‘It's not my job. I’m the patient not the doctor’: Patient perspectives on medicines management in the treatment of schizophrenia

Stewart, Derek; Anthony, Geraldine; Chesson, Rosemary

doi:10.1016/j.pec.2009.06.016

Cited by 18 publications

(33 citation statements)

References 26 publications

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“…These results are in contrast with Stewart et al . 's (), which found that people with schizophrenia had no desire to be involved in self‐management (Stewart et al . ).…”

Section: Discussionmentioning

confidence: 99%

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Self‐management in Chinese people with schizophrenia and their caregivers: A qualitative study on facilitators and barriers

Zou

Arthur

et al. 2013

Int J Mental Health Nurs

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The purpose of this study was to explore facilitators and barriers of self-management from the viewpoint of Chinese people with schizophrenia and their caregivers. A qualitative study using the individual interview method was used. Twenty-one people with schizophrenia and 14 caregivers were interviewed. Three facilitators were identified: family and peer support, positive relationships with health professionals, and positive attitudes towards self-management. Four barriers were identified: lack of knowledge and skills, financial constraint, social stigma, and uncoordinated mental health services. The findings from this study should help nurses to recognize the factors that influence self-management and provide direction for nurses and other health professionals involved in initiating and implementing family-based self-management programmes for people with schizophrenia. The findings also call for the development of antistigma programmes, which are needed to help reduce prejudice and discrimination towards individuals with schizophrenia in China. The study also provides information for health policy makers in China to help them make potential changes in mental health services, which can better meet the needs of Chinese people with schizophrenia.

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“…These results are in contrast with Stewart et al . 's (), which found that people with schizophrenia had no desire to be involved in self‐management (Stewart et al . ).…”

Section: Discussionmentioning

confidence: 99%

“…Although some researchers doubt the self‐management ability of people with schizophrenia (Stewart et al . ), many studies have demonstrated that a significant proportion of people with schizophrenia can successfully self‐manage their condition (Onken et al . ).…”

Section: Introductionmentioning

confidence: 99%

Self‐management in Chinese people with schizophrenia and their caregivers: A qualitative study on facilitators and barriers

Zou

Arthur

et al. 2013

Int J Mental Health Nurs

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“…Service users report strongly desiring more information about treatment options and in particular a greater understanding of the cost benefit ratio for decisions concerning medication (Barr et al, 2016). In addition, service users seek information from different sources, including conversations with peers, other professionals, and the internet (Stewart et al, 2010). Tanenbaum (2008) used focus groups, to explore types of information MHSUs value and what role it serves in decision making.…”

Section: Factors Related To the Service Usermentioning

confidence: 99%

Attitudes towards shared decision making in mental health: a qualitative synthesis

Kaminskiy

Senner

Hamann

2017

MHRJ

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PurposeShared Decision Making (SDM) prioritises joint deliberation between practitioner and service user, and a respect for service-users' experiential knowledge, values and preferences.. This article reviews the existing literature pertaining to key stakeholders' attitudes towards SDM in mental health. It examines whether perceived barriers and facilitators differ by group (e.g. service user, psychiatrist, nurse, social worker) and includes views of what facilitates and hinders the process for service users and practitioners. MethodologyThis review adopts the principles of a qualitative research synthesis. A key word search of research published between 1990 and 2016 was undertaken. Qualitative, quantitative and mixed methods studies were included. Findings43 papers were included and several themes identified for service user and practitioner perspectives. Both practitioners and service users see SDM as an ethical imperative, and both groups highlight the need to be flexible in implementing shared decision making, suggesting it is context dependent. A range of challenges and barriers are presented by both practitioners and service users reflecting complex contextual and cultural features within which interactions in mental health take place. There were qualitative differences in what service users and practitioners describe as preventing or enabling SDM. The differences highlighted point towards different challenges and priorities in SDM for service users and practitioners. Originality / ValueThe presentation of nuanced views and attitudes that practitioners and service users hold represent an important and under reported area and offer insight into the reasons for the gap between idealised policy and actual practice of SDM in mental health settings.

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“…; Stewart et al . ). Participation means that patients play an active role when medication is planned (Mikesell et al .…”

Section: Introductionmentioning

confidence: 97%

Patient participation in pro re nata medication in psychiatric inpatient settings: An integrative review

Hipp

Kuosmanen

Repo-Tiihonen

et al. 2017

Int J Mental Health Nurs

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Pro re nata (PRN) medication is widely used and studied in psychiatric care, but our knowledge about patient participation in its administration is fragmented. The aim of this integrative review was to describe and synthesize previous knowledge of patient participation in PRN in psychiatric inpatient settings. We conducted both electronic and manual searches, using the CINAHL, Scopus, PsycINFO, and PubMed databases, and eight scientific journals. Searches were limited to the English language, to the years 2006-2016, and to selected papers using inclusion, exclusion, and quality criteria. We identified 16 relevant papers, and these showed that patient participation included patient-related starting points, including the patients' willingness to participate and their knowledge of the medication. The patients' participation in PRN practices was demonstrated by the opportunity to request PRN and to refuse any PRN that was offered. Patient participation was shown to be linked to certain situations where PRN was recommended. The role that the professionals played in patient participation included interacting with patients, providing counselling and alternatives for PRN. Our results also revealed that coercion was used administering PRN. The existing literature exposed challenges that need to be addressed if patient participation in the use of PRN medication is to be effectively achieved in psychiatric inpatient settings. Equal partnerships between patients, nurses, and physicians are an essential part of this process, and further research into PRN medication is urgently needed, particularly studies that focus on patients' experiences.

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‘It's not my job. I’m the patient not the doctor’: Patient perspectives on medicines management in the treatment of schizophrenia

Cited by 18 publications

References 26 publications

Self‐management in Chinese people with schizophrenia and their caregivers: A qualitative study on facilitators and barriers

Self‐management in Chinese people with schizophrenia and their caregivers: A qualitative study on facilitators and barriers

Attitudes towards shared decision making in mental health: a qualitative synthesis

Patient participation in pro re nata medication in psychiatric inpatient settings: An integrative review

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