Kann Lebensqualität bei Demenzkranken valide bestimmt werden?

Roick, Christiane; Hinz, Andreas M.; Gertz, Hermann‐Josef

doi:10.1055/s-2006-952012

Cited by 15 publications

(4 citation statements)

References 43 publications

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“…Proxies might rate patients’ quality of life differently than patients themselves, if they were capable to do so (weak inter-rater reliability) [ 28 ]. The development of QoL-instruments for all severity levels in a self-assessed manner or at least of more reliable proxy-person-instruments [ 28 ] is still needed [ 42 , 43 ].…”

Section: Discussionmentioning

confidence: 99%

Cluster randomised trial of a complex interprofessional intervention (interprofACT) to reduce hospital admission of nursing home residents

et al. 2023

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Background Some hospital admissions of nursing home residents (NHRs) might be attributed to inadequate interprofessional collaboration. To improve general practitioner–nurse collaboration in nursing homes (NHs), we developed an intervention package (interprof ACT) in a previous study. Objective To assess the impact of interprof ACT on the proportion of hospitalisation and other clinical parameters within 12 months from randomisation among NHRs. Methods Multicentre, cluster randomised controlled trial in 34 German NHs. NHRs of the control group received usual care, whereas NHRs in the intervention group received interprof ACT. Eligible NHs had at least 40 long-term care residents. NHs were randomised 1:1 pairwise. Blinded assessors collected primary outcome data. Results Seventeen NHs (320 NHRs) were assigned to interprof ACT and 17 NHs (323 NHRs) to usual care. In the intervention group, 136 (42.5%) NHRs were hospitalised at least once within 12 months from randomisation and 151 (46.7%) in the control group (odds ratio (OR): 0.82, 95% confidence interval (CI): [0.55; 1.22], P = 0.33). No differences were found for the average number of hospitalisations: 0.8 hospitalisations per NHR (rate ratio (RR) 0.90, 95% CI: [0.66, 1.25], P = 0.54). Average length of stay was 5.7 days for NHRs in the intervention group and 6.5 days in the control group (RR: 0.70, 95% CI: [0.45, 1.11], P = 0.13). Falls were the most common adverse event, but none was related to the study intervention. Conclusions The implementation of interprof ACT did not show a statistically significant and clinically relevant effect on hospital admission of NHRs.

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Section: Discussionmentioning

confidence: 99%

Cluster randomised trial of a complex interprofessional intervention (interprofACT) to reduce hospital admission of nursing home residents

et al. 2023

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“…Acknowledging the problem of potential bias of proxy reports, we chose a proxy rating for QoL in the THERAD study, for several reasons. Firstly, it has been demonstrated with increasing severity of the disease that patient ratings must mostly be replaced by proxy ratings [ 55 ],[ 56 ], even if Logsdon and colleagues showed in 2002 that patients can rate their own QoL until the late stages [ 28 ]. This last study showed that the correlation between caregiver’s rating and patient’s rating was greatest for subjects in the middle tertile of cognitive function, and the recruitment of our centre for the THERAD study is mainly moderately affected patients.…”

Section: Discussionmentioning

confidence: 99%

Study protocol: Randomised controlled trial to evaluate the impact of an educational programme on Alzheimer’s disease patients’ quality of life

et al. 2014

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IntroductionTherapeutic education is expanding in the management of Alzheimer’s disease (AD) patients. Several studies have revealed a positive impact of therapeutic educational programmes on the caregiver’s burden and/or quality of life. However, to date, no study has evaluated its impact on the quality of life of the AD patient.MethodsThe THERAD study (THerapeutic Education in Alzheimer’s Disease) is a 12-month randomised controlled trial that started in January 2013. This paper describes the study protocol. THERAD plans to enroll 170 dyads (AD patient and caregiver) on the basis of the following criteria: patient at a mild to moderately severe stage of AD, living at home, receiving support from a family caregiver. The main outcome is the patient’s quality of life assessed by the Logsdon QoL-AD scale at 2 months, reported by the caregiver. The study is being led by geriatricians trained in therapeutic education at Toulouse University Hospital in France. To date, 107 caregiver/patient dyads have been recruited.ConclusionThis is the first trial designed to assess the specific impact of a therapeutic educational programme on the AD patient’s quality of life. The final results will be available in 2015.Trial registration[ClinicalTrials.gov: NCT01796314] Registered 19 February 2013

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“…Schließlich stellt die Erfassung der Lebensqualität bei Demenz auch vor erhebliche methodische Herausforderungen [10]. Die Zuverlässigkeit subjektiver Selbstauskünfte kann auf-grund kognitiver Beeinträchtigungen und verminderter Krankheitseinsicht kompromittiert sein [11].…”

Section: Die Lebensqualität Von Menschen Mit Demenzunclassified

Das größte Unglück? Demenz zwischen persönlichem Erleben und gesellschaftlicher Repräsentation

Schweda

2018

Psychiat Prax

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Dementia is widely regarded as one of the greatest threats to a good and dignified life in old age, a condition so terrifying that even death appears preferable. This contribution is dedicated to a critical discussion of the corresponding conceptions of dementia. It first provides an overview on the existing knowledge on the wellbeing and quality of life of people with dementia. Against this backdrop, it explores the reasons for the negative assessment of dementia in the public sphere. In doing so, it examines prevalent interpretations of dementia in light of widespread societal views and values.

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Kann Lebensqualität bei Demenzkranken valide bestimmt werden?

Cited by 15 publications

References 43 publications

Cluster randomised trial of a complex interprofessional intervention (interprofACT) to reduce hospital admission of nursing home residents

Cluster randomised trial of a complex interprofessional intervention (interprofACT) to reduce hospital admission of nursing home residents

Study protocol: Randomised controlled trial to evaluate the impact of an educational programme on Alzheimer’s disease patients’ quality of life

Das größte Unglück? Demenz zwischen persönlichem Erleben und gesellschaftlicher Repräsentation

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