaking ethical qualitative research in public health: are current ethical processes sufficient?

Kendall

Halliday²

2014

Australian and New Zealand Journal of Public Health

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Issues of Disclosure and Intrusion: Ethical Challenges for a Community Researcher

Cited by 17 publications

References 1 publication

Between a rock and a hard place: Ethical dilemmas of local community facilitators doing participatory research projects

Between a rock and a hard place: Ethical dilemmas of local community facilitators doing participatory research projects

Community-based participatory research in counselling and psychotherapy

Undertaking ethical qualitative research in public health: are current ethical processes sufficient?

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