iSupport: a WHO global online intervention for informal caregivers of people with dementia

Pot, A.M.; Gallagher‐Thompson, Dolores; Xiao, Lily Dongxia; Willemse, Bernadette; Rosier, Iris; Mehta, Kala M.; Zandi, Diana; Dua, Tarun

doi:10.1002/wps.20684

Cited by 75 publications

(52 citation statements)

References 6 publications

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“…49,50 Interventions that can be accessed globally and can support carers worldwide are urgently needed considering that a greater number of people with dementia are currently living in low-and middle-income countries, and this trend is expected to be more profound in the future. 51 The well-established multicomponent interventions that can tackle some of the critical predictors such as START 52 could be beneficial for carers from countries with the lower development status if the intervention materials could be translated into multiple languages. However, there are other factors that should be considered apart from the language translation such as differences in culture, health, and social care systems and the availability of resources including skilled therapists.…”

Section: Discussionmentioning

confidence: 99%

Factors Related to the Quality of Life in Family Carers of People With Dementia: A Meta-Analysis

Contreras

Mioshi

Kishita

2020

J Geriatr Psychiatry Neurol

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Objectives: This meta-analysis aimed to (1) quantitatively synthesize evidence of factors related to the quality of life (QoL) of family carers of people with dementia and (2) explore moderating factors that may influence the strength of the relationship between such potential predictive factors and carer QoL. Methods: Studies that investigated correlations between patient/carer factors and QoL in unpaid family carers of people with dementia and were published in English, Spanish, Portuguese, or Japanese were included. Results: Thirty-three studies were identified. The pooled correlations with carer QoL (effect size) were significantly large for depression (−0.58), significantly moderate for subjective burden (−0.47), and significantly small for people with dementia’s neuropsychiatric symptoms (−0.24). These results indicated to be robust in the context of publication bias. The results of subgroup analyses demonstrated the social and economic development status of the country where study participants resided did not moderate these effects. Conclusion: Carer depression, subjective burden, and people with dementia’s neuropsychiatric symptoms may play a critical role in maintaining QoL of family carers regardless of the social and economic circumstances.

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Section: Discussionmentioning

confidence: 99%

Factors Related to the Quality of Life in Family Carers of People With Dementia: A Meta-Analysis

Contreras

Mioshi

Kishita

2020

J Geriatr Psychiatry Neurol

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“…In addition, all caregivers were invited to do a relaxation exercise at the end of each lesson. The development of iSupport is described in detail in an earlier paper 31 . Adaptations were made in wording, names used, and resource links provided to adapt iSupport to the Indian setting (manuscript under review).…”

Section: Methodsmentioning

confidence: 99%

“…The development of iSupport is described in detail in an earlier paper. 31 Adaptations were made in wording, names used, and resource links provided to adapt iSupport to the Indian setting (manuscript under review). No language adaptations were done as English has been a medium of instruction and communication for caregiver interventions in India.…”

Section: Isupport Interventionmentioning

confidence: 99%

“…In such a highly populated country which is aging rapidly, the need for training and support services for people with dementia and their caregivers is paramount 2,30 . To bridge the gap, World Health Organization (WHO) partnered with international experts in caregiving and dementia and developed a generic comprehensive online training and support program called “iSupport.” 31 iSupport is a multicomponent intervention program based on the person‐centered dementia care model developed by Kitwood in which the concept of care is built around the needs of the individual and affirms personhood 32 . In this model, care is thought of as interaction, according to each individual's needs, personality and ability and implies recognition, respect, and trust.…”

Section: Introductionmentioning

confidence: 99%

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Feasibility and preliminary effectiveness of an online training and support program for caregivers of people with dementia in India: a randomized controlled trial

Baruah

Varghese

Loganathan

et al. 2021

Int J Geriat Psychiatry

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Objectives Internet‐based interventions involving elements of cognitive behavior therapy, psychoeducation, relaxation and skills training for caregivers of people with dementia have been found to be promising in Western countries. Given these outcomes, the adapted version of a multi‐component online caregiver skills training and support program of the World Health Organization, called iSupport, was tested for feasibility and preliminary effectiveness in India. Methods One hundred fifty‐one caregivers of family members with a diagnosis of Alzheimer's disease or dementia were randomized to either the intervention arm (iSupport; n = 74) or to the control group (an education‐only e‐book program; n = 77). Participants were assessed using self‐rated measures of depression and perceived burden, which were the primary outcome measures, at baseline and 3‐month follow‐up. Person‐centered attitude, self‐efficacy, mastery and self‐rated health were also assessed. Results Fifty‐five caregivers (29 in the iSupport group and 26 in the control condition) completed the study. The recruitment and retention rate of the study were 44.67% and 36.42% respectively. No significant differences were found between the two groups at 3‐month follow‐up on the primary outcomes. Among the secondary outcomes, significant improvement was only seen in caregivers' person‐centered attitude towards persons with dementia in the iSupport group (t = 2.228; p < 0.05). Conclusions Despite efforts to recruit and retain participants to the online program, this study had a low recruitment and retention rate, which require closer attention and indicates a need for further adaptations of the Indian version of the iSupport program to improve its acceptability and accessibility. The lessons learned from this study will guide the further development of caregiver training and support interventions in India. The trial was registered with the Clinical Trials Registry‐India (Trial Registration No. CTRI/2017/02/007876).

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“…Such evidence includes psychosocial supports delivered online that have demonstrated clinically meaningful benefits for mental health outcomes including depression and anxiety 16 . There is now considerable expansion internationally with appropriate cultural adaptation and personalisation and delivery/evaluation in lower and middle income country settings 23 .…”

Section: Introductionmentioning

confidence: 99%

Digital Technology, Health and Well-Being and the Covid-19 Pandemic: It's Time to Call Forward Informal Carers from the Back of the Queue

Egan

2020

Seminars in Oncology Nursing

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Objective To describe the current challenges of family caregivers during and beyond the COVID-19 pandemic, the need for future digital innovations including involvement from professional nursing roles. Data Sources Review of recent literature from PubMed and relevant health and care reports. Conclusions The COVID-19 pandemic has caused monumental disruption to healthcare delivery and care. Caregivers face unprecedented levels of uncertainty: both for the people they care for and for their own health and wellbeing. Given that many carers face poor health and wellbeing- there is a significant risk that health inequalities will be increased by this pandemic, particularly for high risk groups. Innovations including those supported and delivered by digital health could make a significant difference but careful planning and implementation is a necessity for widespread implementation. Implications for Nursing practice Carers need to be championed in the years ahead to ensure they do not become left at the “back of the queue” for health and wellbeing equity. This situation has been exacerbated by the COVID-19 pandemic. Disruptive change to health and social care is now required where digital health solutions hold considerable promise, yet to be fully realised.

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iSupport: a WHO global online intervention for informal caregivers of people with dementia

Cited by 75 publications

References 6 publications

Factors Related to the Quality of Life in Family Carers of People With Dementia: A Meta-Analysis

Factors Related to the Quality of Life in Family Carers of People With Dementia: A Meta-Analysis

Feasibility and preliminary effectiveness of an online training and support program for caregivers of people with dementia in India: a randomized controlled trial

Digital Technology, Health and Well-Being and the Covid-19 Pandemic: It's Time to Call Forward Informal Carers from the Back of the Queue

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