Ki döntsön az élet végén? Az ellátás előzetes                     tervezésének nemzetközi gyakorlata és hazai lehetőségei

Busa, Csilla; Zeller, Judit; Csikós, Ágnes

doi:10.1556/650.2018.30937

Cited by 4 publications

(1 citation statement)

References 18 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…It lacks however insight in international differences in preferences and attitudes of the general public regarding EoL-care. At the same time, concepts such as Shared Decision Making, [ 25 , 26 ] and Advance Care Planning [ 27 , 28 ] are internationally embraced and implemented in order to diminish unwarranted variation in EoL-care. The recent COVID-19 pandemic has further catalysed this movement, and ACP and SDM initiatives are now even encouraged on a global scale.…”

Section: Introductionmentioning

confidence: 99%

Preferences in end of life care substantially differ between the Netherlands and Japan

et al. 2020

View full text Add to dashboard Cite

Strategies to increase appropriateness of EoL care, such as shared decision making (SDM), and advance care planning (ACP) are internationally embraced, especially since the COVID-19 pandemic. However, individuals preferences regarding EoL care may differ internationally. Current literature lacks insight in how preferences in EoL care differ between countries and continents. This study's aim is to compare Dutch and Japanese general publics attitudes and preferences toward EoL care, and EoL decisions. Methods: a cross-sectional survey design was chosen. The survey was held among samples of the Dutch and Japanese general public, using a Nationwide social research panel of 220.000 registrants in the Netherlands and 1.200.000 in Japan. A quota sampling was done (age, gender, and living area). N = 1.040 in each country. More Japanese than Dutch citizens tend to avoid thinking in advance about future situations of dependence (26.0% vs 9.4%; P = .000); say they would feel themselves a burden for relatives if they would become dependent in their last phase of life (79.3% vs 47.8%; P = .000); and choose the hospital as their preferred place of death (19.4% vs 3.6% P = .000). More Dutch than Japanese people say they would be happy with a proactive approach of their doctor regarding EoL issues (78.0% vs 65.1% JPN; P = .000). Preferences in EoL care substantially differ between the Netherlands and Japan. These differences should be taken into account a) when interpreting geographical variation in EoL care, and b) if strategies such as SDM or ACP – are considered. Such strategies will fail if an international “one size fits all” approach would be followed.

show abstract

Section: Introductionmentioning

confidence: 99%

Preferences in end of life care substantially differ between the Netherlands and Japan

et al. 2020

View full text Add to dashboard Cite

show abstract

General practitioners’ views of advance care planning: a questionnaire-based study

Somal

Foley

2021

Ir J Med Sci

View full text Add to dashboard Cite

Who should talk with patients about their end-of-life care wishes? A nationwide survey of the Hungarian population

Busa

Pozsgai

Zeller

et al. 2022

Scandinavian Journal of Primary Health Care

Self Cite

View full text Add to dashboard Cite

Objective To explore the needs and opportunities of the general population to communicate their end-of-life care wishes and to investigate what roles are assigned to healthcare providers and family members in end-of-life care discussions. Design A cross-sectional social survey was carried out in Hungary. Descriptive analysis and analysis of variance were performed. Setting Nationwide survey of the Hungarian general population. Subject The sample ( n = 1100) was designed to represent the adult population as per distribution by gender, age and geographical region. Main outcome measures Needs and opportunities of the general population to communicate end-of-life care wishes. Results 72% of participants found it important to discuss their end-of-life care wishes with someone. Six out of ten believed that it was also the GPs’ task to talk with the patients about their end-of-life care wishes. An almost equal level of engagement was expected from healthcare providers (80%) -especially physicians (72%)- and family members (75%) in end-of-life conversations. However, only 36% of participants felt that there was someone among their healthcare providers, and 56% of them had a family member or friend with whom they could speak openly about death, dying and preparing for death. Conclusion Compared to their needs, the general population had fewer opportunities to speak about death, dying and preparing for death. Training programs for healthcare providers, particularly GPs, and public awareness campaigns may support the broader application of advance care planning in Hungary. Key Points Current guidelines recommend that GPs initiate advance care planning discussions. However, little is known with whom the general population wish to discuss their end-of-life care preferences and with whom there is an opportunity to do so. An almost equal level of engagement was expected from healthcare providers -especially physicians- and family members in end-of-life conversations. Most of the general population thought that participation in end-of-life discussions was also the GPs’ task. The majority of participants reported that there was no one among their healthcare providers and a sizable minority felt that there was no one among their family members or friends with whom they could talk openly about death, dying, and preparing for death. The highest levels of unmet needs regarding end-of-life conversations with healthcare providers were found among those who considered it important to discuss their end-of-life care wishes.

show abstract

Ki döntsön az élet végén? Az ellátás előzetes tervezésének nemzetközi gyakorlata és hazai lehetőségei

Cited by 4 publications

References 18 publications

Preferences in end of life care substantially differ between the Netherlands and Japan

Preferences in end of life care substantially differ between the Netherlands and Japan

General practitioners’ views of advance care planning: a questionnaire-based study

Who should talk with patients about their end-of-life care wishes? A nationwide survey of the Hungarian population

Contact Info

Product

Resources

About